560-full
SammyJo
Sex: F
Data Quality: 1 star
MS: 18 yrs
Type: Secondary Progressive
Sensation: None
Overall: None
Cognition: none
Vision: mild
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
SammyJo
Female, 48 years
Edmonds, WA
Primary Condition
MS
Type
Secondary Progressive
First symptom
Diagnosis
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SammyJo's CCSVI Stents is for:

  • Jugular stenosis

SammyJo's side effects of CCSVI Stents:

SammyJo's CCSVI Stents History (Stopped)
CCSVI Stents (ccsvi chronic cerebro-spinal venous insufficiency therapy)
One time Oct 29, 2009 - Jul 14, 2010
One time Jul 14 - 14, 2010
Stopped Jul 14, 2010
Evaluations
Date Dosage Jugular stenosis Perceived effectiveness Side Effects Adherence Burden
Oct 29, 2009 One time Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 ModerateModerateModerateModerate AlwaysAlwaysAlwaysAlways SomewhatSomewhatSomewhatSomewhat
Date
Oct 29, 2009
Advice & Tips
Treated at Stanford by Dr. Dake; now beginning clinical trial early 2010. Left jugular was 95% blocked, right juggler 85% blocked, both at 100% open flow after stents. MS symptoms: Painful morning extensor spasms in calf muscles gone after 3 weeks. Night time leg contracture spasms stopped at 2 months. Now at 3 months, still have some tone/stiffness in legs, but abating. No more icy hands and feet. Urgency has lessened by 50%. Still walking with cane, but energy picking up, balance improving.
Cost
< $25 monthly

About CCSVI Stents (Procedures)

Chronic cerebrospinal venous insufficiency is stenosis (a narrowing) in the veins that drain the spine and brain. Stents are tubes placed in the veins to keep veins open.

Learn more about CCSVI Stents in our CCSVI Stents Community Report.

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