iceberg's Journal

iceberg: Sex: M; Data Quality: 3 stars; ALS: 19 yrs; Wheelchair; Bulbar: mild; Arms: moderate; Chest: mild; Legs: moderate

iceberg: Male, 63 years; Connellsville, PA

Primary Condition: ALS

First symptom: Jul 1993
Diagnosis: Oct 2001

Interests: Advocacy, Faith and 3 more ▼

iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Klor-Con
- - Started: Jun 30, 2010
  - Current Dosage: 20 mEq/L daily
- Purpose: Low potassium (hypokalemia)
iceberg updated the treatment Klor-Con Sep 05, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Advicor
- - Stopped: Apr 30, 2007
  - Reason: Side effects too severe
  - Started: Jul 10, 2006
  - Last Dosage: 1000 mg daily
- Purpose: High triglycerides
- View Latest Evaluation
iceberg updated the treatment Advicor Sep 05, 2012
- Added
  - Started: Jul 10, 2006
  - Dosage: 1000 mg daily
  - Purpose: High triglycerides and Other
  - Jul 10, 2006
- Stopped
  - Date: Apr 30, 2007
  - Reason: Side effects too severe
  - Apr 30, 2007
- Evaluated
  - View Evaluation
  - Apr 30, 2007
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Amitriptyline
- - Started: Aug 14, 2008
  - Current Dosage: 75 mg daily
- Purpose: Insomnia
iceberg updated the treatment Amitriptyline Sep 05, 2012
- Added
  - Started: Aug 14, 2008
  - Dosage: 25 mg every other week
  - Purpose: Insomnia and Other
  - Aug 14, 2008
- Changed Dosage
  - Dosage: 100 mg daily
  - Dec 12, 2008
- Changed Dosage
  - Dosage: 10 mg daily
  - Dec 12, 2008
- Changed Dosage
  - Dosage: 50 mg daily
  - Apr 10, 2010
- Changed Dosage
  - Dosage: 50 mg daily
  - Apr 10, 2010
- Changed Dosage
  - Dosage: 75 mg daily
  - Apr 01, 2011
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

Neutral
iceberg added an InstantMe for Jul 25, 2012 Jul 25, 2012 10:27PM

I stay about the same day in & day out
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
QOL
- Bad Social
- Good Mental
- Bad Physical
iceberg completed the QOL survey for Jul 25, 2012 Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

256 lb BMI: 35.7
iceberg updated his weight for Jul 25, 2012 Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 55%

iceberg completed the FVC survey for Jul 25, 2012 Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
FRS: 25
- mild Head
- moderate Arms
- mild Torso
- moderate Legs
iceberg completed the FRS survey for Jul 25, 2012 Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Anxious mood
- moderate Atrophy of hand muscles
- mild Back pain
- severe Balance problems
- mild Cold feet
- moderate Constipation
- mild Depressed mood
- severe Difficulty projecting voice
- moderate Difficulty turning over or moving in bed
- moderate Emotional lability
- mild Excessive yawning
- mild Excess saliva
- moderate Fasciculations
- mild Fatigue
- moderate Foot drop (right)
- mild High Cholesterol
- mild High triglycerides
- moderate Hyperreflexia
- mild Pain
- moderate Slurred speech
- severe Startle easily (hyperexplexia)
- moderate Stiffness/Spasticity
- severe Swollen feet
- severe Uncontrollable laughter
- severe Walking problems
- severe Weakness in hands
- severe Weakness in right hand
- severe Weakness in right index finger
- severe Weakness in right thumb
- See more
iceberg updated his symptoms for Jul 25, 2012 Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

3 stars
iceberg earned a star! Jul 25, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

258 lb BMI: 36.0
iceberg updated his weight for Jul 22, 2012 Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
QOL
- Bad Social
- Good Mental
- Bad Physical
iceberg completed the QOL survey for Jul 22, 2012 Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 55%

iceberg completed the FVC survey for Jul 22, 2012 Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
FRS: 28
- none Head
- moderate Arms
- none Torso
- moderate Legs
iceberg completed the FRS survey for Jul 22, 2012 Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

Good
iceberg added an InstantMe for Jul 22, 2012 Jul 22, 2012 9:58PM
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

Neutral
iceberg added an InstantMe for Jul 22, 2012 Jul 22, 2012 9:57PM
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Atorvastatin
- - Started: Jul 22, 2012
  - Current Dosage: 40 mg daily
- Purpose:
iceberg added the treatment Atorvastatin Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Physical Exercise
- - Started: Apr 12, 2012
  - Current Dosage: 30 min every 6 weeks
- Purpose: General health, ALS, and 2 more
iceberg updated the treatment Physical Exercise Jul 22, 2012
- Added
  - Started: Apr 12, 2012
  - Dosage: 1.5 hr weekly
  - Purpose: General health, ALS (Amyotrophic Lateral Sclerosis), Support quality of life, and Improve flexibility/strength
  - Apr 12, 2012
- Changed Dosage
  - Dosage: 30 min every 6 weeks
  - Jul 22, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Avodart
- - Started: Apr 2, 2011
  - Current Dosage: 0.5 mg daily
- Purpose: General health
iceberg updated the treatment Avodart Jul 22, 2012
- Added
  - Started: Apr 02, 2011
  - Dosage: 0.5 mg daily
  - Purpose: General health
  - Apr 02, 2011
- Changed Dosage
  - Dosage: 0.5 mg daily
  - Jun 01, 2011
Show more

About iceberg

Interests

Klor-Con

Advicor

Amitriptyline

Neutral

QOL

256 lb BMI: 35.7

FVC: 55%

FRS: 25

Symptom Update

258 lb BMI: 36.0

QOL

FVC: 55%

FRS: 28

Good

Neutral

Atorvastatin

Physical Exercise

Avodart