Portrait_default
crokay
Sex: M
Data Quality: 1 star
ALS: 14 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: severe
Chest: moderate
Legs: severe
crokay
Male, 85 years
Gulf Stream, FL
Primary Condition
ALS
First symptom
Diagnosis
See more
  1. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
    updated the condition ALS (Amyotrophic Lateral Sclerosis) Dec 20, 2012
  2. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    QOL

    • Good Social
    • Good Mental
    • Worst Physical
    completed the QOL survey for Jan 29, 2012 Jan 29, 2012
  3. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Provigil Treatment Evaluation

    • Perceived effectiveness for Fatigue: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Advice & Tips
    Provigil is the most successful treatment I have had. It overcomes fatigue enough to make my days enjoyable, using the computer(Dasher) and having the attentionspan to read and engage in other intellectual pursuits.
    Cost
    $100-199 monthly
    added a treatment evaluation for Provigil Jan 29, 2012
  4. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    FRS: 6

    • severe Head
    • severe Arms
    • moderate Torso
    • severe Legs
    completed the FRS survey for Jan 29, 2012 Jan 29, 2012
  5. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Basic Information

    updated his basic information Jan 29, 2012
  6. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS
    star earnedstar notearnedstar notearned 1 star
    earned a star! Jan 29, 2012
  7. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Provigil Treatment Evaluation

    • Perceived effectiveness for Fatigue: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Advice & Tips
    I think it helps a great deal.
    Cost
    $200+ monthly
    added a treatment evaluation for Provigil Nov 23, 2011
  8. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    Riluzole

      • Started: ?
      • Dosage: ?
    • Purpose: ALS
    added the treatment Riluzole Nov 23, 2011