I examined my situation from a professional vantage as well as that of a patient. I knew the mental health part was going to be the most crucial for me. I began my attempt to fulfill the adage "Doctor, heal thyself!" I have since continued to apply as much of my mental health training as possible to my situation with the aim of facilitating my adaptation to the world of an ALS patient. Drawing from both experiential and professional knowledge, I've formulated a comfortable, religious and spiritual, positivistic, worldview for myself.
I look for the positive and not the negative. I focus on my strengths and what it is I can do––and how to do it––rather than on what I can't do, my ever-growing motor-neuronal losses, or my pending demise. I allow myself only limited, and as infrequent as possible, opportunities for wallowing in my own pity, but I have to admit, I still occasionally do.
I'm learning how to write better. As I'm still able to type, limitedly, I work daily on my computer desk and use the Internet as my library. I work daily at maintaining a positive, hopeful attitude. I still have many hopes and dreams and believe it's important for everyone to have dreams and faith in them. Since my diagnosis, I have written three short stories and a novel. I'm not published in fiction yet; but, I have hope that someday my voice will be heard, but even if my work never gets published, I've found that the act of writing is nourishing and adds meaning to my life––in other words, I find it therapeutic to be a writer. I started by first reading Steven King's only nonfiction book "On Writing." It gave me a jumpstart.
I believe others with and without ALS can benefit from writing as much as I have. I'm working also on my family's website.
I would like to recommend Anne Lamott's (2005) NY Times Bestseller "Plan B: Further Thoughts on Faith." I found it delightful and spiritually uplifting.
ALS has been a blessing in many ways as it has afforded me the opportunity to do things I never dreamed of doing, and it has strengthened me spiritually, transforming me into a better person.
