1. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling good

    Just relaxing. Having Copaxone reactions ....

  2. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl added a treatment evaluation for Copaxone

    • Perceived effectiveness for Multiple Sclerosis: Can’t tell
    • Side Effects: Severe
    • Adherence: Usually
    • Burden: Very
    • Dosage: 20 mg Daily
    • Advice & Tips: This round of Copaxone has not been good for me. I have now developed large, itchy welts that are still present over 5 days later with no sign of going away. I am concerned about cellulitis and my risk for that. This drug is not worth the hassle for me.
    • Cost: < $25 monthly
    This round of Copaxone has not been good for me. I have now developed large, itchy welts that are still present over 5 days later with no sign of going away. I am concerned about cellulitis and my risk for that. This drug is not worth the hassle for me.
  3. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl stopped taking Copaxone

    ReasonsSide effects too severe
  4. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl added a treatment evaluation for Copaxone

    • Perceived effectiveness for Multiple Sclerosis: Can’t tell
    • Side Effects: Moderate
    • Adherence: Usually
    • Burden: Somewhat
    • Dosage: 20 mg Daily
    • Advice & Tips: I have started Copaxone again and am now getting large, itchy welts (like a large mosquito bite that have lasted almost 48 hours). Feels more like an allergic reaction of some type????
    • Cost: < $25 monthly
    I have started Copaxone again and am now getting large, itchy welts (like a large mosquito bite that have lasted almost 48 hours). Feels more like an allergic reaction of some type????
  5. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl shared details about Rigid contact lenses

    Stopped
  6. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl shared details about Copaxone

  7. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling neutral

    Tired, feel like I have a cold or something.

  8. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 57
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Mild disability but not requiring help from others Speech
    • Mild disability but not requiring help from others Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Mild disability but not requiring help from others Walking
    • Moderate disability that requires some help from others Sensation
  9. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 50
    • Mild disability but not requiring help from others Cognition
    • Mild disability but not requiring help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Mild disability but not requiring help from others Upper limb
    • Moderate disability that requires some help from others Walking
    • Moderate disability that requires some help from others Sensation

    Leg spasms, left side ... leg weakness, fatigue.

  10. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her profile picture

  11. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her bio

    I am a retired woman with a SPMS, Fibromyalgia, Endometriosis, Keratoconus and Hashimoto's Thyroiditis. I worked with GE Global Research in IT. I'm a classic computer geek. I love music, doing adaptive sports (Air Rifle) with my Team Albany Adaptive Sports team (Disabled Veterans) and playing on my computer. I have recently done something I always wanted to do - go through EMT school and become a volunteer EMT. I work short little shifts around my health. It's great to help others out.

    I'm a doer, a go-getter and Type A to a fault. I loved my career in IT and enjoyed climbing the corporate ladder. I thrived on the stress. I love learning.

    I got my real estate license in Florida and that has been fun.  I am finding it challenging though (as my health declines a bit) but will do my best with it.

    I live my life with my wife Cecilia who is the love of my life and supports me in everything I do and choose to do. I couldn't ask for anything more.

  12. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition Multiple Sclerosis

    • First symptom:
    • Diagnosis:

    Just spent a week at a VA SCI clinic in Tampa. They were awesome. They confirmed I have SPMS (after years of RRMS). I never really have exacerbations any more just more nagging stuff that just gets a little worse over time.

  13. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her symptoms

    Dizziness (vertigo) BetterDizziness (vertigo), Dry eyes, Flank pain, Joint pain in legs, Kidney pain left See more
    Agitation with restlessness WorseAgitation with restlessness, Balance problems, Bowel problems, Cough, Depressed mood See more
  14. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her basic information

  15. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl earned a star! star earnedstar earnedstar earned

  16. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition Osteopenia

    • First symptom: ?
    • Diagnosis:

    Most recent DXA scan - bone density - shows Osteopenia. Going to try to treat with calcium, diet and weight bearing exercise.

  17. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated the condition Asthma

    • First symptom:
    • Diagnosis:
  18. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl was feeling good

    I have a very good medical team now with more answers and all the help that I need.

  19. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl updated her weight

  20. 7484 thumb
    gkygrl
    Sex: F
    Data Quality: 3 stars
    Relapse: Moderate
    Sensation: Moderate
    Overall: Moderate
    Cognition: moderate
    Vision: moderate
    Speech: moderate
    Swallowing: moderate
    Upper limb: moderate
    Walking: moderate
    I am: g
    I have:
    MS

    gkygrl completed the MSRS survey

    • MSRS: 42
    • Mild disability but not requiring help from others Cognition
    • Moderate disability that requires some help from others Vision
    • Aware of symptoms but no functional disability Speech
    • Aware of symptoms but no functional disability Swallowing
    • Aware of symptoms but no functional disability Upper limb
    • Mild disability but not requiring help from others Walking
    • Mild disability but not requiring help from others Sensation
  21. Show more