1. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Still not well after weekend visit to ER.

  2. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Trip to ER last night to no avail they urine test no uti treat me badly and only at my insistence did the give me showy or toridalo, zofran and something to relax my muscles by inj wrote me script for flexeril which I cannot take.

  3. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Can't breathe today, fatigue, pain.

  4. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Feel like I have a uti, something is really bothering me on my left side, pain is horrendous, breathing getting harder all the time.

  5. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Where is hospice when you need them.

  6. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 60
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: vb
    I have:
    Neurofibromatosis

    SisterHermit completed the QOL survey

    • moderate Social
    • moderate Mental
    • moderate Physical
    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Cramping low back ache might have hit too Cold to go the doctor....so next Thursday at 1:30 pm.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Nausea, unable to get my breath, just feel not myself, and pain.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      Short of breath for last two month, pain, fatigue.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Pain all over.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit completed the PFRS survey

      • PFRS: 43
      • Fatigue: All
      • Sleep: All
      • Stiffness: Most
      • Pain: Most
      • External Stress: Moderate
    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Sad

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit updated her symptoms

      decrease better BetterInsomnia
      increase worse WorseAnxious mood, Brain fog, Depressed mood, Headaches, Shortness of breath (dyspnea), Wheezing
      moderate ModerateVitamin D deficiency
    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Ran out of pain meds.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Pain all over.

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

      Nausea, pain, and ache

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis

      SisterHermit was feeling very bad

    • 67555 thumb
      SisterHermit
      Data Quality: 2 stars
      • Sex: F
      • Age: 60
      Condition: Neurofibromatosis 3 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: Moderate
      I am: vb
      I have:
      Neurofibromatosis
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