1. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    Snow always makes me stiff but my friend, Pam, came and got me to sit up and knots homemade blankets. I also got my Patients Like Me t-shirt and wonderful pen. I have the t-shirt over my habit. Thanks and God bless you.

  2. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit shared details about Vitamin D

    Dosage40 intl units weekly (starting )
  3. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  4. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  5. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit shared details about Morphine

    increase better Dosage7.25 mg daily (was 40 mg every 3 months until )
  6. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit shared details about Albuterol Inhaler

    Dosage180 mcg twice daily (starting )
  7. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Woke with migraine and hurting all over especially the left side.

  8. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  9. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Saw Dr. Bender this morning...he tried to help..

  10. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  11. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  12. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Woke with migraine.

  13. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit completed the PFRS survey

    • PFRS: 48
    • Fatigue: All
    • Sleep: All
    • Stiffness: All
    • Pain: All
    • External Stress: None
  14. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  15. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit updated her symptoms

    decrease better BetterAnxious mood, Depressed mood, Headaches
    increase worse WorseBalance problems
    mild MildShortness of breath (dyspnea), Wheezing
  16. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Still hurting very badly.

  17. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  18. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    Still recovering from being in Healthsouth....never thought I could hurt so bad.

  19. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

    So far Healthsouth is showing me even I can be pushed beyond my own limits of excruciating pain so today I threw in the towel and tomorrow I will be going home.

  20. 67555 thumb
    SisterHermit
    Data Quality: 2 stars
    • Sex: F
    • Age: 59
    Condition: Neurofibromatosis 3 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Neurofibromatosis

    SisterHermit was feeling very bad

  21. Show more