My name is Dianne. I've had ALS for 2 yrs now . My mother and her 2 sisters had this disease. Back then (30 yrs ago) they insisted it was not genetic so I really did not give it a thought even when my foot would not work right. I was Dx right away.Had a emg and it showed positive for als . I went for a 2nd opinion with the same results. I'm now in a study at Mayo for familial als. I'm more worried about my daughters who have a 50/50 chance of getting it. I live on the west coast of Florida with my husband Rich. Thank God for him. I'm pretty much dependent on him for everything.
ALS Public Registry
