mountainrain's Journal

mountainrain: Sex: M; Data Quality: 2 stars; ALS: 4 yrs; Bi-Pap Wheelchair; Bulbar: mild; Arms: moderate; Chest: moderate; Legs: moderate

mountainrain: Male, 55 years; Westminster, CO

Primary Condition: ALS
First symptom: Sep 2007
Diagnosis: Jun 2008

2 stars
mountainrain lost a star • May 22, 2012
Nice work! One more star and you get a PLM t-shirt!
Weight

154 lb

BMI

22.7
mountainrain updated hisyour weight for Apr 25, 2012 • Apr 25, 2012
Is there anything in particular that influenced this weight?
3 stars
mountainrain earned a star! • Apr 25, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
mountainrain lost a star • Apr 14, 2012
Nice work! One more star and you get a PLM t-shirt!
New evaluation

Stair lift Treatment Evaluation
- Efficacy for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Never
- Burden: Not at all
mountainrain added a treatment evaluation for Stair lift from Mar 15, 2011 • Apr 02, 2012
Stopped treatment

Stair lift
- Stopped: Mar 15, 2011
- Reason: Other
mountainrain stopped taking the treatment Stair lift • Apr 02, 2012
What else would you like to share about stopping this treatment?
Added treatment

Stair lift
- Started: Apr 16, 2009
- Dosage: 1 other daily
- Purpose: ALS (Amyotrophic Lateral Sclerosis)
mountainrain added the treatment Stair lift • Apr 02, 2012
What else would you like to share about this treatment?
Added

Symptom Update
- severe Staggering walk
- mild Neck pain
- none Insomnia
- severe Inability to walk
- none Cramps
- none better mood and fatigue management
- mild Spasms in jaw
- moderate Loss of manual dexterity
- none Excess saliva
- none Excessive yawning
- moderate Difficulty turning over or moving in bed
- none Anxious mood
- none Weakness in legs
- moderate Loss of coordination
- none Falls
- none Emotional lability
- none Headaches
- mild Fingers curl
- none Fatigue
- mild Choking on food
- none Urinary urgency
- mild Pain
- mild Coughing while drinking
- mild Claw-like cramps in hands
- mild Weakness in neck (head drop)
- severe Walking difficult without aid
- mild Stiffness/Spasticity
- mild Coughing while eating
- mild Difficulty speaking (dysarthria)
- mild Choking on liquids
- severe Balance problems
- severe Walking problems
- mild Slurred speech
- severe Loss of balance
- none Fasciculations
- none Uncontrollable laughter
- moderate Foot drop
- moderate Difficulty standing (ie from floor, sitting)
- none Depressed mood
- severe Swollen feet
- mild Stiffness in neck
- mild Difficulty projecting voice
- mild Constipation
- See more
mountainrain updated hisyour symptoms for Mar 17, 2012 • Mar 17, 2012
What else would you like to share about these symptoms?
3 stars
mountainrain earned a star! • Mar 17, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
mountainrain lost a star • Mar 15, 2012
Nice work! One more star and you get a PLM t-shirt!
FRS

18
- mild Head
- moderate Arms
- moderate Torso
- moderate Legs
mountainrain completed the FRS survey for Feb 22, 2012 • Feb 22, 2012
What sort of things are making your ALS symptoms worse?
FVC

31%

mountainrain completed the FVC survey for Feb 22, 2012 • Feb 22, 2012
What sort of things are making your ALS symptoms worse?
3 stars
mountainrain earned a star! • Feb 02, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
mountainrain lost a star • Feb 01, 2012
Check out your stars page to see how to get your stars back!
Weight

154 lb

BMI

22.7
mountainrain updated hisyour weight for Jan 15, 2012 • Jan 15, 2012
Is there anything in particular that influenced this weight?
FRS

24
- mild Head
- mild Arms
- mild Torso
- moderate Legs
mountainrain completed the FRS survey for Dec 16, 2011 • Dec 16, 2011
Congratulations, your FRS is higher. What sort of things are helping your ALS symptoms?
FVC

33%

mountainrain completed the FVC survey for Dec 16, 2011 • Dec 16, 2011
What sort of things are making your ALS symptoms worse?
Weight

154 lb

BMI

22.7
mountainrain updated hisyour weight for Dec 16, 2011 • Dec 16, 2011
Is there anything in particular that influenced this weight increase?
Added

Symptom Update
- severe Staggering walk
- none Neck pain
- none Insomnia
- severe Inability to walk
- none Cramps
- none Spasms in jaw
- moderate Loss of manual dexterity
- none Excess saliva
- none Excessive yawning
- moderate Difficulty turning over or moving in bed
- none Anxious mood
- moderate Weakness in legs
- moderate Loss of coordination
- severe Falls
- none Emotional lability
- none Headaches
- mild Fingers curl
- none Fatigue
- mild Choking on food
- none Urinary urgency
- none Pain
- mild Coughing while drinking
- mild Claw-like cramps in hands
- mild Weakness in neck (head drop)
- severe Walking difficult without aid
- none Stiffness/Spasticity
- mild Coughing while eating
- mild Difficulty speaking (dysarthria)
- mild Choking on liquids
- severe Balance problems
- severe Walking problems
- mild Slurred speech
- moderate Loss of balance
- none Fasciculations
- none Uncontrollable laughter
- mild Foot drop
- severe Difficulty standing (ie from floor, sitting)
- none Depressed mood
- moderate Swollen feet
- none Stiffness in neck
- mild Difficulty projecting voice
- mild Constipation
- See more
mountainrain updated hisyour symptoms for Dec 16, 2011 • Dec 16, 2011
What else would you like to share about these symptoms?
3 stars
mountainrain earned a star! • Dec 16, 2011
Congrats! Did you know 3 star members can get a free PLM t-shirt?
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