I am using Avonex, my nurse injects it due the lack of grip in my hands.
I got bored being stuck at home all the time and my recent letter from the DWP tells me that I am not being medically reviewed until 2012, therefore I decided that a career change is in order to allow me to eventually work again. I have chosen to study Law, but to get into this degree course I need to gain my entry criteria of a second or third year English course, I have decided to go for the Diploma instead, then onto Law.
I run the Lothians MS Support Group with the two other trustees which covers Edinburgh, West, Mid and East Lothian. Currently I am also the Chairperson, and have hopes to continue supporting other people in our area affected by MS.
5th May 2010: just been diagnosed with another condition, this one is called hydradenitis suppurativa, it is an inflammatory skin disease. As with MS, it has no cure and also no definitive cause! It causes boils Looks like I will end up on long term AB's for their anti-inflammatory action. UPDATE, Things with the boils are under control, to a good extent
23rd Oct 2011 - My neighbour passed away, and I was very moved at her funeral, I ended up on a journey of soul searching. I was, up to the point of the funeral, an Athiest who had some belief in God, but something made me search, something compelled me to reach deep inside my beliefs to a point I ended up contacting a Priest. I am now on the Rights of Christian Initiation for Adults (RCIA) course at my local Roman Catholic Church. The first time I attended Mass I cried through the whole sermon, I don't know if that was my emotional lability caused by my MS or not, but I cried, wept to be more precise. I know that my faith has nothing to do with my conditions (MS and Hidradenitis suppuritiva), but I do feel a weight has been lifted and I am now on the offensive with my health rather than the defensive. I have been given these conditions because I am strong, NOT because I have sinned. I am ready for whatever my health throws at me next!!!