froginmadison's Journal

froginmadison: Sex: M; Data Quality: 2 stars; ALS: 4 yrs; Ventilator Wheelchair Feeding tube; Bulbar: severe; Arms: severe; Chest: moderate; Legs: severe

froginmadison: Male, 43 years; Madison, AL

Primary Condition: ALS
First symptom: Nov 2007
Diagnosis: May 2008

2 stars
froginmadison lost a star • about 17 hours ago
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FRS

3
- severe Head
- severe Arms
- moderate Torso
- severe Legs
froginmadison completed the FRS survey for Apr 21, 2012 • Apr 21, 2012
What sort of things are making your ALS symptoms worse?
Added

Symptom Update
- mild Excess mucus
- mild Emotional lability
- severe Balance problems
- moderate Atrophy of left arm muscles
- none Urinary frequency
- moderate Startle easily
- moderate Fatigue
- severe Speech problems
- mild Sleepiness
- moderate Pain
- mild Cramps under chin
- moderate Stiffness/Spasticity
- severe Loss of manual dexterity
- severe Atrophy of left hand muscles
- severe Muscle weakness
- severe Fasciculations
- moderate Excessive yawning
- severe Choking on food
- none Pneumonia symptoms
- moderate Involuntary sighing
- severe Increased secretions
- severe Fingers curl
- mild Depressed mood
- severe Weakness in arms
- severe Transferring difficulty
- mild Constipation
- severe Atrophy of hand muscles
- severe Slurred speech
- mild Insomnia
- severe Foot drop
- moderate Atrophy of right arm muscles
- severe Inability to wipe self after bowel movement
- moderate Cramps
- severe Breathing difficulty
- moderate Shallow breathing
- severe Excess saliva
- mild Claw-like cramps in hands
- moderate Atrophy of left shoulder muscles
- mild Anxious mood
- See more
froginmadison updated hisyour symptoms for Apr 21, 2012 • Apr 21, 2012
What else would you like to share about these symptoms?
3 stars
froginmadison earned a star! • Apr 21, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
froginmadison lost a star • Apr 03, 2012
Nice work! One more star and you get a PLM t-shirt!
New evaluation

Respironics CoughAssist Treatment Evaluation
- Efficacy for preventive: Slight
- Efficacy for ALS (Amyotrophic Lateral Sclerosis): Slight
- Side Effects: None
- Adherence: Sometimes
- Burden: A little
froginmadison added a treatment evaluation for Respironics CoughAssist from Feb 24, 2012 • Mar 05, 2012
Stopped treatment

Respironics CoughAssist
- Stopped: Feb 24, 2012
- Reason: Course of treatment ended
froginmadison stopped taking the treatment Respironics CoughAssist • Mar 05, 2012
What else would you like to share about stopping this treatment?
Added treatment

Trilogy 100 Ventilator
- Started: Mar 3, 2012
- Dosage: 24 hr daily
- Purpose: General health and ALS (Amyotrophic Lateral Sclerosis)
froginmadison added the treatment Trilogy 100 Ventilator • Mar 05, 2012
What else would you like to share about this treatment?
Added treatment

Tracheostomy
- Started: Feb 27, 2012
- Dosage: one time
- Purpose: ALS (Amyotrophic Lateral Sclerosis) and Breathing difficulty
froginmadison added the treatment Tracheostomy • Mar 05, 2012
What else would you like to share about this treatment?
Weight

140 lb

BMI

19.0
froginmadison updated hisyour weight for Feb 26, 2012 • Feb 26, 2012
Is there anything in particular that influenced this weight decrease?
FRS

7
- severe Head
- severe Arms
- moderate Torso
- severe Legs
froginmadison completed the FRS survey for Jan 19, 2012 • Jan 19, 2012
What sort of things are making your ALS symptoms worse?
Weight

147 lb

BMI

19.9
froginmadison updated hisyour weight for Jan 19, 2012 • Jan 19, 2012
Is there anything in particular that influenced this weight decrease?
3 stars
froginmadison earned a star! • Jan 19, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
froginmadison lost a star • Jan 15, 2012
Nice work! One more star and you get a PLM t-shirt!
Added treatment

Shower/Tub Chair
- Started: Jul 3, 2009
- Dosage: as needed
froginmadison added the treatment Shower/Tub Chair • Jan 04, 2012
What else would you like to share about this treatment?
Added treatment

MucusRelief
- Started: Aug 1, 2011
- Dosage: 1600 mg daily
- Purpose: Excess mucus
froginmadison added the treatment MucusRelief • Jan 04, 2012
What else would you like to share about this treatment?
Added treatment

Oxygen Therapy
- Started: Dec 21, 2011
- Dosage: 2 L daily
froginmadison added the treatment Oxygen Therapy • Jan 04, 2012
What else would you like to share about this treatment?
Hospitalization

Pneumonia symptoms
- Admitted: Dec 21, 2011
- Discharged: Dec 24, 2011
froginmadison added a hospitalization for Pneumonia symptoms • Jan 04, 2012
What else would you like to share about this hospitalization?
Added

Symptom Update
- mild Emotional lability
- severe Balance problems
- moderate Atrophy of left arm muscles
- mild Urinary frequency
- moderate Startle easily
- moderate Fatigue
- severe Speech problems
- mild Sleepiness
- moderate Pain
- mild Cramps under chin
- moderate Stiffness/Spasticity
- severe Loss of manual dexterity
- severe Atrophy of left hand muscles
- severe Muscle weakness
- moderate Fasciculations
- moderate Excessive yawning
- severe Choking on food
- mild Involuntary sighing
- mild Increased secretions
- severe Fingers curl
- moderate Depressed mood
- severe Weakness in arms
- severe Transferring difficulty
- moderate Constipation
- severe Atrophy of hand muscles
- severe Slurred speech
- moderate Insomnia
- severe Foot drop
- moderate Atrophy of right arm muscles
- severe Inability to wipe self after bowel movement
- moderate Cramps
- moderate Breathing difficulty
- moderate Shallow breathing
- none Excess saliva
- severe Claw-like cramps in hands
- moderate Atrophy of left shoulder muscles
- See more
froginmadison updated hisyour symptoms for Jan 4, 2012 • Jan 04, 2012
What else would you like to share about these symptoms?
3 stars
froginmadison earned a star! • Jan 04, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
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