- Cesar Roman
- Sex: M
- Data Quality: 2 stars
- ALS: 5 yrs
- Wheelchair
- Bulbar: mild
- Arms: severe
- Chest: moderate
- Legs: severe
- Cesar Roman
- Male, 49 years
- Lagoa Vermelha-Capão Bonito do Sul, Rio Grande do Sul
- Primary Condition
- ALS
- First symptom
- Feb 2007
- Diagnosis
- Apr 2008
About Cesar Roman
"we hope. we pray.we fight. we trully believe...we are here in BRAZIL praying for Doctors,research, PALS, caregivers, families." But we need let the people know in BRAZIL,specially in the country side , that ALS arrive and give information and more suport to the ALS families..
ALS Public Registry
- Profile Activity
- 9056 Views
- My CareTeam
More About Cesar Roman
I´m 45 year old father of 2 diagnosed with a Sporadic ALS in April 2008.
I´m on Riluzol since february 18, 2008 . That a start point..I Know I have a long way to do with the help from my wife Laura , my Kids Fernanda and Julio Cesar,my care team and all the people I'll find here .
I reside in Brazil/ Rio Grande do Sul -Lagoa Vermelha city. Its a very small city.
I´m Agrobussines.Since "the day " that my doctor told me about ALS I'm learning about how to look everything with "my
soul's eyes"- thats what my wife is teaching me here.
Live with ALS is a each day new lesson for me and for my family. And I'm learning a new language too.. English was a mistery for me..and I still learning..perhaps next year I can write better.
I love my wife and my kids. My children, wife, family and friends help me battle this disease.
Since the Sporadic ALS diagnose I know that I'm not alone finding this site..And I will help,learn each day..I believe ..and anyway.. I Know we are good fighters..I'm here to learn. Thanks a lot!:)
