Epilepsy rocked my world at age 17,(idiopathic generalised epilepsy) and even more 28 years later, when I finally got the right diagnosis.(juvenile myoclonic epilepsy) Have struggled with side-effects, ongoing seizures and symptoms for the first chapter. Perform as an advocate on raising awareness on epilepsy, empowering others in every possible way. Fighting stigma and starting projects, so the second chapter is so much better for me. Live life to the max, epilepsy is here to stay with me, but I am the director of how I handle that.

 I am a happy & proud mother/grandmother/partner and most of all myself...sadly no job, so being involved in the epilepsy community is my volunteers job. I struggled way too long by myself with this terryfing word epilepsy, ignorant of what to expect, only knowing the first neurologist called it possible hysteria. So that was my burden. Had I known diagnosis can be wrong, and everyone living with epilepsy should visit their neurologist at least once a year, ask for treatment update, check ups, or another view on what the first diagnosis wass all about....things CAN change you know. I didn't. I had to find out the hard way. My message to everyone is about get information, get to know your epilepsy, stay tuned in with the world, don't lock yourself up, epilepsy is just another condition and that's it. Until a cure is found, get treatment, if that's not possible, make the most of it and wish for new developments. Knowledge of the brain is moving so fast.