Nightingale3
Nightingale3
Sex: F
Data Quality: 1 star
MS: 12 yrs
Type: Relapsing-Remitting
Sensation: Moderate
Overall: Moderate
Cognition: moderate
Vision: mild
Speech: moderate
Swallowing: mild
Upper limb: moderate
Walking: moderate
Nightingale3
Female, 57 years
Minot, ND
Primary Condition
MS and 1 more ▼
Type
Relapsing-Remitting
First symptom
Jun 1999
Diagnosis
Jun 1999

About Nightingale3

I woke up one morning and my whole left side was numb. I already had a brother & sister with MS, so I was pretty sure what it was. I called a neurologist who knew my siblings, he ordered an MRI & confirmed what I suspected-MS. I was an operating room RN, at the time. I left my career 2 years ago, after 12 years, the last 3 doing open heart surgery. I loved my career, but the work was just too intense and exhausting for me anymore. I saw a lot in those years, enough to know that things could be so much worse, I have no time for self pity. I am grateful for the love of family and friends

Profile Activity
4056 Views
Member since: Jan 05, 2009 Last Login Sep 22, 2010

Other Conditions

  1. Fibromyalgia
    First symptom
    ?
    Diagnosis
    ?

More About Nightingale3

THIS IS A PICTURE OF MY HUSBAND AND ME ON OUR HONEYMOON.  WE MARRIED IN SEPT. 2007, THEN WENT ON AN EAST CARIBBEAN CRUISE-FABULOUS!!! Laughing I HAVE 2 BEAUTIFUL GRANDSONS, AGE 9 & 3.   LOVE, LOVE, LOVE BEING A GRANDMOTHER.  I HAVE A VERY DEVOTED HUSBAND, WHO IS ALSO A WONDERFUL GRANDPA TO MY LITTLE GUYS.  I HAVE SO MANY THINGS TO BE GRATEFUL FOR.  I CAN ACCEPT THE MS AND NOT LET IT CONTROL MY LIFE, BUT IT IS DIFFICULT TO WATCH MY BROTHER AND SISTER DECLINE.  THEY ARE BOTH VERY ILL, HAVE HAD THE DISEASE A LOT LONGER THAN ME.  THERE WASN'T MUCH OUT THERE FOR TREATMENT FOR THEM WHEN THEY WERE DIAGNOSED.   I'VE BEEN COMMITTED TO TRYING TO DO MY PART, TO HELP FIND EITHER BETTER TREATMENT, OR EVEN A CURE.  I HAVE BEEN A RESEARCH SUBJECT FOR A T-CELL VACCINE THAT IS BEING DEVELOPED IN HOUSTON, TEXAS.  I HAVE SPENT THE LAST 4 YEARS TRAVELING THERE (ABOUT 1500 MILES FROM HOME), AND ABOUT 1/2 OF MY 401K ON EXPENSES, BUT IT SHOWS PROMISE.  I AM ALSO VERY EXCITED ABOUT THE PROSPECTS OF STEM CELL THERAPY FOR MS.  I REALLY BELIEVE THAT THERE WILL BE SOME VERY SIGNIFICANT PROGRESS IN TREATMENT IN THE NEAR FUTURE.  SADLY, THOUGH, I DON'T THINK IT WILL BE IN TIME FOR MY SIBLINGS.  I HAVE TO LOOK TO THE FUTURE,, AND HOPE THAT IT WILL MEAN THAT FUTURE GENERATIONS WON'T HAVE TO SUFFER WITH MS, AT LEAST NOT TO THE EXTENT THAT WE DO TODAY.