1. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg was feeling neutral

    Just another day sitting around & wishing summer was here!

  2. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the FRS survey

    • FRS: 20
    • mild Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  3. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey

    • moderate Social
    • moderate Mental
    • severe Physical
  4. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the FRS survey

    • FRS: 18
    • moderate Head
    • moderate Arms
    • mild Torso
    • severe Legs
  5. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage: 51 %
  6. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his symptoms

    Back pain BetterBack pain, Fasciculations, Hyperreflexia, Swollen feet
    Depressed mood WorseDepressed mood, Excessive yawning, Low potassium (hypokalemia), Pain, Weakness in hands
  7. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  8. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    star earnedstar earnedstar not earned iceberg lost a star

  9. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his weight

  10. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey for

    • moderate Social
    • moderate Mental
    • severe Physical
  11. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey

    • moderate Social
    • moderate Mental
    • severe Physical
  12. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage: 52 %
  13. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the FRS survey

    • FRS: 19
    • moderate Head
    • moderate Arms
    • mild Torso
    • moderate Legs
  14. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his symptoms for

    Atrophy of hand muscles BetterAtrophy of hand muscles, Balance problems, Low potassium (hypokalemia), Slurred speech, Uncontrollable laughter, Weakness in right thumb
    Back pain WorseBack pain
  15. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg was feeling neutral

  16. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    star earnedstar earnedstar earned iceberg earned a star!

  17. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg updated his bio

    I was first told on Dec. 28, 1995, that I had ALS. Was not confirmed until October of 2001. I was a toll collector on the Pa. turnpike. I had to go on disability retirement as of Aug. 24, 2009 because of the loss of the use of my thumbs.  I have a power wheel chair to get around the house and we have a handicapped accessible van to get out any. I can still stand to transfer from my lift recliner into my wheel chair but it's becoming more difficult ever day. 

    This photo was at my wife’s birthday party last year. It is my wife (Sharon) my grandson (Jake) and me in the front row. Back row is my mother (Catherine) my oldest daughter Julianne (jakes mom) and my youngest daughter Kim. They are my life and they are my helpers too. Only with family can we survive. 

    I'm winding down some. I'm still able to stand and transfer from my lift chair to my power wheel chair but it is becoming more difficult now. I still eat all foods but I need help cutting some foods. I still try to get out as much as possible. Some days are easier than others. Last night (Tuesday April 23) I went to the Elks Club for wings, and a few beers and was surprised by 2 people I used to work with prior to 1992. It was a good time. I do what I can do to lead a normal life. 

  18. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    star earnedstar earnedstar not earned iceberg lost a star

  19. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg completed the QOL survey for

  20. 102 thumb
    iceberg
    Sex: M
    Data Quality: 2 stars
    Bulbar: mild
    Arms: moderate
    Chest: mild
    Legs: moderate
    I am: n
    I have:
    ALS

    iceberg added a new Forced Vital Capacity Percentage value

    • Forced Vital Capacity Percentage: 52 %
  21. Show more