cybele62's Journal

cybele62

Data Quality: 1 star

Sex: F
Age: 51y
Duration: 2 yrs

PRO survey: PRO 0

Quality of Life:

Social: Moderate
Mental: Moderate
Physical: Moderate

0 seizures

53 weeks ago

cybele62: Female, 51 years; Atherton, Lancashire

Primary Condition: Epilepsy and 4 more ▼

First seizure: ?
Diagnosis: Jan 2011

cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
PFRS: 35
- All Fatigue
- Some Sleep
- All Stiffness
- Some Pain
- Moderate External Stress
cybele62 completed the PFRS survey for May 19, 2012 May 19, 2012

need a check on meds. Worried about other health problems
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Neutral
cybele62 added an InstantMe for May 20, 2012 May 20, 2012 3:50AM

up early for brain scan. In bad mood
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Symptom Update
- severe Excessive daytime sleepiness (somnolence)
- severe Pain in lower back
- severe Memory problems
- none Tremor in hands
- none Status epilepticus
- none Insomnia
- mild Depressed mood
- severe Brain fog
- severe Pain
- severe Daytime sleepiness
- severe Fatigue
- none Muscle spasms
- none Anxious mood
- severe Headaches
- moderate Muscle and joint pain
- severe Balance problems
- severe Cognitive Confusion
- severe Problems concentrating
- See more
cybele62 updated her symptoms for May 19, 2012 May 19, 2012

I don't know why I have these so bad all at once
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Bad
cybele62 added an InstantMe for May 19, 2012 May 19, 2012 1:19PM

balance still off, seeing double and back pain. Can't seem to concentrate
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Bad
cybele62 added an InstantMe for May 19, 2012 May 19, 2012 4:57AM

headache, shuffling gait, back pain
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Neutral
cybele62 added an InstantMe for May 18, 2012 May 18, 2012 6:22PM

very tired and confused
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Hospitalization for Cognitive Confusion and Auditory Processing Disorder
- Discharged: May 15, 2012
cybele62 added a hospitalization for Cognitive Confusion and Auditory Processing Disorder May 16, 2012

It was quite scary because I didn't know what was going on, I am awaiting an MR scan because the neurologist thinks some is wrong in the back of my brain after putting me through so many tests
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
128 lb BMI: 18.9
cybele62 updated her weight for May 16, 2012 May 16, 2012

no appetite
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Seizure Meter
- No seizures
cybele62 completed the Seizure Meter for the week of May 13-19, 2012 May 16, 2012

great
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
PFRS: 34
- All Fatigue
- Most Sleep
- Most Stiffness
- Some Pain
- Moderate External Stress
cybele62 completed the PFRS survey for May 16, 2012 May 16, 2012

the steroid inj for my back have worn off and I need a recheck on my Lyrica
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Neutral
cybele62 added an InstantMe for May 17, 2012 May 17, 2012 3:59AM

fibro fog and some hand tremors
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Symptom Update
- severe Cognitive Confusion
cybele62 updated her symptoms for May 14, 2012 May 16, 2012

they are very frightening at times and also they anger me
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Symptom Update
- severe Excessive daytime sleepiness (somnolence)
- severe Pain in lower back
- moderate Memory problems
- moderate Tremor in hands
- none Status epilepticus
- none Insomnia
- mild Depressed mood
- moderate Brain fog
- severe Pain
- severe Daytime sleepiness
- severe Fatigue
- none Muscle spasms
- mild Anxious mood
- moderate Headaches
- moderate Muscle and joint pain
- mild Balance problems
- moderate Problems concentrating
- severe Cognitive Confusion
- See more
cybele62 updated her symptoms for May 13, 2012 May 16, 2012

I am tired of the constant worry if I will have a seizure
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Symptom Update
- severe Excessive daytime sleepiness (somnolence)
- severe Pain in lower back
- severe Memory problems
- moderate Tremor in hands
- none Status epilepticus
- none Insomnia
- none Depressed mood
- severe Brain fog
- severe Pain
- severe Daytime sleepiness
- severe Fatigue
- none Muscle spasms
- moderate Anxious mood
- moderate Headaches
- severe Muscle and joint pain
- severe Balance problems
- severe Cognitive Confusion
- severe Problems concentrating
- See more
cybele62 updated her symptoms for May 15, 2012 May 16, 2012

I have never had so much severe things
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Symptom Update
- severe Excessive daytime sleepiness (somnolence)
- severe Pain in lower back
- severe Memory problems
- severe Tremor in hands
- none Status epilepticus
- none Insomnia
- none Depressed mood
- severe Brain fog
- severe Pain
- severe Daytime sleepiness
- severe Fatigue
- none Muscle spasms
- moderate Anxious mood
- severe Headaches
- severe Muscle and joint pain
- severe Balance problems
- severe Cognitive Confusion
- severe Problems concentrating
- See more
cybele62 updated her symptoms for May 16, 2012 May 16, 2012

so many of these symtoms are disrputing my life
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Neutral
cybele62 added an InstantMe for May 16, 2012 May 16, 2012 3:45AM

hospitalizd for 3 day,confusion tires
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
129 lb BMI: 19.0
cybele62 updated her weight for May 13, 2012 May 13, 2012

no appetite but watching what I do eat
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
QOL
- Good Social
- Best Mental
- Bad Physical
cybele62 completed the QOL survey for May 13, 2012 May 13, 2012

constant pain and trying to do too much at one time. Feeling a bit overwhelmed
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
PFRS: 31
- Most Fatigue
- Some Sleep
- Most Stiffness
- Some Pain
- Moderate External Stress
cybele62 completed the PFRS survey for May 13, 2012 May 13, 2012

trying to do too much. I also need a recheck on my Lyrica, I think
cybele62

Data Quality: 1 star
Sex: F

Age: 51y

Duration: 2 yrs
PRO survey: PRO 0
Quality of Life:

Social: Moderate

Mental: Moderate

Physical: Moderate
0 seizures

53 weeks ago

I am: n
I have:
Epilepsy
Mood Map
- Function
- Distress
- External Stress
- Depression
- Emotional
- Compulsion
- Anxiety
- Mania
cybele62 completed the Mood Map survey for May 13, 2012 May 13, 2012

just too much going on and I feel overwhelmed
Show more

About cybele62

Other Conditions

PFRS: 35

Neutral

Symptom Update

Bad

Bad

Neutral

Hospitalization for Cognitive Confusion and Auditory Processing Disorder

128 lb BMI: 18.9

Seizure Meter

PFRS: 34

Neutral

Symptom Update

Symptom Update

Symptom Update

Symptom Update

Neutral

129 lb BMI: 19.0

QOL

PFRS: 31

Mood Map