kenny a's Journal

kenny a: Sex: M; Data Quality: 3 stars; ALS: 10 yrs; Ventilator Wheelchair Feeding tube; Bulbar: moderate; Arms: severe; Chest: moderate; Legs: severe

kenny a: Male, 40 years; Hazelwood , MO

Primary Condition: ALS
First symptom: Feb 2002
Diagnosis: Feb 2003

FVC

18%

kenny a completed the FVC survey for May 21, 2012 • May 21, 2012
Congratulations, your FVC is higher. What sort of things are helping your ALS symptoms?
Weight

223 lb

BMI

31.1
kenny a updated hisyour weight for May 21, 2012 • May 21, 2012
Is there anything in particular that influenced this weight decrease?
Updated outcome

QOL
- Good Social
- Good Mental
- Worst Physical
kenny a completed the QOL survey for May 21, 2012 • May 21, 2012
Your Quality of Life is improving! What sort of things are making it better?
FRS

11
- moderate Head
- severe Arms
- moderate Torso
- severe Legs
kenny a completed the FRS survey for May 21, 2012 • May 21, 2012
What else would you like to share about the impact of ALS on your life?
InstantMe

Good
kenny a added an InstantMe for May 21, 2012 • May 21, 2012 3:19PM
What's making you feel good?
Added

Symptom Update
- moderate Fasciculations
- moderate Breathing difficulty
- mild Heightened sense of smell (hyperosmia)
- mild Eyelid twitching (fasciculations)
- moderate Excess mucus
- moderate Dry mouth at night
- moderate Depressed mood
- severe Weakness in arms
- severe Slurred speech
- severe Loss of manual dexterity
- moderate Excessive yawning
- mild Constipation
- mild Light sensitivity (photophobia)
- moderate Insomnia
- moderate Ineffective cough
- moderate Gag response abnormal
- mild Cold feet
- severe Foot drop
- moderate Fingers curl
- moderate Burning sensation in eyes in morning
- severe Balance problems
- mild Urinary urgency
- mild Excess saliva
- moderate Choking on food
- moderate Biting inner lip
- severe Shortness of breath (dyspnea)
- mild Nausea
- moderate Coughing while drinking
- mild Anxious mood
- moderate Weakness in neck (head drop)
- mild Eyes water (tearing)
- severe Emotional lability
- moderate Coughing while eating
- mild Fatigue
- severe Difficulty speaking (dysarthria)
- mild Cold hands
- moderate Choking on liquids
- severe Toe curling
- moderate Pain
- severe Inability to manipulate tongue
- severe Atrophy of hand muscles
- severe Stiffness/Spasticity
- mild Burning sensation in eyes
- severe Atrophy of tongue muscles
- moderate Atrophy of thigh muscles
- See more
kenny a updated hisyour symptoms for May 21, 2012 • May 21, 2012
What else would you like to share about these symptoms?
3 stars
kenny a earned a star! • May 21, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
kenny a lost a star • Apr 11, 2012
Nice work! One more star and you get a PLM t-shirt!
InstantMe

Good
kenny a added an InstantMe for Apr 6, 2012 • Apr 06, 2012 5:26PM
What's making you feel good?
InstantMe

Good
kenny a added an InstantMe for Apr 2, 2012 • Apr 02, 2012 4:51PM
What's making you feel good?
InstantMe

Neutral
kenny a added an InstantMe for Mar 31, 2012 • Mar 31, 2012 11:26AM
What else would you like to share about this InstantMe?
InstantMe

Good
kenny a added an InstantMe for Mar 26, 2012 • Mar 26, 2012 4:37PM
What's making you feel good?
Updated outcome

QOL
- Good Social
- Good Mental
- Worst Physical
kenny a completed the QOL survey for Mar 19, 2012 • Mar 19, 2012
What sort of things are negatively affecting your Quality of Life?
FVC

7%

kenny a completed the FVC survey for Mar 17, 2012 • Mar 17, 2012
What else would you like to share about the impact of ALS on your life?
InstantMe

Good
kenny a added an InstantMe for Mar 19, 2012 • Mar 19, 2012 12:01PM
What's making you feel good?
InstantMe

Good
kenny a added an InstantMe for Mar 17, 2012 • Mar 17, 2012 1:11PM
What's making you feel good?
Added

Symptom Update
- moderate Fasciculations
- moderate Breathing difficulty
- mild Heightened sense of smell (hyperosmia)
- none Eyelid twitching (fasciculations)
- moderate Excess mucus
- moderate Dry mouth at night
- mild Depressed mood
- severe Weakness in arms
- severe Slurred speech
- severe Loss of manual dexterity
- mild Excessive yawning
- moderate Constipation
- moderate Light sensitivity (photophobia)
- severe Insomnia
- moderate Ineffective cough
- moderate Gag response abnormal
- mild Cold feet
- severe Foot drop
- moderate Fingers curl
- moderate Burning sensation in eyes in morning
- severe Balance problems
- moderate Urinary urgency
- mild Excess saliva
- moderate Choking on food
- mild Biting inner lip
- moderate Shortness of breath (dyspnea)
- mild Nausea
- moderate Coughing while drinking
- mild Anxious mood
- moderate Weakness in neck (head drop)
- mild Eyes water (tearing)
- moderate Emotional lability
- moderate Coughing while eating
- mild Fatigue
- severe Difficulty speaking (dysarthria)
- moderate Cold hands
- moderate Choking on liquids
- moderate Toe curling
- moderate Pain
- severe Inability to manipulate tongue
- severe Atrophy of hand muscles
- severe Stiffness/Spasticity
- mild Burning sensation in eyes
- severe Atrophy of tongue muscles
- moderate Atrophy of thigh muscles
- See more
kenny a updated hisyour symptoms for Mar 12, 2012 • Mar 12, 2012
What else would you like to share about these symptoms?
InstantMe

Good
kenny a added an InstantMe for Mar 12, 2012 • Mar 12, 2012 3:57PM
What's making you feel good?
InstantMe

Good
kenny a added an InstantMe for Mar 11, 2012 • Mar 11, 2012 2:54PM
What's making you feel good?
InstantMe

Good
kenny a added an InstantMe for Feb 19, 2012 • Feb 19, 2012 3:09PM
What's making you feel good?

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