ALS Public Registry
radio stress
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- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 21, 2013 May 21, 2013Symptom Update
- severe Repetitive behavior
- mild Impaired communication skills
- none Anxious mood
- none Constipation
- none Depressed mood
- none Emotional lability
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 20, 2013 May 21, 2013Symptom Update
- severe Insomnia
- severe Repetitive behavior
- mild Impaired communication skills
- mild Pain
- none Memory problems
- none Increased secretions
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 19, 2013 May 19, 2013Symptom Update
- none Headaches
- severe Repetitive behavior
- none Seizures
- none Excess saliva
- none Depressed mood
- none Constipation
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 18, 2013 May 19, 2013Symptom Update
- severe Insomnia
- none Excessive yawning
- none Memory problems
- none Problems concentrating
- none Emotional lability
- none Constipation
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 11, 2013 May 16, 2013Symptom Update
- mild Lack of social skills
- none Emotional lability
- mild Impaired communication skills
- none Anxious mood
- severe Insomnia
- severe Excessive daytime sleepiness (somnolence)
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 15, 2013 May 16, 2013Symptom Update
- none Constipation
- none Emotional lability
- mild Excessive daytime sleepiness (somnolence)
- none Increased secretions
- none Memory problems
- mild Pain
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 14, 2013 May 16, 2013Symptom Update
- none Anxious mood
- none Constipation
- none Fatigue
- none Increased secretions
- none Memory problems
- mild Pain
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated the treatment TOBI May 12, 2013TOBI
- Started: Jan 1, 2010
- Current Dosage: 10 mL daily
- Purpose: Increased secretions
- View Latest Evaluation
-
Added
- Started: Jan 01, 2010
- Dosage: 10 mL daily
- Purpose: Increased secretions
- Jan 01, 2010
-
Stopped
- Date: Jan 28, 2010
- Reason: Course of treatment ended
- Jan 28, 2010
-
Restarted
- Dosage: 10 mL daily
- Feb 15, 2010
-
Stopped
- Date: Feb 20, 2010
- Reason: Course of treatment ended
- Feb 20, 2010
-
Restarted
- Dosage: 10 mL daily
- Mar 01, 2010
-
Stopped
- Date: Mar 29, 2010
- Reason: Course of treatment ended
- Mar 29, 2010
-
Restarted
- Dosage: 10 mL daily
- May 01, 2010
-
Stopped
- Date: May 28, 2010
- Reason: Course of treatment ended
- May 28, 2010
-
Restarted
- Dosage: 10 mL daily
- Jul 01, 2010
-
Stopped
- Date: Jul 28, 2010
- Reason: Course of treatment ended
- Jul 28, 2010
-
Restarted
- Dosage: 10 mL daily
- Sep 01, 2010
-
Stopped
- Date: Sep 25, 2010
- Reason: Course of treatment ended
- Sep 25, 2010
-
Restarted
- Dosage: 10 mL daily
- Nov 01, 2010
-
Stopped
- Date: Nov 28, 2010
- Reason: Course of treatment ended
- Nov 28, 2010
-
Restarted
- Dosage: 10 mL daily
- Jan 01, 2011
-
Stopped
- Date: Jan 28, 2011
- Reason: Course of treatment ended
- Jan 28, 2011
-
Evaluated
- View Evaluation
- Jan 28, 2011
-
Restarted
- Dosage: 10 mL daily
- Mar 01, 2011
-
Evaluated
- View Evaluation
- Mar 28, 2011
-
Stopped
- Date: Mar 28, 2011
- Reason: Course of treatment ended
- Mar 28, 2011
-
Restarted
- Dosage: 10 mL daily
- May 01, 2011
-
Stopped
- Date: May 26, 2011
- Reason: Did not seem to work and Side effects too severe
- May 26, 2011
-
Evaluated
- View Evaluation
- May 26, 2011
-
Restarted
- Dosage: 10 mL daily
- Jul 01, 2011
-
Evaluated
- View Evaluation
- Jul 28, 2011
-
Stopped
- Date: Jul 28, 2011
- Reason: Course of treatment ended
- Jul 28, 2011
-
Restarted
- Dosage: 10 mL daily
- Sep 01, 2011
-
Evaluated
- View Evaluation
- Oct 01, 2011
-
Stopped
- Date: Oct 01, 2011
- Reason: Course of treatment ended
- Oct 01, 2011
-
Restarted
- Dosage: 5 mL daily
- Nov 01, 2011
-
Changed Dosage
- Dosage: 10 mL daily
- Nov 10, 2011
-
Stopped
- Date: Nov 28, 2011
- Reason: Course of treatment ended
- Nov 28, 2011
-
Evaluated
- View Evaluation
- Nov 28, 2011
-
Restarted
- Dosage: 10 mL daily
- Jan 01, 2012
-
Changed Dosage
- Dosage: 10 mL daily
- Mar 01, 2012
-
Stopped
- Date: Mar 28, 2012
- Reason: Course of treatment ended
- Mar 28, 2012
-
Evaluated
- View Evaluation
- Mar 28, 2012
-
Restarted
- Dosage: 10 mL daily
- May 13, 2012
-
Stopped
- Date: May 22, 2012
- Reason: Course of treatment ended and Did not seem to work
- May 22, 2012
-
Evaluated
- View Evaluation
- May 22, 2012
-
Restarted
- Dosage: 10 mL daily
- Jul 05, 2012
-
Stopped
- Date: Aug 01, 2012
- Reason: Change in health plan coverage
- Aug 01, 2012
-
Evaluated
- View Evaluation
- Aug 01, 2012
-
Restarted
- Dosage: 10 mL daily
- Sep 04, 2012
-
Evaluated
- View Evaluation
- Sep 28, 2012
-
Stopped
- Date: Sep 28, 2012
- Reason: Course of treatment ended
- Sep 28, 2012
-
Restarted
- Dosage: 10 mL daily
- Oct 25, 2012
-
Stopped
- Date: Oct 26, 2012
- Reason: Other
- Oct 26, 2012
-
Evaluated
- View Evaluation
- Oct 26, 2012
-
Restarted
- Dosage: 10 mL daily
- Nov 01, 2012
-
Stopped
- Date: Nov 25, 2012
- Reason: Course of treatment ended
- Nov 25, 2012
-
Evaluated
- View Evaluation
- Nov 25, 2012
-
Restarted
- Dosage: 10 mL daily
- Jan 01, 2013
-
Evaluated
- View Evaluation
- Jan 28, 2013
-
Stopped
- Date: Jan 28, 2013
- Reason: Course of treatment ended
- Jan 28, 2013
-
Restarted
- Dosage: 10 mL daily
- Mar 01, 2013
-
Stopped
- Date: Mar 28, 2013
- Reason: Course of treatment ended
- Mar 28, 2013
-
Evaluated
- View Evaluation
- Mar 28, 2013
-
Restarted
- Dosage: 10 mL daily
- May 01, 2013
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 10, 2013 May 10, 2013Symptom Update
- mild Constipation
- none Anxious mood
- none Headaches
- mild Impaired communication skills
- none Insomnia
- none Increased secretions
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 9, 2013 May 10, 2013Symptom Update
- none Depressed mood
- mild Constipation
- none Anxious mood
- none Memory problems
- none Increased secretions
- severe Insomnia
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 8, 2013 May 08, 2013Symptom Update
- none Anxious mood
- none Emotional lability
- none Excess saliva
- none Excessive daytime sleepiness (somnolence)
- none Headaches
- mild Lack of social skills
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples added an InstantMe for May 7, 2013 May 07, 2013 11:43AMVery bad
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 7, 2013 May 07, 2013Symptom Update
- none Depressed mood
- mild Lack of social skills
- mild Pain
- none Increased secretions
- none Seizures
- mild Stiffness/Spasticity
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 6, 2013 May 07, 2013Symptom Update
- none Excessive yawning
- none Fatigue
- none Anxious mood
- none Headaches
- mild Impaired communication skills
- severe Constipation
- See more
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples added an InstantMe for May 6, 2013 May 06, 2013 3:39AMVery bad
sick of sleep issues.
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples completed the Seizure Meter for the week of Apr 21-27, 2013 May 06, 2013Seizure Meter
- No seizures
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples completed the Seizure Meter for the week of Apr 28 - May 4, 2013 May 06, 2013Seizure Meter
- No seizures
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples completed the Seizure Meter for the week of May 5-11, 2013 May 06, 2013Seizure Meter
- No seizures
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his weight for May 6, 2013 May 06, 2013127 lb BMI: 22.5
-
- strapples
- Data Quality: 3 stars
-
- Sex: M
- Age: 21
- Condition: Rett Syndrome 4 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: Severe
- I am: vb
I have:Rett Syndromestrapples updated his symptoms for May 5, 2013 May 06, 2013Symptom Update
- none Increased secretions
- none Depressed mood
- none Fatigue
- none Anxious mood
- none Headaches
- mild Impaired communication skills
- See more
- Show more