ukiwi's Journal

ukiwi: Sex: M; Data Quality: 3 stars; MS: 5 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: moderate; Speech: mild; Swallowing: mild; Upper limb: mild; Walking: moderate

ukiwi: Male, 54 years; Auckland, Waitakere

Primary Condition: MS
Type: Relapsing-Remitting
First symptom: Jul 2006
Diagnosis: Aug 2008

InstantMe

Bad
ukiwi added an InstantMe for Apr 9, 2012 • Apr 09, 2012 1:55AM

tired, liight headed and an itchy foot. Buzzy legs

What's making you feel bad?
MSRS

46
- Moderate Cognition
- Mild Vision
- None Speech
- None Swallowing
- None Upper Limb
- Mild Walking
- Moderate Sensation
ukiwi completed the MSRS survey for Apr 9, 2012 • Apr 09, 2012
What sort of things are making your MS symptoms worse?
Updated outcome

QOL
- Bad Social
- Bad Mental
- Good Physical
ukiwi completed the QOL survey for Apr 9, 2012 • Apr 09, 2012
Your Quality of Life is improving! What sort of things are making it better?
Weight

154 lb

BMI

21.5
ukiwi updated hisyour weight for Apr 9, 2012 • Apr 09, 2012
Is there anything in particular that influenced this weight increase?
New evaluation

Tegretol Treatment Evaluation
- Efficacy for Restless feeling in legs: Slight
- Side Effects: None
- Adherence: Always
- Burden: Not at all
ukiwi added a treatment evaluation for Tegretol from Nov 15, 2011 • Apr 09, 2012
Stopped treatment

Tegretol
- Stopped: Nov 15, 2011
- Reason: Side effects too severe
ukiwi stopped taking the treatment Tegretol • Apr 09, 2012
What else would you like to share about stopping this treatment?
Added

Symptom Update
- severe Itching (pruritus)
- none possible diarhea ?
- moderate Insomnia
- mild Eye floaters
- mild Vertigo
- moderate Numbness and Tingling with Pins and Needles
- none Cramps in calf muscles
- mild Blurry vision
- moderate Weakness in legs
- none Temperature dysregulation
- none Brain lesions
- none Burning sensation
- moderate Brain fog
- mild Restless feeling in legs
- moderate Cold feet
- moderate Buzzing vibration sensation
- none Trigeminal neuralgia (trigeminal nerve pain)
- none Burning sensation in soles of feet
- mild Anxious mood
- none Muscle twitching (fasciculations)
- none Foggy vision on right side of right eye
- moderate Excessive daytime sleepiness (somnolence)
- moderate Emotional lability
- none Mood swings
- moderate Fatigue
- moderate Eye pain
- none Sexual dysfunction
- moderate Pain
- mild Cognitive Confusion
- none Stiffness/Spasticity
- moderate Buzzing sensation in legs
- none Bowel problems
- none Urinary urgency
- none MS hug (tight chest or torso)
- none Depressed mood
- severe Bladder problems
- See more
ukiwi updated hisyour symptoms for Apr 9, 2012 • Apr 09, 2012
What else would you like to share about these symptoms?
Added treatment

Tegretol
- Started: Sep 6, 2011
- Dosage: 100 mg daily
- Purpose: Restless feeling in legs
ukiwi added the treatment Tegretol • Apr 09, 2012
What else would you like to share about this treatment?
Added treatment

Amantadine
- Started: Mar 27, 2012
- Dosage: 100 mg daily
- Purpose: Fatigue
ukiwi added the treatment Amantadine • Apr 09, 2012
What else would you like to share about this treatment?
Added treatment

Amantadine
- Started: Mar 27, 2012
- Dosage: 100 mg daily
- Purpose: Fatigue
ukiwi added the treatment Amantadine • Apr 09, 2012
What else would you like to share about this treatment?
Added treatment

Solifenacin
- Started: Mar 27, 2012
- Dosage: 5 mg daily
- Purpose: Bladder problems
ukiwi added the treatment Solifenacin • Apr 09, 2012
What else would you like to share about this treatment?
Added treatment

Solifenacin
- Started: Mar 27, 2012
- Dosage: 5 mg daily
- Purpose: Bladder problems
ukiwi added the treatment Solifenacin • Apr 09, 2012
What else would you like to share about this treatment?
3 stars
ukiwi earned a star! • Apr 09, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
ukiwi lost a star • Feb 12, 2012
Nice work! One more star and you get a PLM t-shirt!
Added

Symptom Update
- moderate possible diarhea ?
- mild Insomnia
- mild Eye floaters
- none Vertigo
- severe Numbness and Tingling with Pins and Needles
- moderate Cramps in calf muscles
- moderate Blurry vision
- mild Weakness in legs
- mild Temperature dysregulation
- none Brain lesions
- mild Burning sensation
- mild Brain fog
- moderate Restless feeling in legs
- none Cold feet
- mild Buzzing vibration sensation
- none Trigeminal neuralgia (trigeminal nerve pain)
- mild Burning sensation in soles of feet
- mild Anxious mood
- none Muscle twitching (fasciculations)
- mild Foggy vision on right side of right eye
- mild Excessive daytime sleepiness (somnolence)
- moderate Emotional lability
- mild Mood swings
- moderate Fatigue
- mild Eye pain
- mild Sexual dysfunction
- moderate Pain
- mild Cognitive Confusion
- moderate Stiffness/Spasticity
- none Lhermitte's Sign
- moderate Buzzing sensation in legs
- moderate Bowel problems
- moderate Urinary urgency
- none MS hug (tight chest or torso)
- moderate Depressed mood
- moderate Bladder problems
- See more
ukiwi updated hisyour symptoms for Jan 26, 2012 • Jan 26, 2012
What else would you like to share about these symptoms?
3 stars
ukiwi earned a star! • Jan 26, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
ukiwi lost a star • Dec 04, 2011
Nice work! One more star and you get a PLM t-shirt!
Updated outcome

QOL
- Bad Social
- Bad Mental
- Good Physical
ukiwi completed the QOL survey for Nov 14, 2011 • Nov 14, 2011
What sort of things are negatively affecting your Quality of Life?
MSRS

42
- Moderate Cognition
- Mild Vision
- None Speech
- None Swallowing
- None Upper Limb
- None Walking
- Moderate Sensation
ukiwi completed the MSRS survey for Nov 14, 2011 • Nov 14, 2011
What sort of things are making your MS symptoms worse?
Weight

150 lb

BMI

20.9
ukiwi updated hisyour weight for Nov 14, 2011 • Nov 14, 2011
Is there anything in particular that influenced this weight decrease?
Show more

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About ukiwi