- Never played with toys, AT ALL! until about 3 months ago. Unable to recognize objects in a mass. Related to Sensory Processing Disorder.
- At about 1 yrs. old noticed that his established early vocabular was replaced by his extreme silence. As others about his age babbled often and started to say words, he altogether lost language and just making verbal sounds.
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- PhoenixCarberry
- Male, 3 years
- TX, United States
This account is maintained by a caregiver.
-
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry lost a star Jun 29, 2012
0 stars
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry updated the condition Developmental Delay Apr 11, 2012Developmental Delay
- First symptom:
- Diagnosis: ?
-
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added an InstantMe for Apr 12, 2012 Apr 12, 2012 8:58PMBad
- 2 seizures during nap time.
- Refusing to play outside after mid morning thru out rest of the day assuming SPD complication: loud Cars passing (audio trigger), bright sun.
- Cold or bad allergies.
- Ate solids = apple jacks, 2 pieces of sasauge, piece of angle food cake.
Mainly drinking vanilla hemp milk, whole milk and protein vanilla shakes. -
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry updated the condition Sensory Processing Disorder Apr 11, 2012Sensory Processing Disorder
- First symptom:
- Diagnosis: ?
Doing speech therapy and OT
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry joined PatientsLikeMe Apr 11, 2012Joined PatientsLikeMe
Stream line health care status with providers to help monitor improvements or back steps during transitions during new applications of different treatment
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry completed the Seizure Meter for the week of Apr 8-14, 2012 Apr 11, 2012Seizure Meter
- 22 seizures
Type(s): 2 absence - severity: 3, 20 myoclonic - severity: 5
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Pushing Weighted Objects Apr 12, 2012Pushing Weighted Objects
- Started: ?
- Dosage: ?
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Purpose:
-
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Log rolls Apr 12, 2012Log rolls
- Started: ?
- Dosage: ?
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Purpose:
-
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Body Brushing Therapy Apr 12, 2012Body Brushing Therapy
- Started: ?
- Dosage: ?
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Purpose:
-
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Joint Compression Therapy Apr 12, 2012Joint Compression Therapy
- Started: ?
- Dosage: ?
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Purpose:
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added an InstantMe for Apr 11, 2012 Apr 11, 2012 3:21PMBad
SPD & Cold:
Stuffy nose, head hurts/sinus pressure.
pretty triggered SPD wise since Saturday. Today: The sensation of using kleenex is upsetting and uncomfortable. As is the sensation of a snotty nose. light is troublesome. Sound sensitive. The dog barking sends him into panic. -
- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added an InstantMe for Apr 11, 2012 Apr 11, 2012 3:19PMBad
1 small myoclonic seizure during nap.
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry stopped taking the treatment Ranitidine Apr 11, 2012Stopped: Ranitidine
- Stopped: Jan 1, 2012
- Reason: Other
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsySensory Integration Therapy Treatment Evaluation
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Perceived effectiveness for Sensory dysfunction:
Slight
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Side Effects:
None
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Adherence:
Always
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Burden:
Very
PhoenixCarberry added a treatment evaluation for Sensory Integration Therapy Apr 11, 2012- Advice & Tips
- 1] Making something out of nothing. There is always an opprotunity to sooth triggers. Stimulate safely and destimulate over stimulation where hyper sensitive. 2] Yes, there is shocking benefits ONLY if you do the work. the more work the more results. gotta stay educated, keep reading and stay on top of different approaches as to not avoid becoming stagnet. You can NOT hire someone to see your kid an hour a day or a week and think there is change or that its enough. Its a lifestyle/culture change of family, where the real method, evolution, capabilities of child is established and made. 3] Impacts are drastic for us trying to do at home and with the support of ECI programs. But Private is the way to go, provided if you have the resources. On a larger scale going to private care among professionals does not hold a candle to attempting to read DIR therapy how to and other therapies to address SPD complications.
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry stopped taking the treatment Levetiracetam Apr 11, 2012Stopped: Levetiracetam
- Stopped: Feb 6, 2012
- Reason: Side effects too severe
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry updated his weight for Apr 11, 2012 Apr 11, 201229 lb 2 oz
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- PhoenixCarberry
- Data Quality: 0 stars
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- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry completed the QOL survey for Apr 11, 2012 Apr 11, 2012QOL
- Bad Social
- Good Mental
- Bad Physical
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry updated the treatment Pets Emotional Support Apr 11, 2012Pets Emotional Support
- Started: Aug 1, 2011
- Current Dosage: 16 hr daily
- Purpose: General health
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Warm water therapy Apr 11, 2012Warm water therapy
- Started: Apr 11, 2012
- Current Dosage: daily
- Purpose: Overstimulated and Irritability from auditory stimulation
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- PhoenixCarberry
- Data Quality: 0 stars
-
- Sex: M
- Age: 3y
- Duration: 3 yrs
- PRO survey: PRO 0
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
22 seizures62 weeks ago
- I am: b
I have:EpilepsyPhoenixCarberry added the treatment Warm baths Apr 11, 2012Warm baths
- Started: Apr 11, 2012
- Current Dosage: 90 min daily
- Purpose: Overstimulated and Nerve Sensitivity (Pins and needles all over, skin hurts against clothes)
- Show more
