- muskie man
- Sex: M
- Data Quality: 2 stars
- ALS: 5 yrs
- Bi-Pap
- Bulbar: mild
- Arms: mild
- Chest: moderate
- Legs: moderate
- muskie man
- Male, 53 years
- Ft. Wayne, IN
- Primary Condition
- ALS
- First symptom
- Dec 2006
- Diagnosis
- Jan 2008
About muskie man
I am a male age 49. I have a wonderful,supportive wife, 3 kids, and 2 grandchildren. I adore them all. I am the third member of my family to have ALS. My mother and brother both lived 5 years after their diagnosis. The family has the familial sod1 strain. I just finished a 4 month trial by TDI. I am taking 100 mg a day.My dosage started at 12.5mg and went up slightly from there until i reached 100mg I am very encouraged by my reactions to this medicine. I have a family history that should give me very reliable tract on how this drug is working.
ALS Public Registry
- Profile Activity
- 5189 Views
Member since:
Jun 11, 2008
Last Login
Apr 25, 2012