PatientsLikeMe ™

My mother was dx with Bulbar onset in April 08. I lost my mother to ALS April 07, 2010. My mother did not test (+) for SOD1 but my mother truly believed after understanding ALS and her mother's symptoms that she as well suffered from ALS. My mother and I were VERY close and I miss her dearly. I have a 4,6,16,and18 yr. old children and I take care of my father. I have been in the funeral business most of my life. My husband is still in the Funeral Business. I help local PALS and CALS in the DFW area. I have been on PLM for a long time now.