Madryn's Journal

Madryn: Sex: M; Data Quality: 2 stars; ALS: 5 yrs; Wheelchair Feeding tube; Bulbar: mild; Arms: moderate; Chest: none; Legs: moderate

Madryn: Male, 43 years; Wells, Somerset

Primary Condition: ALS

First symptom: Jul 2007
Diagnosis: Mar 2008

Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 22
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for Sep 4, 2012 Sep 04, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 22
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for Jun 2, 2012 Jun 02, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS

FVC: 58%

Madryn completed the FVC survey for May 17, 2012 Jun 02, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS

139 lb 16 oz BMI: 18.5
Madryn updated his weight for May 17, 2012 May 17, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 24
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for Aug 5, 2011 May 13, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 25
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for May 13, 2012 May 13, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS

Tagged Topic
Madryn added the tag fighting back to Whats the most patronizing thing someone's said to you? I'm making a film and need a killer one liner. May 06, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 24
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for Apr 4, 2012 Apr 04, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS

2 stars
Madryn lost a star Jan 06, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
ALS Phase 3 Study TRO19622 Treatment Evaluation
- Perceived effectiveness for Participate in clinical trial: None
- Side Effects: None
- Adherence: Always
- Burden: A little
Cost

< $25 monthly

Madryn added a treatment evaluation for ALS Phase 3 Study TRO19622 from Dec 28, 2011 Jan 03, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
Stopped: ALS Phase 3 Study TRO19622
- Stopped: Dec 28, 2011
- Reason: Other
Madryn stopped taking the treatment ALS Phase 3 Study TRO19622 Jan 03, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
FRS: 24
- mild Head
- moderate Arms
- none Torso
- moderate Legs
Madryn completed the FRS survey for Jan 3, 2012 Jan 03, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS
Symptom Update
- mild Excessive yawning
- mild Fasciculations
- none Pain in hips
- severe Stiffness/Spasticity
- severe Loss of manual dexterity
- mild Pain
- mild Fatigue
- severe Walking problems
- severe Balance problems
- moderate Emotional lability
- severe Weakness in arms
- mild Excess saliva
- moderate Cramps
- mild Breathing difficulty
- none Insomnia
- severe Atrophy of hand muscles
- mild Constipation
- moderate Depressed mood
- moderate Difficulty speaking (dysarthria)
- severe Weakness in legs
- See more
Madryn updated his symptoms for Jan 3, 2012 Jan 03, 2012
Madryn

Sex: M

Data Quality: 2 stars

Bulbar: mild

Arms: moderate

Chest: none

Legs: moderate

I am: g

I have:
ALS

3 stars
Madryn earned a star! Jan 03, 2012

About Madryn

FRS: 22

FRS: 22

FVC: 58%

139 lb 16 oz BMI: 18.5

FRS: 24

FRS: 25

Tagged Topic

FRS: 24

ALS Phase 3 Study TRO19622 Treatment Evaluation

Stopped: ALS Phase 3 Study TRO19622

FRS: 24

Symptom Update