kfc's Journal

kfc: Sex: F; Data Quality: 2 stars; MS: 14 yrs; Type: Progressive Relapsing; Relapse: Severe; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: moderate; Speech: mild; Swallowing: mild; Upper limb: moderate; Walking: moderate

kfc: Female, 60 years; Nashville, TN

Primary Condition: MS and 1 more ▼

Type: Progressive Relapsing

First symptom: Dec 1998
Diagnosis: Jan 1999

kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Primidone
- - Started: ?
  - Dosage: ?
- Purpose: Tremor in right hand
kfc added the treatment Primidone Sep 16, 2012

I am no longer taking this medication because I no longer see the doctor who originally prescribed this for me. I am going to have to ask my current neurologist is he will prescribe this or something that will help my shaky hand. If I am not careful, I will fling my food off of my fork.
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 46
- Moderate Cognition
- Mild Vision
- None Speech
- None Swallowing
- Mild Upper Limb
- Mild Walking
- Mild Sensation
kfc completed the MSRS survey for Sep 16, 2012 Sep 16, 2012
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Baclofen
- - Started: Aug 12, 2004
  - Current Dosage: 60 mg daily
- Purpose: MS and Muscle spasms
- View Latest Evaluation
kfc updated the treatment Baclofen Sep 16, 2012
- Added
  - Started: Aug 12, 2004
  - Dosage: 60 mg daily
  - Purpose: MS (Multiple Sclerosis), Other, and Muscle spasms
  - Aug 12, 2004
- Evaluated
  - View Evaluation
  - Sep 09, 2008
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Natalizumab
- - Started: ?
  - Dosage: ?
- Purpose: MS
kfc added the treatment Natalizumab Sep 16, 2012
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Provigil
- - Stopped: Mar 08, 2009
  - Reason: Did not seem to work
  - Started: Sep 6, 2008
  - Last Dosage: 200 mg daily
- Purpose: MS and Fatigue
- View Latest Evaluation
kfc updated the treatment Provigil Sep 16, 2012
- Added
  - Started: Sep 06, 2008
  - Dosage: 200 mg daily
  - Purpose: MS (Multiple Sclerosis) and Fatigue
  - Sep 06, 2008
- Stopped
  - Date: Mar 08, 2009
  - Reason: Did not seem to work
  - Mar 08, 2009
- Evaluated
  - View Evaluation
  - Mar 08, 2009
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Updated Bio

I have a twin sister, who has MS as well, a brother and another sister. I am married to my High School Sweatheart. We have twin daughters who are married and have given us 2 wonderful son-in-laws and 7 beautiful grandchildren. I love scrappbooking when I am doing better.

kfc updated her bio Sep 16, 2012
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

130 lb BMI: 23.0
kfc updated her weight for Jul 31, 2012 Jul 31, 2012
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 60
- Moderate Cognition
- Moderate Vision
- Mild Speech
- Mild Swallowing
- Mild Upper Limb
- Mild Walking
- Moderate Sensation
kfc completed the MSRS survey for Mar 10, 2012 Mar 11, 2012

probably the Tysabri infusions
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 67
- Moderate Cognition
- Moderate Vision
- Moderate Speech
- Mild Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
kfc completed the MSRS survey for Jan 1, 2012 Mar 11, 2012

I'm not sure what is making my symptoms worse. I guess MS
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Relapse
kfc added a severe relapse on Jan 11, 2012 Mar 11, 2012

I was never hospitalized. I went to the emergency room for bladder problems.
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 53
- Moderate Cognition
- Moderate Vision
- Mild Speech
- Mild Swallowing
- Mild Upper Limb
- Mild Walking
- None Sensation
kfc completed the MSRS survey for Mar 11, 2012 Mar 11, 2012

I guess the Tysabri infusions are helping my MS
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

2 stars
kfc lost a star Mar 12, 2012

April 19, 2012
Dr. Fallis called me in a prescription for some water pills, to get some of this bloating off. It was Furosemide 20mg (a generic for Lacix). I am supposed to take 1 every morning for 3 days.

June 8, 2012
Dr. Fallis has started me on Tysabri. It is a once a month infusion MS treatment. I have had 2 so far. Can’t tell any difference yet. The drug has good recommendations by many MS patients.
I am going to have to see if Dr. Raulston will prescribe me different medications. I evidently I must be terrible to get along with
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

3 stars
kfc earned a star! Mar 11, 2012
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Very bad
kfc added an InstantMe for Dec 28, 2011 Dec 28, 2011 3:27PM

all of this confuses me and I can't tell what I am suppose to do.
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Bad
kfc added an InstantMe for Dec 28, 2011 Dec 28, 2011 3:25PM

MS hug, glinching teeth. makes me feel miserable.
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

141 lb 8 oz BMI: 25.1
kfc updated her weight for Dec 13, 2011 Dec 13, 2011

just my medication for depression. Dr. Raulston has lowered these doses.
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Symptom Update
- severe MS hug (tight chest or torso)
- mild Pain
- severe Fatigue
- severe Numbness in hands
- mild Emotional lability
- none Heartburn
- severe Vision problem in left eye
- mild Dry eyes
- severe Sexual dysfunction
- mild Mood swings
- mild Muscle spasms
- moderate Depression with anxiety
- severe Excessive daytime sleepiness (somnolence)
- mild Insomnia
- severe Stiffness/Spasticity
- moderate Anxious mood
- none Acid reflux
- mild Bladder problems
- mild Balance problems
- mild Bowel problems
- moderate Brain fog
- moderate Blurry vision
- moderate Depressed mood
- See more
kfc updated her symptoms for Dec 13, 2011 Dec 13, 2011
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Somniloquy
- First symptom: ?
- Diagnosis: ?
kfc added the condition Somniloquy Nov 02, 2011
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Good
kfc added an InstantMe for Sep 12, 2011 Sep 12, 2011 2:58PM

this very second, I feel good
kfc

Sex: F

Data Quality: 2 stars

Relapse: Severe

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Good
kfc added an InstantMe for May 15, 2011 May 15, 2011 2:40PM

I am not having any of the anxious feelings right now.

About kfc

Other Conditions

Primidone

MSRS: 46

Baclofen

Natalizumab

Provigil

Updated Bio

130 lb BMI: 23.0

MSRS: 60

MSRS: 67

Relapse

MSRS: 53

Very bad

Bad

141 lb 8 oz BMI: 25.1

Symptom Update

Somniloquy

Good

Good