onefassbass's Journal

onefassbass: Sex: M; Data Quality: 2 stars; ALS: 14 yrs; Ventilator Wheelchair Feeding tube; Bulbar: severe; Arms: severe; Chest: severe; Legs: severe

onefassbass: Male, 44 years; Norfolk, VA

Primary Condition: ALS
First symptom: May 1998
Diagnosis: Nov 2000

2 stars
onefassbass lost a star • May 20, 2012
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Weight

220 lb 9 oz

BMI

27.6
onefassbass updated hisyour weight for May 2, 2012 • May 02, 2012
Is there anything in particular that influenced this weight increase?
onefassbass added the tag Communication Devices to My Tobii PC-EYE Experience • Feb 28, 2012
Weight

207 lb

BMI

25.9
onefassbass updated hisyour weight for Feb 20, 2012 • Feb 20, 2012
Is there anything in particular that influenced this weight increase?
New evaluation

Tracker headmouse Treatment Evaluation
- Efficacy for General health: Major
- Side Effects: None
- Adherence: Always
- Burden: A little
onefassbass added a treatment evaluation for Tracker headmouse from Aug 15, 2010 • Feb 20, 2012
Stopped treatment

Tracker headmouse
- Stopped: Aug 15, 2010
- Reason: Other
onefassbass stopped taking the treatment Tracker headmouse • Feb 20, 2012
What else would you like to share about stopping this treatment?
Updated outcome

QOL
- Good Social
- Best Mental
- Worst Physical
onefassbass completed the QOL survey for Feb 20, 2012 • Feb 20, 2012
What sort of things are negatively affecting your Quality of Life?
FVC

0%

onefassbass completed the FVC survey for Feb 20, 2012 • Feb 20, 2012
What else would you like to share about the impact of ALS on your life?
FRS

0
- severe Head
- severe Arms
- severe Torso
- severe Legs
onefassbass completed the FRS survey for Feb 20, 2012 • Feb 20, 2012
What else would you like to share about the impact of ALS on your life?
Added treatment

Eye Gaze Computer
- Started: Aug 15, 2010
- Dosage: daily
- Purpose: Support activities of daily living (ADL), Support mental / emotional health, and Improve communication
onefassbass added the treatment Eye Gaze Computer • Feb 20, 2012
What else would you like to share about this treatment?
Added

Symptom Update
- mild Insomnia
- severe Foot drop
- severe Breathing difficulty
- severe Balance problems
- severe Excess saliva
- mild Cold hands
- severe Bowel problems
- severe Coughing while drinking
- severe Choking on food
- severe Atrophy of forearm muscles
- none Anxious mood
- mild Emotional lability
- none Cramps in calf muscles
- severe Coughing while eating
- moderate Total loss of hearing in one ear
- severe Neck bones click with movement
- mild Fatigue
- none Pain
- none Excessive yawning
- severe Choking on liquids
- mild Stiffness/Spasticity
- none Cramps in back
- severe Atrophy of calf muscles
- mild Fasciculations
- moderate Burning sensation in eyes
- severe Atrophy of hand muscles
- none Depressed mood
- none Cramps in neck
- severe Atrophy of upper body muscles
- severe Difficulty chewing
- moderate Constipation
- mild Cold feet
- See more
onefassbass updated hisyour symptoms for Feb 20, 2012 • Feb 20, 2012
What else would you like to share about these symptoms?
Added treatment

Long term treatment facility
- Started: ?
onefassbass added the treatment Long term treatment facility • Feb 20, 2012
When did you start this treatment?
InstantMe

Very good
onefassbass added an InstantMe for Feb 20, 2012 • Feb 20, 2012 2:30AM
What's making you feel very good?
3 stars
onefassbass earned a star! • Feb 20, 2012
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About onefassbass