45899-full
daisygirl2mil
Data Quality: 1 star
  • Sex: Female
  • Age: 28y
Condition: Systemic Lupus Erythematosus 4 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: None
I am: Neutral
daisygirl2mil
Female, 28 years
Birmingham, AL
Primary Condition
Systemic Lupus Erythematosus and 4 more
First symptom
Diagnosis
See more
  1. 45899-thumb
    daisygirl2mil
    Data Quality: 1 star
    • Sex: F
    • Age: 28
    Condition: Systemic Lupus Erythematosus 4 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: None
    I am: n
    I have:
    Systemic Lupus Erythematosus

    Neutral

    added an InstantMe for Mar 17, 2013 Mar 17, 2013 10:23PM

    ok...i'm going to vent alittle....i'm tired of feeling like noone cares and noone really wants to hear what i have to say about anything anymore...the one person i could trust broke that trust so now i'm alone in once again...i'm getting use to being alone but at the same time i just want someone to be there with me. and at times i think to myself im never going to find that one guy that would never understand what i go through or what happens to me. i dnt want people to feel sorry for me i just want them to understand.

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 45899-thumb

      thanks i hope so...just been through alot and when he broke the trust its like my world went upside down.....havent been able to talk to anyone like that before idk i guess it was karma for whatever i did wrong before. emoticon sad

      about 2 months ago
  2. 45899-thumb
    daisygirl2mil
    Data Quality: 1 star
    • Sex: F
    • Age: 28
    Condition: Systemic Lupus Erythematosus 4 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: None
    I am: n
    I have:
    Systemic Lupus Erythematosus

    Neutral

    added an InstantMe for Feb 25, 2013 Feb 25, 2013 4:35PM

    went out of town for a cheerleading comp. this past weekend and i've over done it hips are killing me the steroids shot did not work on my left hip....oh well time to rest so i can work

    1 comment from other members. Only showing public users' comments. Sign up to see all comments!
    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Good

      added an InstantMe for Feb 21, 2013 Feb 21, 2013 9:14AM

      a couple of weeks ago i had bilateral hip injections and they seem to help but the cold is not getting any warmer here and it needs to so i can walk with out pain....but overall its been pretty good week

      3 comments from other members. Only showing public users' comments. Sign up to see all comments!
      • 45899-thumb

        thanks i'm trying to hang in there but it seems like when something starts going right something else starts to go wrong

        about 3 months ago
    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Good

      added an InstantMe for Jan 30, 2013 Jan 30, 2013 4:18PM

      been feeling ok the last couple of days alot of stress on me and i hate to say it but the vit.d has helped it......along with the pain meds emoticon smile

    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Bad

      added an InstantMe for Jan 22, 2013 Jan 22, 2013 10:54PM

      went to the doc today and my liver count is high like three times what its suppose to be so he redrew the labs and waiting to see if its right and if its correct i will have to go see a GI doctor to see why this is happening....i cant catch a flippin break!

      4 comments from other members. Only showing public users' comments. Sign up to see all comments!
      • 45899-thumb

        well its normal now he thinks i had a gallstone but i think i would feel it...but he said "if you feel any pain go to a GI doctor" i'm like i dnt have any pain in my stomach only in my joints and back! and of course my vit. d is low so 4000 units of vit d a day

        about 4 months ago
      • 45899-thumb

        yeah me too

        about 4 months ago
    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Neutral

      added an InstantMe for Jan 16, 2013 Jan 16, 2013 4:04PM

      this weather has been awful! i'm tired of the cold rainning weather my joints can not take it anymore...cant wait to see him next week!!!

    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Good

      added an InstantMe for Jan 11, 2013 Jan 11, 2013 1:13PM

      after being on the phone with the insurance companies and everyone else i was approve for a 9000 copay assistant for infusion and now i just wait for my card and called them and then i set up my appt and get started again...emoticon smile

      4 comments from other members. Only showing public users' comments. Sign up to see all comments!
      • 45899-thumb

        yeah i was getting really annoyed and hopeless

        about 4 months ago
      • 45899-thumb

        Thanks emoticon smile its hard to believe what we all have to go through with the insurance companies

        about 4 months ago
    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Neutral

      added an InstantMe for Jan 8, 2013 Jan 08, 2013 12:18AM

      looks like i'll be looking for a new dr and a new drug since my insurance changed for the worst and now i feel like i have to start all over!

    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Very bad

      added an InstantMe for Jan 3, 2013 Jan 03, 2013 2:59PM

      nothing can be easy can it? insurance is causing me to get mad and very depressed the treatment i'm on benlysta isnt cover under the medinice part but cover under the medical part but how much do they cover? noone flippin knows i had to reschedule my treatment for friday to see if it covers anything and this is bull bc this helps and it works better then some of the other drugs i've been on!

      5 comments from other members. Only showing public users' comments. Sign up to see all comments!
      • 45899-thumb

        well the drug company called me and said for my first treatment of the year it will cost alittle over 1000 dollars and every month its 500 dollars. i dont understand why we had to change insurance....i guess back to the drawing board on a drug besides prednisone

        about 4 months ago
      • 45899-thumb

        Well...Idk but I know this has cause me to stress so bad I can't turn my neck for two days now

        about 4 months ago
    • 45899-thumb
      daisygirl2mil
      Data Quality: 1 star
      • Sex: F
      • Age: 28
      Condition: Systemic Lupus Erythematosus 4 additional condition(s)
      Quality of Life:
      • Mental: Moderate
      • Physical: None
      I am: n
      I have:
      Systemic Lupus Erythematosus

      Neutral

      added an InstantMe for Jan 3, 2013 Jan 03, 2013 9:10AM

      some people really know how to make you feel bad about your self.....its sad knowing they get a kick out of it

      1 comment from other members. Only showing public users' comments. Sign up to see all comments!
      • 45899-thumb
        daisygirl2mil
        Data Quality: 1 star
        • Sex: F
        • Age: 28
        Condition: Systemic Lupus Erythematosus 4 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: None
        I am: n
        I have:
        Systemic Lupus Erythematosus

        Neutral

        added an InstantMe for Jan 1, 2013 Jan 01, 2013 12:00PM

        its a new day and new year hopefully and new insurance god i hope it doesnt break me

      • 45899-thumb
        daisygirl2mil
        Data Quality: 1 star
        • Sex: F
        • Age: 28
        Condition: Systemic Lupus Erythematosus 4 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: None
        I am: n
        I have:
        Systemic Lupus Erythematosus

        Bad

        added an InstantMe for Dec 27, 2012 Dec 27, 2012 10:18AM

        having a major problem staying awake, is there anything my doctor can give me

        4 comments from other members. Only showing public users' comments. Sign up to see all comments!
        • 45899-thumb

          i would like to try it but i dont want to seem like a drug seeker when i go to the doctor....so how do i ask him

          about 5 months ago
        • 45899-thumb

          I trust my doctor and he knows me and how I do my medications so ill ask next time I see him

          about 5 months ago
      • 45899-thumb
        daisygirl2mil
        Data Quality: 1 star
        • Sex: F
        • Age: 28
        Condition: Systemic Lupus Erythematosus 4 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: None
        I am: n
        I have:
        Systemic Lupus Erythematosus

        Bad

        added an InstantMe for Dec 15, 2012 Dec 15, 2012 2:00AM

        ok.....i've been depressed from lupus before but this is kicker i cant seem to kick this depression and its driving me nuts, i thought visiting my mom back in home would help but i hasnt.....nothing seems to be working right now and i hate this feeling..emoticon sad

        10 comments from other members. Only showing public users' comments. Sign up to see all comments!
        • 45899-thumb

          thanks there was a shooting at my work yesterday on my floor but thank god i wasnt there its just hard there

          about 5 months ago
        • 45899-thumb

          thanks i'm trying just awfully hard

          about 5 months ago
        • 45899-thumb

          then early sunday morning someone shot a window out on the same floor....i just dont understand people!

          about 5 months ago
        • 45899-thumb

          i've tired every medication too and nothing seems to work but you got to keep going.......im going back to work tonight since the shooting and i'm not going to lie i'm kinda scared!!!

          about 5 months ago
      • 45899-thumb
        daisygirl2mil
        Data Quality: 1 star
        • Sex: F
        • Age: 28
        Condition: Systemic Lupus Erythematosus 4 additional condition(s)
        Quality of Life:
        • Mental: Moderate
        • Physical: None
        I am: n
        I have:
        Systemic Lupus Erythematosus

        Bad

        added an InstantMe for Nov 29, 2012 Nov 29, 2012 9:23AM

        This has to be the worst day ever I feel like my joints are beating itself up hurt so flippin bad

        1 comment from other members. Only showing public users' comments. Sign up to see all comments!
        • 45899-thumb
          daisygirl2mil
          Data Quality: 1 star
          • Sex: F
          • Age: 28
          Condition: Systemic Lupus Erythematosus 4 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: None
          I am: n
          I have:
          Systemic Lupus Erythematosus

          Neutral

          added an InstantMe for Nov 27, 2012 Nov 27, 2012 12:48PM

          So went to the Orthopedic doc today gotta get a MRI done of my knee today at 430 to see if my cartilage is tore if it is then back to surgery for my knee and hip hey atleast it on my left side both of them.

          4 comments from other members. Only showing public users' comments. Sign up to see all comments!
          • 45899-thumb

            well they called me today and told me my ANLLE is OK even though my ankle has nothing yo do with my knee...so I'm gonna call in The morning and ask to talk to the doc and ask her bc we didn't even do a MRI of my ankle

            about 6 months ago
        • 45899-thumb
          daisygirl2mil
          Data Quality: 1 star
          • Sex: F
          • Age: 28
          Condition: Systemic Lupus Erythematosus 4 additional condition(s)
          Quality of Life:
          • Mental: Moderate
          • Physical: None
          I am: n
          I have:
          Systemic Lupus Erythematosus

          Neutral

          added an InstantMe for Nov 26, 2012 Nov 26, 2012 1:18AM

          Oh how I can't wait for Tuesday to go see the Orthopedic doc about my thumb. But as the thumb was healing my knee did something weird and now I can't really bend in...
          One thing after the othe

          1 comment from other members. Only showing public users' comments. Sign up to see all comments!
          • 45899-thumb
            daisygirl2mil
            Data Quality: 1 star
            • Sex: F
            • Age: 28
            Condition: Systemic Lupus Erythematosus 4 additional condition(s)
            Quality of Life:
            • Mental: Moderate
            • Physical: None
            I am: n
            I have:
            Systemic Lupus Erythematosus

            Very bad

            added an InstantMe for Nov 24, 2012 Nov 24, 2012 10:57PM

            so tired of this cold weather killing my joints my hips and knees are killing me!!

          • 45899-thumb
            daisygirl2mil
            Data Quality: 1 star
            • Sex: F
            • Age: 28
            Condition: Systemic Lupus Erythematosus 4 additional condition(s)
            Quality of Life:
            • Mental: Moderate
            • Physical: None
            I am: n
            I have:
            Systemic Lupus Erythematosus

            Neutral

            added an InstantMe for Nov 22, 2012 Nov 22, 2012 7:19PM

            Got a question can lupus or prednisone affect the muscle and legaments? Bc I'm pretty site that I tore my legament in my knee......

          • 45899-thumb
            daisygirl2mil
            Data Quality: 1 star
            • Sex: F
            • Age: 28
            Condition: Systemic Lupus Erythematosus 4 additional condition(s)
            Quality of Life:
            • Mental: Moderate
            • Physical: None
            I am: n
            I have:
            Systemic Lupus Erythematosus

            Bad

            added an InstantMe for Nov 19, 2012 Nov 19, 2012 4:37PM

            I'm in so much pain and nothing is helping it hurts to walk it hurts to do anything. I wish I could just fix it.

          • 45899-thumb
            daisygirl2mil
            Data Quality: 1 star
            • Sex: F
            • Age: 28
            Condition: Systemic Lupus Erythematosus 4 additional condition(s)
            Quality of Life:
            • Mental: Moderate
            • Physical: None
            I am: n
            I have:
            Systemic Lupus Erythematosus

            Neutral

            added an InstantMe for Nov 16, 2012 Nov 16, 2012 10:04AM

            After working three night straight 12hr shifts and helping friends paint my body feels like its ready to shut down. I twisted my knee I can't bend it and I dnt feel like going to.the Orthopedic doc bc they already think I'm being abuse bc of my broken arm needed hip surgery and need the other one done thumb out of place Nd then this....ugh gotta love lupus

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