mountainrain's Journal

mountainrain: Sex: M; Data Quality: 2 stars; ALS: 5 yrs; Bi-Pap Wheelchair Feeding tube; Bulbar: mild; Arms: moderate; Chest: moderate; Legs: moderate

mountainrain: Male, 56 years; Westminster, CO

Primary Condition: ALS

First symptom: Sep 2007
Diagnosis: Jun 2008

mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
mountainrain lost a star Jun 17, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Sep 1, 2007
- Diagnosis: Jun 1, 2008
mountainrain updated the condition ALS (Amyotrophic Lateral Sclerosis) Jun 09, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Feeding Tube
- - Started: Apr 11, 2011
  - Current Dosage: daily
- Purpose: better mood and fatigue management
mountainrain updated the treatment Feeding Tube Jun 09, 2013
- Added
  - Started: Apr 11, 2011
  - Dosage: daily
  - Purpose: better mood and fatigue management
  - Apr 11, 2011
- Changed Dosage
  - Dosage: daily
  - Mar 01, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- moderate Weakness in neck (head drop)
- moderate Weakness in legs
- severe Walking problems
- severe Walking difficult without aid
- none Urinary urgency
- none Uncontrollable laughter
- mild Swollen feet
- mild Stiffness/Spasticity
- none Stiffness in neck
- severe Staggering walk
- mild Spasms in jaw
- mild Slurred speech
- none Pain
- severe Neck pain
- severe Loss of manual dexterity
- severe Loss of coordination
- none Loss of balance
- none Insomnia
- none Inability to walk
- none Headaches
- none Foot drop
- none Fingers curl
- none Fatigue
- none Fasciculations
- none Falls
- none Excess saliva
- none Excessive yawning
- severe Emotional lability
- severe Difficulty turning over or moving in bed
- severe Difficulty standing
- mild Difficulty speaking (dysarthria)
- mild Difficulty projecting voice
- none Depressed mood
- none Cramps
- none Coughing while eating
- mild Coughing while drinking
- mild Constipation
- none Claw-like cramps in hands
- mild Choking on liquids
- none Choking on food
- none better mood and fatigue management
- mild Balance problems
- none Anxious mood
- See more
mountainrain updated his symptoms for Jun 9, 2013 Jun 09, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
mountainrain earned a star! Jun 09, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
mountainrain lost a star Apr 20, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

145 lb BMI: 21.4
mountainrain updated his weight for Apr 11, 2013 Apr 11, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

FVC: 21%

mountainrain completed the FVC survey for Apr 11, 2013 Apr 11, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- mild Weakness in neck (head drop)
- mild Weakness in legs
- severe Walking problems
- severe Walking difficult without aid
- none Urinary urgency
- none Uncontrollable laughter
- mild Swollen feet
- none Stiffness/Spasticity
- none Stiffness in neck
- severe Staggering walk
- none Spasms in jaw
- mild Slurred speech
- none Pain
- none Neck pain
- moderate Loss of manual dexterity
- severe Loss of coordination
- severe Loss of balance
- severe Insomnia
- severe Inability to walk
- none Headaches
- mild Foot drop
- mild Fingers curl
- none Fatigue
- none Fasciculations
- none Falls
- none Excess saliva
- none Excessive yawning
- none Emotional lability
- moderate Difficulty turning over or moving in bed
- moderate Difficulty standing
- mild Difficulty speaking (dysarthria)
- mild Difficulty projecting voice
- none Depressed mood
- none Cramps
- mild Coughing while eating
- mild Coughing while drinking
- mild Constipation
- mild Claw-like cramps in hands
- mild Choking on liquids
- mild Choking on food
- none better mood and fatigue management
- severe Balance problems
- none Anxious mood
- See more
mountainrain updated his symptoms for Apr 11, 2013 Apr 11, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
mountainrain added an InstantMe for Apr 11, 2013 Apr 11, 2013 3:23PM
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
mountainrain earned a star! Apr 11, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
mountainrain lost a star Apr 01, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
FRS: 19
- mild Head
- moderate Arms
- moderate Torso
- moderate Legs
mountainrain completed the FRS survey for Mar 19, 2013 Mar 19, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
mountainrain earned a star! Mar 19, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
mountainrain lost a star Feb 21, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
QOL
- Best Social
- Best Mental
- Bad Physical
mountainrain completed the QOL survey for Jan 20, 2013 Jan 20, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- mild Weakness in neck (head drop)
- mild Weakness in legs
- severe Walking problems
- severe Walking difficult without aid
- none Urinary urgency
- none Uncontrollable laughter
- moderate Stiffness/Spasticity
- none Stiffness in neck
- severe Staggering walk
- none Spasms in jaw
- mild Slurred speech
- none Pain
- none Neck pain
- moderate Loss of manual dexterity
- moderate Loss of coordination
- severe Loss of balance
- severe Insomnia
- severe Inability to walk
- none Headaches
- moderate Foot drop
- mild Fingers curl
- none Fatigue
- none Fasciculations
- none Falls
- none Excess saliva
- none Excessive yawning
- none Emotional lability
- severe Difficulty turning over or moving in bed
- moderate Difficulty standing
- mild Difficulty speaking (dysarthria)
- mild Difficulty projecting voice
- none Depressed mood
- none Cramps
- mild Coughing while eating
- mild Coughing while drinking
- moderate Constipation
- moderate Claw-like cramps in hands
- mild Choking on liquids
- mild Choking on food
- none better mood and fatigue management
- moderate Balance problems
- none Anxious mood
- See more
mountainrain updated his symptoms for Jan 20, 2013 Jan 20, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
mountainrain earned a star! Jan 20, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
mountainrain lost a star Jan 19, 2013
mountainrain

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

149 lb BMI: 22.0
mountainrain updated his weight for Jan 1, 2013 Jan 01, 2013
Show more

About mountainrain

ALS (Amyotrophic Lateral Sclerosis)

Feeding Tube

Symptom Update

145 lb BMI: 21.4

FVC: 21%

Symptom Update

Very good

FRS: 19

QOL

Symptom Update

149 lb BMI: 22.0