3288-full
Tullnut
Sex: M
Data Quality: 0 stars
ALS: 8 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: moderate
Chest: mild
Legs: severe
Tullnut
Male, 62 years
Henderson, NV
Primary Condition
ALS
First symptom
Diagnosis

About Tullnut

My first symptom was right foot drop around 12/2004 Three neurologists, multiple EMG/NCS, MRIs, CTs,lab studies later, there was still no diagnosis. I finally went to UCLA on 9/11/2006 and got the diagnosis. To date, I am still working, but now using a manual wheelchair or a cane. I used to be very active, hiking and skiing I miss the most. I have a very wonderful wife, June, who is incredibly supportive. I have been a clinical pharmacist since 1980, so I am constantly reviewing the literature for promising new ideas. I pray that we all will benefit from this and other new therapies soon.

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Profile Activity
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Member since: Apr 09, 2008 Last Login Oct 05, 2010