1. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:
  2. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated the condition Urge Incontinence

    • First symptom: ?
    • Diagnosis: ?
  3. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her bio

    I live with my husband/carer in Cambridge, UK I am registered disabled and the 'Blue Disc' parking scheme has helped me enormously as I now manage to do far more things that were, previously, very awkward.

    My professional profile is at http://www.jayne-crean.com/

    Although I steadily experienced symptoms that were later diagnosed as MS, my initial, severe, flares were in early 2001 and futher tests established that this was MS.

    My ability to work rapidly deteriorated through the year until I was forced to resign from 85% of the positions I previously held.

    Through 2002 to 2004, I walked 11km to the gym and back three times a week which helped to defer the physical restrictions of MS; my physiotherapist, at that time, worked with recovering stroke victims at a local hospital which was en route to the gym and we discovered how similar the effects of a damaged brain are... and aren't!

    I also studied a Creative Writing course which helped to overcome the mental restrictions and this gave me some new interests like Metaphysical Poetry!In 2004, I moved to Cambridge and met the man who is now my husband and, very willing, carer.

    I studied an Eng. Lit. course and still write contemporary fiction when I can.

    I used to play baroque recorder, piano, synthesisers and guitar but, sadly, I now go through the the motions as I was scaring the cats and the neighbours to much!

    I have three daughters who have left home and, in January, 2008 I became a grandmother now to a grandson and a granddaughter

     

     

  4. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms

    Difficulty doing chores BetterDifficulty doing chores, exercise, Increased shopping, Lack of flexibility, Muscle weakness in arms See more
    Excessive daytime sleepiness (somnolence) WorseExcessive daytime sleepiness (somnolence)
    severe SevereAtaxia (lack of coordination)
  5. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Edema (fluid retention) BetterEdema (fluid retention), exercise
    Excessive daytime sleepiness (somnolence) WorseExcessive daytime sleepiness (somnolence), Feel very relaxed, Stiffness/Spasticity, Word fishing

    Life gets better emoticon smile

  6. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS
  7. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS
  8. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Emotional lability BetterEmotional lability, Mood swings
    Feel very relaxed WorseFeel very relaxed, Increased shopping, Lack of flexibility, Relaxation, Stiffness/Spasticity
  9. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Emotional lability BetterEmotional lability, Excessive daytime sleepiness (somnolence), Feel very relaxed, Stiffness/Spasticity
    exercise Worseexercise, Increased shopping, Mood swings
  10. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Excessive daytime sleepiness (somnolence) BetterExcessive daytime sleepiness (somnolence), Lack of flexibility
    Emotional lability WorseEmotional lability, Feel very relaxed, Light sensitivity (photophobia)
  11. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    exercise Betterexercise, Feel very relaxed, Increased shopping, Light sensitivity (photophobia), Mood swings
    Excessive daytime sleepiness (somnolence) WorseExcessive daytime sleepiness (somnolence), Lack of flexibility, Muscle weakness in arms, Speech of others sounds garbled, Stiffness/Spasticity, Word fishing
  12. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Bladder infection BetterBladder infection, Edema (fluid retention), Emotional lability, Speech of others sounds garbled, Word fishing
    exercise Worseexercise, Feel very relaxed, Increased shopping, Mood swings, Relaxation
  13. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Bladder infection BetterBladder infection, Excessive daytime sleepiness (somnolence), Feel very relaxed, Increased shopping, Relaxation, Stiffness/Spasticity
  14. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Feel very relaxed BetterFeel very relaxed, Heat and cold exacerbate symptoms, Heat intolerance
    Excessive daytime sleepiness (somnolence) WorseExcessive daytime sleepiness (somnolence), Insomnia, Balance problems, Muscle weakness in arms, Stiffness/Spasticity See more
  15. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Excessive daytime sleepiness (somnolence) BetterExcessive daytime sleepiness (somnolence), Balance problems, Depressed mood, Muscle weakness in arms, Brain fog See more
    Increased shopping WorseIncreased shopping, Stiffness/Spasticity, Feel very relaxed, Heat and cold exacerbate symptoms, exercise See more
  16. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Increased shopping BetterIncreased shopping, Feel very relaxed, Heat and cold exacerbate symptoms, exercise, Relaxation, Bowel problems
    Depressed mood WorseDepressed mood, Muscle weakness in arms, Brain fog, Pain, Fatigue See more
  17. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Fatigue BetterFatigue, Word fishing, Speech of others sounds garbled
    Depressed mood WorseDepressed mood, Stiffness/Spasticity, Numbness and Tingling with Pins and Needles, Emotional lability, Anxious mood See more
    severe SevereWalking problems, Difficulty doing chores
    moderate ModerateIncreased shopping, exercise, Relaxation
    mild MildMuscle weakness in arms, Feel very relaxed, Lack of flexibility
  18. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Brain fog BetterBrain fog
    Excessive daytime sleepiness (somnolence) WorseExcessive daytime sleepiness (somnolence), exercise, Fatigue, Feel very relaxed
  19. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    exercise Betterexercise, Fatigue, Feel very relaxed, Insomnia
    Emotional lability WorseEmotional lability, Increased shopping, Speech of others sounds garbled, Word fishing
  20. 7883 thumb
    Sapphyr
    Sex: F
    Data Quality: 3 stars
    Sensation: Mild
    Overall: Moderate
    Cognition: severe
    Vision: severe
    Speech: moderate
    Swallowing: mild
    Upper limb: moderate
    Walking: severe
    I am: b
    I have:
    MS

    Sapphyr updated her symptoms for

    Anxious mood BetterAnxious mood, Emotional lability, Excessive daytime sleepiness (somnolence), exercise, Insomnia See more
  21. Show more