3465-full
Boo Boo
Sex: F
Data Quality: 1 star
ALS: 4 yrs
Bi-Pap Wheelchair Feeding tube
Bulbar: severe
Arms: moderate
Chest: mild
Legs: moderate
Boo Boo
Female, 48 years
Carlisle, Cumbria
Primary Condition
ALS
First symptom
Diagnosis
Deceased
May 01, 2011
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Boo Boo's Low Dose Naltrexone (LDN) is for:

  • hopeful that it slows progression
  • Support immune health
  • ALS

Boo Boo's side effects of Low Dose Naltrexone (LDN):

Boo Boo's Low Dose Naltrexone (LDN) History (Stopped)
Low Dose Naltrexone (LDN) (naltrexone)
2 mg Daily Mar 24 - Apr 09, 2010
4.5 mg Daily Apr 09 - Oct 01, 2010
Stopped Did not seem to work Oct 01, 2010
Evaluations
Date Dosage hopeful that it slows progression Perceived effectiveness Support immune health Perceived effectiveness ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Oct 01, 2010 4.5 mg Daily ? ? ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Apr 09, 2010 2 mg Daily ? ? ? MildMildMildMild AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Oct 01, 2010
Advice & Tips
Give it a try....nothing to lose
Cost
< $25 monthly
Date
Apr 09, 2010
Advice & Tips
I take it at about 11pm to midnight and regularly wake up around 3am for a short time. Seemed to have a drier mouth for a few days but didnt last unfortunately. I make up a solution from a 50mg tablet which is very easy to do and administer.

About Low Dose Naltrexone (LDN) (Prescription Drug)

Naltrexone is FDA approved for alcohol and opioid dependence at 50mg doses. Pilot and preliminary studies of its use in low doses suggest there may be some positive effect for certain conditions. Read more...Click to read more below

Learn more about Low Dose Naltrexone (LDN) in our Low Dose Naltrexone (LDN) Community Report.

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