Portrait_default
cfguy
Data Quality: 1 star
  • Sex: Male
  • Age: 37y
Condition: Cystic Fibrosis
Quality of Life:
  • Mental: None
  • Physical: None
cfguy
Male, 37 years
United Kingdom
Primary Condition
Cystic Fibrosis
First symptom
Diagnosis
See more
  1. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis
    star earnedstar  notearnedstar  notearned 1 star
    lost a star Nov 23, 2012
  2. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis
    star earnedstar earnedstar  notearned 2 stars
    lost a star Aug 25, 2012
  3. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Cystic Fibrosis

    • First symptom:
    • Diagnosis:
    updated the condition Cystic Fibrosis May 27, 2012

    I am doing well right now after a difficult year last year. One contributing factor is that I have managed to avoid colds all year so far which has allowed me to avoid any courses of IVs.

    One thing I would like to share is that the Cold Defence nasal spray has really helped minimize or eliminate cold symptoms - I only came across it recently but it seems to help a lot. It's available in the UK from Boots (don't know about US) and you can use it when you get the first symptoms. Here's a link: http://www.boots.com/en/Boots-Pharmaceuticals-Cold-Defence-Nasal-Spray-20ml_1224268/
    In my experience, when using the spray the cold still leaves you feeling a bit drained but it doesn't cause the usual cough that knocks my lung function down + usually leads to IVs. I'd be interested in hearing from anyone who has tried this (or similar) to see if this worked for you.

  4. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    QOL

    • Best Social
    • Best Mental
    • Best Physical
    completed the QOL survey for May 27, 2012 May 27, 2012
  5. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    189 lb 10 oz BMI: 25.7

    updated his weight for May 27, 2012 May 27, 2012
  6. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Joined PatientsLikeMe

    joined PatientsLikeMe May 27, 2012
  7. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Symptom Update

    • none Depressed mood
    • none Pain
    • none Fatigue
    • none Anxious mood
    • none Insomnia
    updated his symptoms for May 27, 2012 May 27, 2012
  8. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Basic Information

    updated his basic information May 27, 2012
  9. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Dornase alfa

      • Started: ?
      • Dosage: ?
    • Purpose: Cystic Fibrosis
    added the treatment Dornase alfa May 27, 2012
  10. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis

    Azithromycin

      • Started: ?
      • Dosage: ?
    • Purpose: Cystic Fibrosis
    added the treatment Azithromycin May 27, 2012
  11. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis
    star earnedstar earnedstar earned 3 stars
    earned 2 stars! May 27, 2012
  12. Portrait_default_thumb
    cfguy
    Data Quality: 1 star
    • Sex: M
    • Age: 37
    Condition: Cystic Fibrosis
    Quality of Life:
    • Mental: None
    • Physical: None
    I have:
    Cystic Fibrosis
    star earnedstar  notearnedstar  notearned 1 star
    earned a star! May 27, 2012