- iceberg
- Sex: M
- Data Quality: 3 stars
- ALS: 18 yrs
- Bulbar: none
- Arms: moderate
- Chest: mild
- Legs: moderate
- iceberg
- Male, 62 years
- Connellsville, PA
- Primary Condition
- ALS
- First symptom
- Jul 1993
- Diagnosis
- Oct 2001
About iceberg
I was first told on Dec. 28, 1995, that I had ALS. Was not confirmed until 2001. I was a toll collector on the Pa. turnpike. I had to go on disablity retirement as of Aug. 24, 2009 because of the loss of the use of my thumbs. Still walk with a walker, and do for myself. This photo was at my wife’s birthday party last year. It is my wife (Sharon) my grandson (Jake) and me in the front row. Back row is my mother (Catherine) my oldest daughter Julianne (jakes mom) and my youngest daughter Kim. They are my life and they are my helpers too. Only with family can we survive.
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More About iceberg
I still go shopping with the wife and grandson. Wish I could do more. In Dec. of 2004 I had an ITBP pump implanted at the Cleveland Clinic; it pumps the baclofen directly into my spine. I am no longer sleepy all the time now.
I was an avid runner until Sept. of 1995, competing in many local races. I completed the Pittsburgh, Pa. 1990 Marathon all 26 mile 285 yards in 4 hours and 4 minutes. Loved to plant a garden and most of all loved to deer hunt with my friends.
I live one day at a time and enjoy each day as it could be my last.
My meds listed below:
SIMVASTATIN 80 MG 1 TABLET DAILY
TRICOR 145 MG 1 TABLET DAILY
PROVIGIL 200 MG 2 TABLET DAILY
QUINIDINE 10MG/DEXTROMETH 30MG (1) 2 TIMES DAILY
RILUTEK 50 MG (1) 2 TIMES DAILY
AMITRIPTYLIN 25 MG 2 TABLETAT BEDTIME DAILY
SELENIUM 200 MG, 1 TABLET DAILY
VITAMIN E 400 I.U., 1 DAILY
VITAMIN C 500 MG 1 TABLET DAILY
B-12 2000 MCG 1 DAILY
MULTIVITAMIN 1 DAILY
Alpha Lipoic Acid 200 mgs daily
ZANAFLEX 4 MG 1 – 4 PM, 2 BEDTIME DAILY
BACLOFEN PUMP
BACLOFEN 10 MG’S 3 TIMES DAILY
KLOR-CON 20 ER 10 MEQ
FUROSEMIDE 80 MG.