jporter2
jporter2
Sex: F
Data Quality: 1 star
ALS: 2 yrs
Bi-Pap Feeding tube
Bulbar: severe
Arms: moderate
Chest: moderate
Legs: moderate
jporter2
Female, 58 years
La Honda, CA
Primary Condition
ALS
First symptom
Aug 2006
Diagnosis
May 2007
Deceased
Mar 16, 2009

About jporter2

I am writing this on behalf of my mother, Donna. She was just officially diagnosed yesterday, May 31, 2007. But we had an idea since late April 2007 since her first visit with a Neurologist. Currently she has difficulty swallowing and slurred speech and she has muscle atrophy in between her thumb and her index finger. Other than that she is fit as a fiddle. I did want to share that we have met an ALS survivor of 13 years. He is an inspiration and gives us hope. But we are certainly aware and prepared for a battle of a life time.

ALS Ribbon ALS Public Registry

Profile Activity
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Member since: May 17, 2007 Last Login Mar 19, 2009