- queenbeefor3
- Sex: F
- Data Quality: 2 stars
- ALS: 10 yrs
- Wheelchair
- Bulbar: none
- Arms: moderate
- Chest: none
- Legs: severe
- queenbeefor3
- Female, 48 years
- Castle Rock, CO
- Primary Condition
- ALS
- First symptom
- Jan 2002
- Diagnosis
- Jul 2003
About queenbeefor3
I was diagnosed with ALS in 7/03, 4 months before my 40th birthday. The symptoms first appeared 1/02 with cramping of my left foot and calf. Over the years, I have utilized Riletuk, multiple supplements, essential oils, an organic diet, and abstained from alcohol. My current regiment includes the use of Paxil, Quercetin, N-Acetyl Cysteine (NAC), Acetyl-L Carnitine (ALC), and edible THC as needed. I would recommend a Tempur-Pedic adjustable bed which I have found to comfortably accomodate 22 hours of bedrest, prevent bed sores and circulation issues. Check me out on Facebook:)
ALS Public Registry
- Profile Activity
- 11675 Views
More About queenbeefor3
My husband and I celebrated our 25th anniversary April 2010. We have three beautiful children...two sons ages 23 & 21 and daughter age 15...the kids were 16, 14 & 6 when our family received the ALS diagnosis.It has been quite a journey these past eight years ...
We've been able to sustain our peace and happiness with acceptance of what is, love and support from family, friends, Dr. Quan from UCH and ALSA..