the experience i have learned is you need a nuerologist who understands and deals with MS otherwise they can make you very ill. the first nuero i saw almost killed me due to not reading his palm po;ot correctly, that should have told me something right there that he was diagnosing me through the internet. i am in the process of changing nuerologists because the one i had only is a specialist for myasthenia gravis and does not treat both. which is unbelievalbe to me.
my MS is more prevalent then the MG but heat makes me feel like jello a few minutes out in 80 degree weather and i am done for the day.
at one point i ws in a wheel chair and could not dress myself or bath myself it was terrible if it wasnt for my 15 yr old daughter i dont know what i would do. its very hard for her our whole lifestyle has changed. i can no longer work because i dont drive, when i have flare ups i can barely get out of bed.
i am 39 years old. and this has been very hard on us. i am a single mother and they say stress is a big part of it but out government doesnt think tht/ p had a state job i made good money we have sold everything and we are living in a rental assisted 2 bed apartment, sold my truck. its been very hard and i am still fighting lawyers to get my ssd i have paid my credits in and i should not have had to wait like this with a child to take care of we live off of 257 a month and food stamps that is not fair and if i make $1 more i have to pay $60 for my medical its just not fair. meds i am currently on are betaseron,xanax,oxycodone,ambian,imatrex, effexor, prevacid and musinex.