PatientsLikeMe ™

That is us @ Atlantic Beach, NY a long time ago (really).

My wife and I grew up in Forest Hills, N.Y.. Our parents were friends.We went our separate ways and found each other again. We have 5children between us and 8 grandchildren in our extended family. We get to California more often than to Minnesota to visit.We had a German Short Haired Pointer who is now deceased. A character and a comfort. A great companion. As one of our children says, "She is the Lucille Ball of the dog world"I lived in Minnesota for 12 years where I was a partner in a drilling equipment business. This took us to most areas of the United States, Mexico, South America and some visits to France, England  and Holland.

I was told by my wife's brother (my brother-in-law) Dr. Paul Greengard (Nobel Laureate in Medicine-2000) that Dr. Caronna was the best(my first neurologist at Cornell-Weil-)---We could not agree more. A warm and wonderful humanbeing. A leader in his field. NOW RETIRED>

That brings me back to Paul Greengard---a dedicated research scientist, presently working on projects that are so important to the future treatments and causes of PD and Alzhiemer's at his lab in Rockefeller University

We hadn't talked publicly about my condition, just a few friends knew. We have finally seen the light to share this journey with whomever wants to listen.I hope to listen and learn from others. I hope to contribute to a better time for others.

With the guidance of my brothrt-in-law I have recently changed doctors. My new MDS is Dr. Claire Henchcliffe, M.D.. She heads up the Parkinson's and Movement Disorder unit at Cornell-Weil,New York Hospital. Dr. Henchcliffe spends half of her time tending to patients (like me) and half in active research programs. A most fortunate move for me and another warm and caring professional. Some of the work is most impressive, leaving me with admiration and hope for better days ahead.

And better days ahead have arrived, I am now a patient at P.A.D.R.E.C.C part of the V A in Philadelphia. My doctor there is Jayne R. Wilkinson, M.D. plus a comprehensive program staffed by other doctors from the University of Pennsylvania. A most remarkable program offering patient care, research on the cutting edge and education about our companion PD.      Now that I have arrived here, I feel the fight has just begun. With the guidance and help of P.A.D.R.E.C.C team I hope to stay as a slow progressing PWP and arrest some of my dibilitating symptoms. How lucky can you get.

When my wife was diagnosed with cancer, i offered to change places with her. She was facing a gruelling and unwanted  treatment schedule. QUICK TO REFUSE THE OFFER, SHE CAN BE CURED, ME WITH PD--I CAN'T GIVE IT AWAY, NOR WOULD I WISH IT ON ANYBODY.