PatientsLikeMe ™

I was a caregiver for my husband, who died of ALS 7 years ago. He was 54, and our children were then 9 and 11. I now work with an organization called Compassionate Care ALS (CCALS) based in Massachusetts. While this is primarily a patient services organization, I direct the CCALS caregiver program, which supports ALS caregivers through home visits, respite outings, and caregiver-to-caregiver gatherings. I'd like to invite this community to contact me if they would like to learn more about Compassionate Care, especially caregivers who may want to receive invitations to our gatherings.