- Brynn
- Sex: F
- Data Quality: 0 stars
- MS: 10 yrs
- Type: Relapsing-Remitting
- Sensation: Severe
- Overall: Moderate
- Cognition: moderate
- Vision: mild
- Speech: mild
- Swallowing: moderate
- Upper limb: mild
- Walking: moderate
- Brynn
- Female, 45 years
- AZ, United States
- Primary Condition
- MS
- Type
- Relapsing-Remitting
- First symptom
- Jan 2002
- Diagnosis
- Nov 2003
More About Brynn
I love spending time with my Honi and going with him for his job. He is an OTR truck driver. I love his family and like to spend time with them when I can.
A little bit more about my MS. My major symptom has always been pain and fatigue, but in the last few years, my hand and leg tingling and numbness has gotten worse. I have lots of muscle twitching in my legs and my feet spasm and look like they are trying to curl up in a little ball. Ouch, that is painful. Also when I go for walks my left leg starts to feel like it's made of wood and I have a tendancy to start to drag my L foot. My hands were also quite painful until we moved to AZ. The heat seems to have helped that issue which is nice.
My balance has been off my whole life but is becoming increasingly worse. I came close to falling for the first time last week. Scared me alot. Well that's enough about that.
It's a big adjustment moving from the midwest to the desert. I'm trying very hard to like it for my Honi's sake as his parents live here and he is very close to his dad. The big bugs are one of the hardest things for me to deal with. Not a bug fan! I also miss the lakes and rivers. I love the water.
I don't have any kids except the furry kind, not that I wouldn't like to have one. I really don't have much family as my mother passed when I was 14 and I ran away from home 4 years later. I have a 1/2 brother in MA and an Aunt and Uncle who live in VA that are actual blood relatives, the rest live in Germany and I have not seen them since I was 5. I do have a few of my step-father's relatives that I am in contact with, but he died this past year. I was relieved as he was a cruel and abusive man and a shadow that had been with me for years was finally gone. I've never met my biological father as my parents divorced when I was only 2 months old. It would be nice to meet him just to see him and find out about my heritage and if I have any other siblings, kinda fill in the gap. I hope this is the kind of stuff we are supposed to be writing in here.
I had joined another on line support group and was really burned there. It was very cliquey and if something was said that certain groups of people didn't like they would gang up on you and say hateful things. Not very supportive. I am hoping that this place is not like that. I try very hard to be accepting of others, their personal belief system, ideas and the like. I don't ask anyone to think or behave the way I do and I expect that of others. I am a very outspoken person with definite views on certain things and I have the uncanny ability to be able to make someone not like me because of my blunt, say it like it is way. But that is who I am. What you see is what you get. Except the pic in my bio isn't me so I guess what you see in that case is a masked faerie. I love faerie's and magical things. I have a tendancy to blather on and on also.
I don't have alot of friends but the one's I do have are very special to me and I am quite loyal. My best girlfriend and I have been friends since the 5th grade and though we don't see each other as we live quite far apart, we can pick up the phone and it's as if we had just seen each other yesterday. My boyfriend is my best friend. We have been together for 2 and 1/2 years and he is the most wonderful man I have ever had the privilege of being with. Out of the sea of abusive jerks in my past he is the only one I wouldn't want to throw back.
So in closing, I feel grateful to have found this site and have hope that it will be helpful and supportive to me and that I can offer help and support to others.
2 of my favorite poems by my favorite Poet:
"Hope is the thing with feathers-
That perches in the soul-
And sings the tune without the words-
And never stops-at all-
And sweetest-in the Gale-is heard-
And sore must be the storm-
That could abash the little Bird
That kept so many warm-
I've heard it in the chillest land-
And on the strangest Sea-
Yet, never, in Extremity,
It asked a crumb-of Me.
Emily Dickinson c.1861
Pain-has an Element of Blank-
It cannot recollect
When it begun-or if there were
A time when it was not-
It has no Future-but itself-
Its Infinite contain
Its past-enlightened to perceive
New Periods-of Pain.
Emily Dickinson c. 1862
These two poems, so beautiful, one a message that Hope with its wings has the ability to lighten the souls load, giving comfort, asking nothing in return(and so much more) and the other seems an ode to my condition. The pain begins, has no memory, is self containing and has no purpose but to bring more pain. So opposite.
I've loved her writing since I was in junior high.
Brynn
A little bit more about my MS. My major symptom has always been pain and fatigue, but in the last few years, my hand and leg tingling and numbness has gotten worse. I have lots of muscle twitching in my legs and my feet spasm and look like they are trying to curl up in a little ball. Ouch, that is painful. Also when I go for walks my left leg starts to feel like it's made of wood and I have a tendancy to start to drag my L foot. My hands were also quite painful until we moved to AZ. The heat seems to have helped that issue which is nice.
My balance has been off my whole life but is becoming increasingly worse. I came close to falling for the first time last week. Scared me alot. Well that's enough about that.
It's a big adjustment moving from the midwest to the desert. I'm trying very hard to like it for my Honi's sake as his parents live here and he is very close to his dad. The big bugs are one of the hardest things for me to deal with. Not a bug fan! I also miss the lakes and rivers. I love the water.
I don't have any kids except the furry kind, not that I wouldn't like to have one. I really don't have much family as my mother passed when I was 14 and I ran away from home 4 years later. I have a 1/2 brother in MA and an Aunt and Uncle who live in VA that are actual blood relatives, the rest live in Germany and I have not seen them since I was 5. I do have a few of my step-father's relatives that I am in contact with, but he died this past year. I was relieved as he was a cruel and abusive man and a shadow that had been with me for years was finally gone. I've never met my biological father as my parents divorced when I was only 2 months old. It would be nice to meet him just to see him and find out about my heritage and if I have any other siblings, kinda fill in the gap. I hope this is the kind of stuff we are supposed to be writing in here.
I had joined another on line support group and was really burned there. It was very cliquey and if something was said that certain groups of people didn't like they would gang up on you and say hateful things. Not very supportive. I am hoping that this place is not like that. I try very hard to be accepting of others, their personal belief system, ideas and the like. I don't ask anyone to think or behave the way I do and I expect that of others. I am a very outspoken person with definite views on certain things and I have the uncanny ability to be able to make someone not like me because of my blunt, say it like it is way. But that is who I am. What you see is what you get. Except the pic in my bio isn't me so I guess what you see in that case is a masked faerie. I love faerie's and magical things. I have a tendancy to blather on and on also.
I don't have alot of friends but the one's I do have are very special to me and I am quite loyal. My best girlfriend and I have been friends since the 5th grade and though we don't see each other as we live quite far apart, we can pick up the phone and it's as if we had just seen each other yesterday. My boyfriend is my best friend. We have been together for 2 and 1/2 years and he is the most wonderful man I have ever had the privilege of being with. Out of the sea of abusive jerks in my past he is the only one I wouldn't want to throw back.
So in closing, I feel grateful to have found this site and have hope that it will be helpful and supportive to me and that I can offer help and support to others.
2 of my favorite poems by my favorite Poet:
"Hope is the thing with feathers-
That perches in the soul-
And sings the tune without the words-
And never stops-at all-
And sweetest-in the Gale-is heard-
And sore must be the storm-
That could abash the little Bird
That kept so many warm-
I've heard it in the chillest land-
And on the strangest Sea-
Yet, never, in Extremity,
It asked a crumb-of Me.
Emily Dickinson c.1861
Pain-has an Element of Blank-
It cannot recollect
When it begun-or if there were
A time when it was not-
It has no Future-but itself-
Its Infinite contain
Its past-enlightened to perceive
New Periods-of Pain.
Emily Dickinson c. 1862
These two poems, so beautiful, one a message that Hope with its wings has the ability to lighten the souls load, giving comfort, asking nothing in return(and so much more) and the other seems an ode to my condition. The pain begins, has no memory, is self containing and has no purpose but to bring more pain. So opposite.
I've loved her writing since I was in junior high.
Brynn