- burrwarren
- Sex: F
- Data Quality: 2 stars
- MS: 11 yrs
- Mentor
- Type: Relapsing-Remitting
- Relapse: Moderate
- Sensation: Moderate
- Overall: Moderate
- Cognition: moderate
- Vision: severe
- Speech: moderate
- Swallowing: mild
- Upper limb: moderate
- Walking: moderate
- burrwarren
- Female, 41 years
- Maquoketa, IA
About burrwarren
I am a mom, wife and and was Nurse with MS. I Had to stop working almost 2 years This disease has changed my entire life for good and bad. Feel as if I am starting a new life, since I have been working since the 9th grade.. I have three children, ages 13, 11, 9 the best ages. They are so fun and make managing this disese a lot easier. I try to stay positive and open to all the changes that go with with disease. MY motto is "I have MS but it does not have ME". I have found talking with others with the same disease --Helps tons!!
Tip: I used to drink lots of diet soda pop to keep the fatigue at bay and take provigil as well. I went to a dietition and new neuroogist, I stopped my soda drinking and changed to water. Also changed my provigil to ritalin instead. This has made a huge difference feel better and less pins and needle feeling. I have only been doing this for 1 week now --feel better and lost a little weight as well--cool!
Another website that has helped me to track my diet is daily plate--has helped me lose waight.
11/18/08 Labs back and all good-- neg. metals, lime, cloting issues, rheumatoid,cpk, bun cr, liver enzymes better. On last MRI showed 4 old area no active t2 areas. Tyroid levels still off--working on this.( one smallspot frontal, 2 posterior behind ventricles, no atropy and cervical and total spine free of lesions.) Done on 1.5T next Mri Next october 09--on 3t. Follow up in February --still not cleared to return to work. Said will recheck in FEB.
12/02--fell off my diet and am more sleepy and moody. Need to stay on diet and will feel better. Dr apt in one week for blood tests.
12/10 was diagnosed with Hoshiemoties disease with hypothyrodism and my thryoid levels are un and down and have caused weight loss and gain.
02/01/11 ultrasound of thyroid and found 2 nodules , larger one in on posterior side of right side and I am able to feel it at all times. I affects me when I swallow and aspirated about once a day.
Mentor
See areas of experience ▼- Managing medications
- Managing injection medications
- Managing symptoms
- Choosing a doctor or other health care provider
- Relationships, marriage, and sexuality
- Coping without a diagnosis
- Profile Activity
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