8621-full
survivor2sweet
Sex: F
Data Quality: 0 stars
MS: 5 yrs
Type: Relapsing-Remitting
Sensation: Mild
Overall: Mild
Cognition: moderate
Vision: moderate
Speech: mild
Swallowing: mild
Upper limb: mild
Walking: moderate
survivor2sweet
Female, 41 years
AL, United States
Primary Condition
MS and 1 more
Type
Relapsing-Remitting
First symptom
Diagnosis

About survivor2sweet

Hey, I am 37 female, married, no kids. I spend alot of time alone my husband is a truck driver. We have been married 3 years in March. My family and friends live 3 to 4 hours aways from me. I am really having a hard time with MS. The biggest thing is not knowing from day to day what is gong to happen. I have had alot of symptoms! Some better some worse. I have supposedly R/R not sure.

Profile Activity
7,299 Views
Member since: Jan 10, 2009 Last Login Jun 22, 2010

Other Conditions

  1. Major Depressive Disorder
    First symptom
    ?
    Diagnosis
    ?

More About survivor2sweet

Hey, I feel as though an alien came down during the night and got my body. I woke up one morning and I was numb on the right side of my body. I thought it would go away but no it stayed. In a few days I could not step up good on steps it was very difficult for me. My balance was bad I had to hold on to the walls and furniture. I called my family Dr. he told me I need and MRI on my brain. Well sad to say my husband insurance was not in effect yet. Well thank God my Dr. was my cousin and he arranged for me to have the MRI. He would not DX me. He did mention that he thought I may have MS. We had to wait 2 months on Insurance. I also had a lot of burning sensations in both legs it was very strange feeling. I do not have that much any more. Once I got the insurance I saw a Nero. He told me I needed a spine MRI. My brain MRI did not show anything wrong. I had the spine Mri and it showed I had 3 lesions. My nero put me in the hospital for a spinal tap and steriod treatment for a week.  He told me that he believed I had MS. He did some other test like pricking me and checking my reflex. During all this time I had alot of tingling I was still numb on right side. I could walk fairly good I thought ok if this is MS I can handel it. WOW was I wrong It was not long things went really bad. I was so tired and my walking was worse. I noticed it was the end of June the Right side of my back hurt kind in the middle of the right side. My Walking was off. Then I noticed this tightening it wrapped around my right side to my stomach. I had like this sticking sensations on the right side of my stomach. This was very strange I hated it.  Then my walking got to the point I had to have a walker. I felt terrible all the time. I slept most of the time. My vision was blury in my left eye. I went with my husband on the rode for 3 weeks I was not suppose to be gone that long, but trucker life is very unpredictable. While I was with him it was bad I was so dizzy and my walking it was the worst. I had a very hard time focusing on what I needed to do like stepping and thinking about which way I needed to go. Even after I got off the truck I still had problems being dizzy for a couple of weeks. I took some medicine to try to help the dizziness but it did not help at all. I do remember looking back I was never cold. But in Dec 2007 I was very cold all the time but I did not realize that something was wrong. Now I stay cold alot especially my right foot and leg. I seen a MS Specialist in Sept 2008. He confirmed that I had MS. Before seeing him I had another Mri on another part of my spine  which showed up 2 more lesions. My nero had put me on Betaseron in June 2008. He gave me symmetril and it did nothing for me. He put me on Provigil and it does keep me awake but that is all. I have stiffiness in my right leg the feelin in my leg is strange. For awhile my face sorta felt strange on my right side even now it does sometimes like my mouth wants to draw and I have tinlging on my right side of face. My right side still has tightening like a band squeezing it from time to time. My vision is better in my eye now. My biggest problem is walking good the balance and being so tired. I sit on a shower stool I cannot stand in the shower. I use a 4 prong walker all the time now. I do drive some but very little I am scared because I cannot feel my foot so I do not know how much pressure to apply to the gas plus my reflex is not that fast so braking is a problem. I use a scooter when I go in stores I cannot push a buggy far at all. Betaseron made my hair thin it was really thick but now it seems to be getting better not coming out as much. Not that it really matters to me that is nothing compared to the way I feel everyday. I have had some bowel touble. I have lost 60 plus pounds in the last 8 months. I think alot of the weight loss is from being depressed and scared. The weight loss is a good thing I was weighing almost 300 a year ago. Now I weigh 230! I did not rest good because of my weight. But now I do ok I do not rest the best but I think that is worry not letting me rest. People do not realize what MS does to a persons mind. I am not crazy I crave to get to do what I use to do. I know what is like to feel alot of things that I no longer feel and that is one of the hardest thing to deal with. Use to I lived to eat now I just live to get up and walk and go to the bathroom. I hate to go places, I stay at home alot. I do not like to see healthy people it makes me jealous. I want to do what I use to do without needing help. I also feel that a strong supportive family and friends is important. I feel they need to educate theirselves, especially before they tell me what I need to do to get better. I am still learning about MS and trying to make it through everyday.