1. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  2. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay completed the QOL survey

  3. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay added a treatment evaluation for Provigil

    • Perceived effectiveness for Fatigue: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 100 mg Daily
    • Advice & Tips: Provigil is the most successful treatment I have had. It overcomes fatigue enough to make my days enjoyable, using the computer(Dasher) and having the attentionspan to read and engage in other intellectual pursuits.
    • Cost: $100-199 monthly
    Provigil is the most successful treatment I have had. It overcomes fatigue enough to make my days enjoyable, using the computer(Dasher) and having the attentionspan to read and engage in other intellectual pursuits.
  4. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay completed the FRS survey

    • FRS: 6
    • severe Head
    • severe Arms
    • moderate Torso
    • severe Legs
  5. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay updated his basic information

  6. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay earned a star! star earnedstar not earnedstar not earned

  7. Portrait default thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay added a treatment evaluation for Provigil

    • Perceived effectiveness for Fatigue: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 100 mg Daily
    • Advice & Tips: I think it helps a great deal.
    • Cost: $200+ monthly
    I think it helps a great deal.