1. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Over did going out to Christmas shopping with new wheelchair however it did work. I have been really pushing myself getting ready for Healthsouth Rehad. Told doctor I did not want them wasting my time with stretching rubbers and putty. I can do those at home.

  2. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Very painful all over, headache, cannot move and spend awfully tired

  3. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    Tired, pain in all my joints, generally sore all over.

  4. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  5. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Too much pain.

  6. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Just overwhelmed.

  7. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Left foot and leg swollen up really bad, pain is excruciating, seeing Dr. Bender's PA at 1:30 pm.

  8. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit completed the QOL survey

    • moderate Social
    • moderate Mental
    • moderate Physical

    Not being able to be as flexible and physical as I once was

  9. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Left side of my body is beyond excruciating. Tossed and turned all night. Feeling bad emotionally as well but pushing myself to carry on with Christmas/Advent preparations.

  10. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Didn't sleep well due pain waking me up...deep burning, aching, and intense pain.

  11. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling neutral

    Just ache as usual.

  12. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling neutral

    I just feeling miserable.

  13. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit updated her symptoms

    severe SevereFatigue, Pain, Pain in lower back
    moderate ModerateHeadaches, Insomnia, Muscle and joint pain
    mild MildAnxious mood, Brain fog, Depressed mood, Muscle spasms
  14. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit updated the condition Fibromyalgia

    • First symptom: ?
    • Diagnosis: ?
  15. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Ache all over, fatigue, feet swollen the size of football's....so much to do with Christmas coming.

  16. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit updated the condition Neurofibromatosis

    • First symptom:
    • Diagnosis:
  17. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    Pain all over, very little sleep last nite.

  18. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit added a treatment evaluation for Morphine

    • Perceived effectiveness for Fibromyalgia: Slight
    • Perceived effectiveness for Chronic pain: Slight
    • Perceived effectiveness for Pain: Slight
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 40 mg Every 3 months
    • Cost: $25-49 monthly
  19. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit updated her weight

  20. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 1 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit shared details about Morphine

    40 mg every 3 months (was 20 mg every 6 weeks until ) Dosage40 mg every 3 months (was 20 mg every 6 weeks until )
  21. Show more