3406 full
irievibes
Sex: F
Data Quality: 1 star
MS: 16 yrs
Type: Relapsing-Remitting
Sensation: None
Overall: Mild
Cognition: moderate
Vision: mild
Speech: mild
Swallowing: none
Upper limb: moderate
Walking: moderate

irievibes

Female, 36 years
Portland, OR

Primary condition
MS
Type
Relapsing-Remitting
First symptom
Diagnosis
See less

About irievibes

30 year old irie dj diagnosed at 20. Been on Avonex for ten years. Last three years been doing a double dose. I love animals and people (generally) and I have a soft spot for really good cheese.

I was diagnosed ten years ago at the rip age of 20 after a bump to the head.  Tremor began in left side right away then vertigo and loss of coordination. I was a cellist and pianist studying music.  Now, I couldn't play anymore.  FLIP! I managed to graduate college in seven years with many semesters off due to episodes. But, I did it and got a degree in speech communications and learned how to communicate about illness and speak well and freely about it.  I then started a support group in Portland, Or. for people with MS who were 30 and under.  Through this people can realize they are not alone.  Especially at a young age.  It has been running for four years now.  It became people with MS 35 and under and now 40 and under.  Amazing to watch the spirits lifted together.  Newly diagnosed people come and learn that life is not over once you get the diagnosis.

After about five years of anger and sadness of loosing my cello, I realized that, that passion was forever in me and I will always here music.  I began to DJ and swapped my skills from cello to turntables.  Thank god for that.  Music is my passion and forever in my soul.  

I also have done some work for the MS Society and the Myelin Repair Foundation.  I am all about awareness.  I love waking people up to life.  Don't take anything for granted and live in the moment.

 

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Profile: 4,588 views
Comments: 0 updates, 0 for others
Member since: Apr 22, 2008
Last Login Sep 01, 2013