PatientsLikeMe ™

I work in a laboratory and adore sleeping so much that I've been spending the majority of my time doing only those two things. When awake and off of work I do art work, knit..(when my hands allow it), and watch HBO. Once a year I plant an impossible garden that I cannot possibly take care afterwards. I have dogs that I adore more than the majority of people, and I'm married to an adorable nerd. When I'm not in too much pain, I'm kind of funny and interesting. Unfortunately..that leaves me with around one day a month to make any kind of good impression. This has been going on for roughly three or four years now. It started in the fall, I remember, flu-like symptoms. By the winter it had gotten much worse. I was convinced it was lyme disease at the time. I had been an avid hiker and could rememeber several occasions where we had pulled ticks off. I had even had a funny rash on my side at the beginning that I didn't connect with feeling ill until later. All my labs were negative for lyme. I went through a series of doctors who were of little help. I settled down with the team I'm still with now, and was given the fibro diagnosis in the summer. I have a yet undiagnosed autoimmune condition to go along with the fibro. That part is the most frustrating, as it was with fibro as well. I struggle daily with "not knowing" syndrome. I do have some proof that its there, I have had some unusual lab work come up positive regularly. There is proof. Yet no answer. I know my body well. I know there is something else going on. My life has turned into these cycles of waiting for an answer, and then fighting for an answer..then waiting then fighting. I don't know that I'll feel better when I get my answer, but at least I'll know where to start.