iceberg's Journal

iceberg: Sex: M; Data Quality: 3 stars; ALS: 19 yrs; Wheelchair; Bulbar: mild; Arms: moderate; Chest: mild; Legs: moderate

iceberg: Male, 63 years; Connellsville, PA

Primary Condition: ALS

First symptom: Jul 1993
Diagnosis: Oct 2001

Interests: Advocacy, Faith and 3 more ▼

iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 55%

iceberg completed the FVC survey for Apr 2, 2013 Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

261 lb BMI: 36.4
iceberg updated his weight for Apr 2, 2013 Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
QOL
- Bad Social
- Bad Mental
- Worst Physical
iceberg completed the QOL survey for Apr 2, 2013 Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
FRS: 21
- mild Head
- moderate Arms
- mild Torso
- moderate Legs
iceberg completed the FRS survey for Apr 2, 2013 Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- moderate Anxious mood
- severe Atrophy of hand muscles
- none Back pain
- severe Balance problems
- moderate Cold feet
- moderate Constipation
- moderate Depressed mood
- severe Difficulty projecting voice
- severe Difficulty turning over or moving in bed
- moderate Emotional lability
- moderate Excessive yawning
- moderate Excess saliva
- moderate Fasciculations
- moderate Fatigue
- severe Foot drop (right)
- mild High Cholesterol
- mild High triglycerides
- severe Hyperreflexia
- mild Low potassium (hypokalemia)
- none Pain
- severe Slurred speech
- severe Startle easily (hyperexplexia)
- severe Stiffness/Spasticity
- severe Swollen feet
- severe Uncontrollable laughter
- severe Walking problems
- moderate Weakness in hands
- moderate Weakness in right hand
- moderate Weakness in right index finger
- severe Weakness in right thumb
- See more
iceberg updated his symptoms for Apr 2, 2013 Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

3 stars
iceberg earned a star! Apr 02, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jul 1, 1993
- Diagnosis: Oct 1, 2001
iceberg updated the condition ALS (Amyotrophic Lateral Sclerosis) Apr 01, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

2 stars
iceberg lost a star Jan 16, 2013
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 59%

iceberg completed the FVC survey for Nov 18, 2012 Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 59%

iceberg completed the FVC survey for Nov 20, 2012 Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 59%

iceberg completed the FVC survey for Dec 13, 2012 Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
FRS: 20
- mild Head
- moderate Arms
- mild Torso
- moderate Legs
iceberg completed the FRS survey for Dec 13, 2012 Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Anxious mood
- severe Atrophy of hand muscles
- none Back pain
- severe Balance problems
- moderate Cold feet
- moderate Constipation
- mild Depressed mood
- severe Difficulty projecting voice
- severe Difficulty turning over or moving in bed
- moderate Emotional lability
- moderate Excessive yawning
- mild Excess saliva
- moderate Fasciculations
- mild Fatigue
- moderate Foot drop (right)
- mild High Cholesterol
- mild High triglycerides
- moderate Hyperreflexia
- mild Insomnia
- mild Low potassium (hypokalemia)
- none Pain
- moderate Slurred speech
- severe Startle easily (hyperexplexia)
- moderate Stiffness/Spasticity
- severe Swollen feet
- severe Uncontrollable laughter
- severe Walking problems
- moderate Weakness in hands
- moderate Weakness in right hand
- moderate Weakness in right index finger
- moderate Weakness in right thumb
- See more
iceberg updated his symptoms for Dec 13, 2012 Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

3 stars
iceberg earned a star! Dec 13, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

2 stars
iceberg lost a star Oct 23, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

Neutral
iceberg added an InstantMe for Oct 18, 2012 Oct 18, 2012 9:11PM

My condition has not changed much over the past 6 months
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

FVC: 51%

iceberg completed the FVC survey for Oct 18, 2012 Oct 18, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS

260 lb BMI: 36.3
iceberg updated his weight for Oct 18, 2012 Oct 18, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
FRS: 21
- mild Head
- moderate Arms
- mild Torso
- moderate Legs
iceberg completed the FRS survey for Oct 18, 2012 Oct 18, 2012
iceberg

Sex: M

Data Quality: 3 stars

Bulbar: mild

Arms: moderate

Chest: mild

Legs: moderate

I am: n

I have:
ALS
Baclofen
- - Started: Oct 28, 2001
  - Current Dosage: 30 mg daily
- Purpose: General health, Stiffness/Spasticity, and ALS
iceberg updated the treatment Baclofen Sep 05, 2012
- Added
  - Started: Oct 28, 2001
  - Dosage: 30 mg daily
  - Purpose: General health, Other, Stiffness/Spasticity, and ALS (Amyotrophic Lateral Sclerosis)
  - Oct 28, 2001
- Changed Dosage
  - Dosage: 135 mg daily
  - Dec 12, 2001
- Changed Dosage
  - Dosage: 20 mg daily
  - Dec 11, 2008
- Changed Dosage
  - Dosage: 30 mg daily
  - Apr 10, 2010
Show more

About iceberg

Interests

FVC: 55%

261 lb BMI: 36.4

QOL

FRS: 21

Symptom Update

ALS (Amyotrophic Lateral Sclerosis)

FVC: 59%

FVC: 59%

FVC: 59%

FRS: 20

Symptom Update

Neutral

FVC: 51%

260 lb BMI: 36.3

FRS: 21

Baclofen