1. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay updated the condition ALS (Amyotrophic Lateral Sclerosis)

    • First symptom:
    • Diagnosis:
  2. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay completed the QOL survey

  3. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay added a treatment evaluation for Provigil

    • Perceived effectiveness for Fatigue: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 100 mg Daily
    • Advice & Tips: Provigil is the most successful treatment I have had. It overcomes fatigue enough to make my days enjoyable, using the computer(Dasher) and having the attentionspan to read and engage in other intellectual pursuits.
    • Cost: $100-199 monthly
  4. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay completed the FRS survey

    • FRS: 6
    • severe Head
    • severe Arms
    • moderate Torso
    • severe Legs
  5. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay updated his basic information

  6. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    star earnedstar not earnedstar not earned crokay earned a star!

  7. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay added a treatment evaluation for Provigil

    • Perceived effectiveness for Fatigue: Major
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 100 mg Daily
    • Advice & Tips: I think it helps a great deal.
    • Cost: $200+ monthly
  8. Portrait_default_thumb
    crokay
    Sex: M
    Data Quality: 1 star
    Bulbar: severe
    Arms: severe
    Chest: moderate
    Legs: severe
    I have:
    ALS

    crokay added the treatment Riluzole

    • Started: ?
    • Purpose: ALS