Madryn
Madryn
Sex: M
Data Quality: 2 stars
ALS: 4 yrs
Wheelchair Feeding tube
Bulbar: mild
Arms: moderate
Chest: none
Legs: moderate
Madryn
Male, 42 years
Wells, Somerset
Primary Condition
ALS
First symptom
Jul 2007
Diagnosis
Mar 2008
See more
  1. Madryn
    Weight
    139 lb 16 oz
    BMI
    18.5
    updated hisyour weight for May 17, 2012 • May 17, 2012
  2. Madryn
    FRS
    24
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
    completed the FRS survey for Aug 5, 2011 • May 13, 2012
  3. Madryn
    FRS
    25
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
    completed the FRS survey for May 13, 2012 • May 13, 2012
  4. Madryn added the tag fighting back to Whats the most patronizing thing someone's said to you? I'm making a film and need a killer one liner. • May 06, 2012
  5. Madryn
    FRS
    24
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
    completed the FRS survey for Apr 4, 2012 • Apr 04, 2012
  6. Madryn
    New evaluation
    ALS Phase 3 Study TRO19622 Treatment Evaluation
    • Efficacy for Participate in clinical trial: Led_efficacy_1Led_defaultLed_defaultLed_defaultNone
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: A littleA littleA littleA littleA little
    added a treatment evaluation for ALS Phase 3 Study TRO19622 from Dec 28, 2011 • Jan 03, 2012
  7. Madryn
    Stopped treatment
    ALS Phase 3 Study TRO19622
    • Stopped: Dec 28, 2011
    • Reason: Other
    stopped taking the treatment ALS Phase 3 Study TRO19622 • Jan 03, 2012
  8. Madryn
    FRS
    24
    • mild Head
    • moderate Arms
    • none Torso
    • moderate Legs
    completed the FRS survey for Jan 3, 2012 • Jan 03, 2012
  9. Madryn
    star earnedstar earnedstar notearned 2 stars
    lost a star • Jan 06, 2012
  10. Madryn
    Added
    Symptom Update
    • severe Weakness in legs
    • moderate Difficulty speaking (dysarthria)
    • moderate Depressed mood
    • mild Constipation
    • severe Atrophy of hand muscles
    • none Insomnia
    • See more
    updated hisyour symptoms for Jan 3, 2012 • Jan 03, 2012
  11. Madryn
    star earnedstar earnedstar earned 3 stars
    earned a star! • Jan 03, 2012