janik's Journal

janik: Sex: F; Data Quality: 3 stars; PLS: 17 yrs; Bulbar: none; Arms: mild; Chest: none; Legs: moderate

janik: Female, 62 years; Cedaredge, CO

Primary Condition: PLS and 2 more ▼

First symptom: May 1996
Diagnosis: Sep 1997

janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

Good
janik added an InstantMe for Apr 22, 2013 Apr 22, 2013 7:19PM

sunny warm day after weeks of cold, rain and/or snow. about time!
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

125 lb 8 oz BMI: 19.1
janik updated her weight for Apr 22, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Flaxseed Oil Treatment Evaluation
- Perceived effectiveness for General health: ?Can't tell
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
Cost

< $25 monthly

janik added a treatment evaluation for Flaxseed Oil from Nov 9, 2012 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Mood Map
- Function
- Distress
- External Stress
- Depression
- Emotional
- Compulsion
- Anxiety
- Mania
janik completed the Mood Map survey for Apr 22, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
FRS: 31
- none Head
- mild Arms
- none Torso
- moderate Legs
janik completed the FRS survey for Apr 22, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Symptom Update
- moderate Weakness in legs
- severe Walking problems
- moderate Urinary frequency
- none Sweating
- severe Stiffness/Spasticity
- none Slurred speech
- none Shortness of breath (dyspnea)
- none Panic attacks
- moderate Pain
- mild Nerve pain (neuralgia)
- none Insomnia
- none Heart palpitations
- mild Fatigue
- none Fasciculations
- severe Eye floaters
- none Excess saliva
- moderate Excessive yawning
- mild Emotional lability
- none Dizziness and feeling faint
- none Depressed mood
- none Constipation
- mild Bowel problems
- moderate Balance problems
- none Anxious mood
- See more
janik updated her symptoms for Apr 22, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Vitamin C (ascorbic acid)
- - Started: Jul 16, 1997
  - Current Dosage: 500 mg daily
- Purpose: Support immune health and General health
- View Latest Evaluation
janik updated the treatment Vitamin C (ascorbic acid) Apr 22, 2013
- Added
  - Started: Jul 16, 1997
  - Dosage: 500 mg daily
  - Purpose: Support immune health and General health
  - Jul 16, 1997
- Stopped
  - Date: Jan 11, 1998
  - Reason: Other
  - Jan 11, 1998
- Restarted
  - Dosage: 500 mg daily
  - Jan 12, 1998
- Stopped
  - Date: Dec 31, 2000
  - Reason: Other
  - Dec 31, 2000
- Evaluated
  - View Evaluation
  - Dec 31, 2000
- Restarted
  - Dosage: 500 mg daily
  - Jul 04, 2011
- Stopped
  - Date: May 08, 2012
  - Reason: Other
  - May 08, 2012
- Evaluated
  - View Evaluation
  - May 08, 2012
- Restarted
  - Dosage: 500 mg daily
  - Oct 06, 2012
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Flaxseed Oil
- - Stopped: Nov 09, 2012
  - Reason: Other
  - Started: Sep 15, 1999
  - Last Dosage: daily
- Purpose: General health
- View Latest Evaluation
janik updated the treatment Flaxseed Oil Apr 22, 2013
- Added
  - Started: Sep 15, 1999
  - Dosage: daily
  - Purpose: General health
  - Sep 15, 1999
- Changed Dosage
  - Dosage: daily
  - Feb 02, 2006
- Changed Dosage
  - Dosage: daily
  - Aug 21, 2008
- Evaluated
  - View Evaluation
  - Dec 01, 2008
- Changed Dosage
  - Dosage: daily
  - Feb 17, 2010
- Changed Dosage
  - Dosage: daily
  - Jun 19, 2011
- Stopped
  - Date: Nov 09, 2012
  - Reason: Other
  - Nov 09, 2012
- Evaluated
  - View Evaluation
  - Nov 09, 2012
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Calcium plus Vitamin D
- - Started: Feb 20, 2000
  - Current Dosage: 3 x 315 mg-200 intl units daily
- Purpose: Osteoporosis and General health
- View Latest Evaluation
janik updated the treatment Calcium plus Vitamin D Apr 22, 2013
- Added
  - Started: Feb 20, 2000
  - Dosage: 500 mg-400 intl units daily
  - Purpose: Osteoporosis and General health
  - Feb 20, 2000
- Evaluated
  - View Evaluation
  - Dec 01, 2008
- Changed Dosage
  - Dosage: 1.5 x 500 mg-400 intl units daily
  - Nov 19, 2009
- Changed Dosage
  - Dosage: 3 x 315 mg-200 intl units daily
  - Sep 19, 2011
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

Alanine aminotransferase:

55 U/L

janik added a new Alanine aminotransferase value for Mar 1, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

Aspartate aminotransferase:

42 U/L

janik added a new Aspartate aminotransferase value for Mar 1, 2013 Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
PLS (Primary Lateral Sclerosis)
- First symptom: May 1, 1996
- Diagnosis: Sep 1, 1997
janik updated the condition PLS (Primary Lateral Sclerosis) Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

3 stars
janik earned a star! Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

2 stars
janik lost a star Apr 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

Neutral
janik added an InstantMe for Jan 22, 2013 Jan 22, 2013 12:57PM

Slower & more clumsy but still in good spirits.
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS

126 lb BMI: 19.2
janik updated her weight for Jan 22, 2013 Jan 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
FRS: 31
- none Head
- mild Arms
- none Torso
- moderate Legs
janik completed the FRS survey for Jan 22, 2013 Jan 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Strontium Bone Maker
- - Started: Oct 30, 2012
  - Current Dosage: 340 mg daily
- Purpose: Osteoporosis
janik updated the treatment Strontium Bone Maker Jan 22, 2013
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Tizanidine
- - Started: Aug 5, 2000
  - Current Dosage: 2 mg daily
- Purpose: Stiffness/Spasticity
- View Latest Evaluation
janik updated the treatment Tizanidine Jan 22, 2013
- Added
  - Started: Aug 05, 2000
  - Dosage: 6 mg daily
  - Purpose: Stiffness/Spasticity
  - Aug 05, 2000
- Evaluated
  - View Evaluation
  - Dec 01, 2008
- Changed Dosage
  - Dosage: 4 mg daily
  - Mar 05, 2010
- Changed Dosage
  - Dosage: 2 mg daily
  - Jul 17, 2010
- Changed Dosage
  - Dosage: 2 mg daily
  - Dec 20, 2012
janik

Sex: F

Data Quality: 3 stars

Bulbar: none

Arms: mild

Chest: none

Legs: moderate

I am: g

I have:
PLS
Low Dose Naltrexone (LDN)
- - Started: Aug 20, 2006
  - Current Dosage: 4.5 mg daily
- Purpose: Support immune health
- View Latest Evaluation
janik updated the treatment Low Dose Naltrexone (LDN) Jan 22, 2013
- Added
  - Started: Aug 20, 2006
  - Dosage: 3.5 mg daily
  - Purpose: Other, Support immune health, and PLS (Primary Lateral Sclerosis)
  - Aug 20, 2006
- Evaluated
  - View Evaluation
  - Dec 01, 2008
- Changed Dosage
  - Dosage: 4.5 mg daily
  - Jun 10, 2009
- Evaluated
  - View Evaluation
  - Sep 02, 2009
- Changed Dosage
  - Dosage: 4.5 mg daily
  - Jan 22, 2013
Show more

About janik

Other Conditions

Good

125 lb 8 oz BMI: 19.1

Flaxseed Oil Treatment Evaluation

Mood Map

FRS: 31

Symptom Update

Vitamin C (ascorbic acid)

Flaxseed Oil

Calcium plus Vitamin D

Alanine aminotransferase:

55 U/L

Aspartate aminotransferase:

42 U/L

PLS (Primary Lateral Sclerosis)

Neutral

126 lb BMI: 19.2

FRS: 31

Strontium Bone Maker

Tizanidine

Low Dose Naltrexone (LDN)

About janik

Other Conditions

Good

125 lb 8 oz BMI: 19.1

Flaxseed Oil Treatment Evaluation

Mood Map

FRS: 31

Symptom Update

Vitamin C (ascorbic acid)

Flaxseed Oil

Calcium plus Vitamin D

Alanine aminotransferase: 55 U/L

Aspartate aminotransferase: 42 U/L

PLS (Primary Lateral Sclerosis)

Neutral

126 lb BMI: 19.2

FRS: 31

Strontium Bone Maker

Tizanidine

Low Dose Naltrexone (LDN)

Alanine aminotransferase:

55 U/L

Aspartate aminotransferase:

42 U/L