Soli Deo Gloria
Soli Deo Gloria
Sex: M
Data Quality: 2 stars
PLS: 14 yrs
Bulbar: mild
Arms: mild
Chest: none
Legs: moderate
Soli Deo Gloria
Male, 37 years
OR, United States
Primary Condition
PLS
First symptom
Mar 1998
Diagnosis
Jul 2008

About Soli Deo Gloria

I've been married to my bride since 1998-she is simply amazing. We have six children. I have been diagnosed with Primary Lateral Sclerosis, which is a slow moving, non-fatal Motor Neuron Disease affecting the Upper Motor Neurons only. Looking back ,we've found documentation of symptoms dating back to 1998, but nobody put things together until the symptoms hit pretty hard in the fall of 2007. My neurologist sent me to a specialist who suggested HSP (Hereditary Spastic Paraplegia) or PLS. Since then, I have received a dx of PLS and this has been confirmed by an ALS specialist.

Profile Activity
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Member since: Jul 11, 2008 Last Login Oct 19, 2011

More About Soli Deo Gloria

 

I'd love to get to know you and hear about your journey with ALS. I love hearing how everyone's story is so different. Feel free to contact me via email, facebook, or through my blog in which I sometimes write about my own journey.