45827-full
moniq118
Data Quality: 1 star
  • Sex: F
  • Age: 31y
  • Duration: 4 yrs
PRO survey: PRO 0
Quality of Life:
  • Mental: Mild
  • Physical: Mild
1 seizure
51 weeks ago
moniq118
Female, 31 years
NY, United States
Primary Condition
Epilepsy
First seizure
?
Diagnosis
See more
  1. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy
    star earnedstar  notearnedstar  notearned 1 star
    lost a star Jun 29, 2012
  2. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Seizure Meter

    • 1 seizure
    completed the Seizure Meter for the week of May 27 - Jun 2, 2012 May 31, 2012

    Type(s): 1 complex partial - severity: 3

  3. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy
    star earnedstar earnedstar  notearned 2 stars
    earned a star! May 31, 2012
  4. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Updated Bio

    Well, I'm a 31 year old single mother of 3 who has been having complex partial seizures for many years but was just diagnosed March this year. I am having a hard time with the notion of trying medicines that will make my quality of life worst and make it difficult for me to be an active parent to my kids. I have not tried many but it scares me. I will continue to be as positive as i can be. I have faith that I can figure out what can not only stop the seizures but allow me to live a healthy and happy life. That's my prayer for all you "patients like me"

    updated her bio May 31, 2012
  5. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Good

    added an InstantMe for May 28, 2012 May 28, 2012 1:58AM

    No seizures in the past 24 hours. Yay. I was able to enjoy my kids without that shakey, dazed, distant and tired feeling. I know I have to work on sleeping. But any time I feel normal I try not to take advantage of it. I hope I can have an easy breezy seizure free mamorial day.

  6. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    PRO

    • Bad Social
    • Good Mental
    • Bad Physical
    completed PRO May 27, 2012
  7. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Seizure Meter

    • 4 seizures
    completed the Seizure Meter for the week of May 20-26, 2012 May 26, 2012

    Type(s): 4 complex partial - severity: 5

  8. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Bad

    added an InstantMe for May 26, 2012 May 26, 2012 3:59PM

    I woke up Felling really good this morning. Its been a hard week and I finally felt normal and then yet another seizure. I have been going through this for a long time but now that I know that these are seizures I'm trying to figure out what's my triggers and auras. My neurologist doesn't seem to be educating me on much of anything. She just said my EEG showed some spikes and i'm having complex partial seizures. She prescribed Carbamazepine but the side affects left me feeling as if I just had a seizure and I was unable to care for my kids. My children are wonderful and they need me to be a mother and not a vegetable so I stopped taking the medicine. don't know what to do now. But I will continue to pray and stay positive that I will get this under control. If anyone has any advice I would appreciate it.

  9. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Updated Photo

    updated her profile picture May 26, 2012
  10. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Updated Photo

    added a profile picture May 26, 2012
  11. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Seizure Meter

    • No seizures
    completed the Seizure Meter for the week of May 13-19, 2012 May 26, 2012
  12. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Carbamazepine Treatment Evaluation

    • Perceived effectiveness for Epilepsy: ?Can't tell
    • Side Effects: SevereSevereSevereSevereSevere
    • Adherence: NeverNeverNeverNeverNever
    • Burden: VeryVeryVeryVeryVery
    added a treatment evaluation for Carbamazepine May 26, 2012
  13. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    QOL

    • Good Social
    • Good Mental
    • Good Physical
    completed the QOL survey for May 26, 2012 May 26, 2012
  14. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    250 lb BMI: 45.7

    updated her weight for May 26, 2012 May 26, 2012
  15. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Joined PatientsLikeMe

    joined PatientsLikeMe May 26, 2012
  16. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Carbamazepine

    updated the treatment Carbamazepine May 26, 2012
    • Added
      • Started: May 07, 2012
      • Dosage: 400 mg daily
      • Purpose: Epilepsy
      • May 07, 2012
    • Evaluated
  17. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Basic Information

    updated her basic information May 26, 2012
  18. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Symptom Update

    • severe Excessive daytime sleepiness (somnolence)
    • moderate Memory problems
    • mild Headaches
    • moderate Insomnia
    • none Depressed mood
    • severe Fatigue
    • See more
    updated her symptoms for May 26, 2012 May 26, 2012
  19. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy

    Epilepsy

    • First seizure: ?
    • Diagnosis:
    updated the condition Epilepsy May 26, 2012
  20. 45827-thumb
    moniq118
    Data Quality: 1 star
    • Sex: F
    • Age: 31y
    • Duration: 4 yrs
    PRO survey: PRO 0
    Quality of Life:
    • Mental: Mild
    • Physical: Mild
    1 seizure
    51 weeks ago
    I am: g
    I have:
    Epilepsy
    star earnedstar  notearnedstar  notearned 1 star
    earned a star! May 26, 2012