7238-full
Chelena
Data Quality: 3 stars
  • Sex: Female
  • Age: 57y
Condition: Chronic Neuralgia 17 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Moderate
I am: Bad
Chelena
Female, 57 years
Sacramento, CA
Primary Condition
Chronic Neuralgia and 17 more
First symptom
Diagnosis
Interests
Alternative Medicine, Relationships and 1 more
See more
  1. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Bad

    added an InstantMe for May 22, 2013 May 22, 2013 4:35PM

    So tired and in such pain when I try to just do the "simplest" things like getting dressed, making a simple breakfast, writing this, shopping for food in an eledtrid dddddddddddddddddddddkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjj ----- see? I just fell asleep typing this journal. I fell asleep going to the bathroom the other day. And they did a full gladdddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddd bloodwork up on me on saturday and efery ti jjjjjjjjjjjjjjjjjjjjjjjjjjjjjjj they took five vials of blood and hrin kkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk

  2. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Bad

    added an InstantMe for May 15, 2013 May 16, 2013 2:14AM

    It was a good day until 4:15pm. I;d had lunch with LC and her 95 yo mom and 80 yo cousin to her mom. The a two hour massage with MT. Felt great. Should have gone home and laid down as I knew I was on borrowed time. I had not had enough sleep and the power of the massage was going to be lost if I over did it on the way home. OH, no I promised myself. I just have to grab a few things at the store and then home. Wrong. Parking lot a mess with it being senior day AND nearly 5pm. Got cussed out by some drunk, greaser heads from who knows where for absolutely nothing. (As I was pulling into the space next to them, the guy on the passenger side, who had been standing talking to the driver outside of their truck, opens his door wide so I couldn't finish parking. My window was down and I asked politely if he'd jus close his door for a second. Apparently he had different ideas not only about who was in the right but about women in general and women who he thought appeared to have several screws loose! hahaha. Still. Things like that jangle my nerves and I did recover in about 10 minutes from their sudden, verbal attacks..... deep inside I could feel the relaxation of the massage start to fall away like bits of worn material that just can't hang on anymore. The rest is as boring as what I've already written -- struggled to get the groceries from the car parked on the street to our steps and then after all the bags were out, one by one up the steep stairs to the top. Then another rest. Then to inside the door and one by one through our long front hall way to our small kitchen. I wanted to collaps right there but food had to be put awaysddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddddsaway and dinner made. The lamb chops caught on fire but luckily by then DH had arrived to save the meat. I'm so tired and in pain so much I really don't think I should be driving much of the time. I don't drive much actually so that is good. But even in the electric carts at the supermarket sometimes I just can't manoever them without hitting some corner display at least twice. I hate growing old.

  3. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Mood Map

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
    completed the Mood Map survey for May 13, 2013 May 14, 2013

    Been doing new ways of approaching my physical pain, balance problems, etc. with massage once a month and for four weeks I started today to work with a private yoga therapist. Both women are great. I had no idea what to expect from yoga therapy and was a bit nervous yet excited. So far, I am very happy with the experience. Gives me some hope.

  4. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Fibromyalgia

    • First symptom:
    • Diagnosis:
    updated the condition Fibromyalgia May 12, 2013

    6/17/12 When I say I am "treating" my FM since this current episode started last October I mean mostly that I am taking some over the counter supplements to see if they help. So far I really can't say that they do. My PCP does not seem too willing or interested in trying any prescription therapies that I see many people in the FM forum are or have tried. I am working with my p-doc also to see if by communicating with both of them and asking my more understanding and willing p-doc to communicate with my PCP directly that perhaps this will change. My PCP does let me have a scrip for Vicodin even though it really only works randomly. If I take it everyday it really doesn't work and constipates me terribly. I try to remember to take it maybe every other day so see if that will prevent the horrible break out pain that is so crippling and excruciating.

    I also have to constantly monitor the amount I do when I feel pain free. It's so easy to go and do "one" errand or appointment and then wind up doing three or four and then, boom! I'm in hell for 24 hours, paying for my lack of self-care and forgetfulness. Not that I am into blaming myself. It's such an understanding reaction to want to think you're okay because right then, right there you are almost pain free. (Walking is always a chore but since I got my temporary disability placard, parking is better and makes the "little" trips seem harmless enough. Ha.

    You'd think walking through a grocery store feeling like frankenstein (stiff and spastic) and every step painful would seem daunting. But see then I get back in the car and most of the pain goes away.... well, unless I keep doing errands. Then the pain starts building in my knees, hips, then back, shoulders and neck. By that time I feel "committed" to what I want to get done.... I am my own worst enemy here in those situations. I need to review my CBT notes again. Yup. That is what I am going to do.... back to CBT for me again. Anyone else try this to help themselves keep a balance?

    9 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 7238-thumb

      thanks! It IS good to know I am not the only one! One thing that is helpful for exercising is getting a rocking chair! I know that sound weird but I read an article many years ago on elderly people that lived a long life that owned them versus people of the same background and similar life style that don't have them don't live as long and are not in as good shape. Some of the people only have exercise when they sit on their rockers. So I dragged up old rocker with a wicker seat and back (which is how I could do it myself as it was light!) and found a little foot stool at the thrift for five dollars and everyday try and spend at a least an hour total on it.

      Tomorrow our local public pool opens and it's very close to our home so because walking as an exercise is not an option right now, swimming will have to be the alternate. Watch out skinny ladies.... the fat lady is going to do laps! Hahahaha. emoticon smile

      about 1 year ago
    • 7238-thumb

      I just realized I know three people here in Sacramento that own pools. I have in the past asked them if I could use their pools for therapy and for the most part at least one has been open to the idea depending on what's going on in their life. So maybe if you know anyone who has a pool you could ask them if you could come at a time good for both of you a couple or three times a week. I always bring my own towel and perhaps a bowl of fruit to share if they are around so I feel like I am giving something back.

      about 1 year ago
    • 7238-thumb

      I know one thing that always helps with new regimes: having a buddy who joins you and has similar limitations, skills, and goals. When the American River warms up a bit in mid summer I can take my dog dowwwww...... welll, now I guess I can't. What once seemed like a short walk may be too much for me now darnit! Sigh. Back to rocking and poops!

      about 1 year ago
    • 7238-thumb

      No. Not the part that I want to get to. Most of the river has a rather wonderful wide, wild habitat between the levees and the river itself. We are so lucky that it was preserved this way. No buildings on the river except the ones that are down town and part of the designated Sacramento Old Town area build in the 1850's during the Gold Rush. There are picnic areas elsewhere that have established grassy areas and picnic tables but that also means running into more people.

      I'm kinda selfish. I like to find places that have as few encounters with people as possible. Then, the people you do meet are usually the same kind of people and pleasant to be around. The place that is our favorite in the river is safe because it's a cove. The river moves very fast and is very very cold mountain run off from the Sierra's. So the cove water warm up because it's shallower. It's still pretty cool but once you get moving for a minute it's fine. I guess if my husband comes with me we could use our chairs to let me rest when I need to. Actually, he could just go ahead with our dog and I could get there in due time.

      Okay. It's worth trying!

      about 1 year ago
  5. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Neutral

    added an InstantMe for May 13, 2013 May 13, 2013 11:20PM

    I don't know. I should be feeling good for various reasons having to do mostly with my first private yoga/therapy session which was amazing. And then a sweet Mother's Day gift on the Persian Shield Pot nestled below the branches from MKP. And then a phone call from her.... but I am tired, hot, and finding it very hard to hang onto any feelings of wellness or positive energy. Drat. The fissure, like the jaws of death, have closed down on me again. But for a little while, I breathed. And it felt good.

  6. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Valproic Acid

      • Started: Dec 19, 2008
      • Current Dosage: 2000 mg daily
    • Purpose: Depressed mood and Migraine headaches
    • View Latest Evaluation
    updated the treatment Valproic Acid May 14, 2013
    • Added
      • Started: Dec 19, 2008
      • Dosage: 500 mg daily
      • Purpose: Other, Depressed mood, and Migraine headaches
      • Dec 19, 2008
    • Changed Dosage
      • Dosage: 1500 mg daily
      • Apr 26, 2010
    • Evaluated
    • Changed Dosage
      • Dosage: 2000 mg daily
      • May 05, 2010
  7. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    PFRS: 43

    • All Fatigue
    • Most Sleep
    • All Stiffness
    • Most Pain
    • Moderate External Stress
    completed the PFRS survey for May 12, 2013 May 12, 2013

    Fibromyalgia episode that started some weeks ago is getting worse aggravating the neuralgia as well. Am seeing a massage therapist one to two times a month, have to take vicodin again for when I need to get out or to sleep but I only take it, when I do, once a day as it constipates me. Also, if I use Vicodin too much it doesn't work anymore. There has been some added stress as it's that time a year when it gets hotter and my allergies are worse in May though they aren't that bad as I start taking my allergy medication in February to build up a good defense before it hits. Also my husband's work schedule at the high school always intensifies the last two months of school and he is here less to help with the garden, cooking, and helping to bring groceries upstairs. Our youngest son moved in the last week in April and it's been a fairly smooth transition as he is 25 and very responsible. Still, there are always a few bumps in the road in any new situation in the household. It's lucky that he has what amount to a very private, two bedroom apartment with a large bathroom so he has plenty of space for a desk, couch, etc. He doesn't want a TV so we don't have to pay extra to hook up another line for direct tv. I am mastering the art of just having him come and go upstairs and not saying hello or goodbye unless I sense he is not just passing through from work to school or vice versa. He has a busy schedule and is studying hard. I am hoping that trusts builds that I will not be a busy body and he can at least say, "Hi Mom." on his way in or out! It's not a big deal but being a mom it's just a little wish that is not a big deal but a wish all the same. I do envy his energy and ability to do as much as he does and since he is in and out during the day when often I am not doing much of anything -- building up the energy to go grocery shopping or cleaning, or gardening a bit. Usually I am alone all day and so I feel a bit more exposed and self-conscious but I have to keep reminding myself that he understands and isn't judging me. And even if he is, he keeps it to himself.

  8. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Major Depressive Disorder

    • First symptom:
    • Diagnosis:
    updated the condition Major Depressive Disorder May 12, 2013
  9. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Hot bath with Epsom Salts and Essential Oils

      • Started: ?
      • Dosage: ?
    • Purpose: Relaxation and Muscle and joint pain
    updated the treatment Hot bath with Epsom Salts and Essential Oils May 12, 2013
  10. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    PanOxyl

      • Started: Jul 1, 2004
      • Current Dosage: 1 other weekly
    • Purpose: Eczema
    updated the treatment PanOxyl May 12, 2013
    • Added
      • Started: Jul 01, 2004
      • Dosage: 3 app weekly
      • Purpose: Eczema
      • Jul 01, 2004
    • Changed Dosage
      • Dosage: 1 other weekly
      • Jan 01, 2008
  11. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Neutral

    added an InstantMe for May 11, 2013 May 11, 2013 9:08PM

    Still having a hard time sleeping through the night because of pain and discomfort. Wake up tired and very groggy and fog headed. Eventually it wears off if I drink some coffee around mid-day -- I can't drink it earlier because it is too strong for me in the am. Makes me dizzy and off. Also it help if I can make myself jump into the shower right away in the am -- or a bath if I am super achey. Afternoons are usually better. Have been having some good times with DB and also MKP. I hate to say this but DB having a badly broken arm and being unable to work for weeks has been really great for both of us to have time together. I wish it didn't have to happen because of the broken arm but perhaps fate intervened in some way. I've also had an opportunity to be more a part of her youngest's life having to pick her up at school. Her shyness has disappeared and we talk animatedly the whole way home. She is in need of an "aunty" and as I used to care for her 20 hours a week from the time she was 3months to 2 years we have a strong connection anyway. So it's a perfect time for us to build on that as she heads into her Junior year in high school. Her mom, my friend and neighbor, is really happy that our relationship is strengthening as she feels her daughter needs more adult role models outside of school. I am honored to be considered to be and act in such a role in her life.

  12. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Neutral

    added an InstantMe for May 9, 2013 May 09, 2013 6:42PM
  13. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Bad

    added an InstantMe for May 4, 2013 May 04, 2013 4:36PM
  14. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Bad

    added an InstantMe for May 2, 2013 May 03, 2013 1:23AM

    Still feel really low, tired, and walled off somehow. I seem to be able to do things for people and make them happy but I can't seem to feel anything positive really coming in. I mean last night I spent some time with a young woman I am like a mother to and who is in town for a bit. She says I am "her rock." That I am "amazing." I am happy that I can help her, make her feel more secure during this time of trial for her. I really am happy that somehow I can do that but really I don't do anything. I just listen and talk to her. I sometimes help draw out some feelings that are very deep inside of her and she sometimes cries like a little girl and I hug her and rub her back. I feel so maternal towards her and it feels good but I still don't think she see's me. Maybe we really can't see each other. Just through a glass darkly as best we can.

  15. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Psychotherapy Treatment Evaluation

    • Perceived effectiveness for Excessive crying: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Perceived effectiveness for Dysthymia: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Perceived effectiveness for Major Depressive Disorder: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Perceived effectiveness for Social Anxiety Disorder: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Side Effects: MildMildMildMildMild
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: VeryVeryVeryVeryVery
    added a treatment evaluation for Psychotherapy from Mar 1, 2013 May 03, 2013
  16. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Couples/Family Therapy

      • Stopped: May 31, 2011
      • Reason: Expense and Other
      • Started: Apr 10, 2006
      • Last Dosage: 50 min monthly
    • Purpose: Marital problems, Improve communication, and Support mental / emotional health
    • View Latest Evaluation
    updated the treatment Couples/Family Therapy May 03, 2013
    • Added
      • Started: Apr 10, 2006
      • Dosage: 60 min weekly
      • Purpose: Marital problems, Improve communication, Support mental / emotional health, A long-term problem in the couple or family, and Possible heart murmur
      • Apr 10, 2006
    • Changed Dosage
      • Dosage: 120 min monthly
      • Jun 18, 2008
    • Evaluated
    • Changed Dosage
      • Dosage: 50 min monthly
      • Sep 01, 2009
    • Evaluated
    • Evaluated
    • Evaluated
    • Stopped
      • Date: May 31, 2011
      • Reason: Expense and Other
      • May 31, 2011
  17. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Crisis team

      • Started: ?
      • Dosage: ?
    • Purpose:
    updated the treatment Crisis team May 03, 2013
  18. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Psychotherapy

      • Stopped: Mar 01, 2013
      • Reason: Expense
      • Started: Sep 1, 2000
      • Last Dosage: 50 min weekly
    • Purpose: Social Anxiety Disorder, Major Depressive Disorder, and 2 more
    • View Latest Evaluation
    updated the treatment Psychotherapy May 03, 2013
    • Added
      • Started: Sep 01, 2000
      • Dosage: 100 min weekly
      • Purpose: Social Anxiety Disorder, Major Depressive Disorder, Dysthymia, and Excessive crying
      • Sep 01, 2000
    • Stopped
      • Date: Mar 01, 2013
      • Reason: Expense
      • Mar 01, 2013
    • Evaluated
  19. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Deep Tissue Massage

      • Started: Apr 25, 2013
      • Current Dosage: 240 min monthly
    • Purpose: Support mental / emotional health, Stiffness/Spasticity, and 3 more
    updated the treatment Deep Tissue Massage May 03, 2013
  20. 7238-thumb
    Chelena
    Data Quality: 3 stars
    • Sex: F
    • Age: 57
    Condition: Chronic Neuralgia 17 additional condition(s)
    Quality of Life:
    • Mental: Moderate
    • Physical: Moderate
    I am: b
    I have:
    Chronic Neuralgia

    Chronic Neuralgia

    • First symptom:
    • Diagnosis:
    updated the condition Chronic Neuralgia Apr 30, 2013

    I have arthritis in my spine and the three lowest disks are compressed but not herniated. The bottom disk is the most compromised and is pressing on the left nerve that leads to the lower left side of my body such as my left hip, thigh and knee most of all. My knee takes the brunt of the pressure and is so weak and painful in a very sharp and pronounced way at this point that I have to use a cane.

    I have asked my health care provider for a folding wheelchair and/or a folding walker with seat and swivel wheels. I've been denied as we are not covered for "durable equipment."

    I am trying to get myself together to find one in another way but I am so tired so much of the time I can barely get my daily shit done much less try and find myself a wheelchair. SOrry. Very tired right now. Shoulders and neck sore, need to stop typing.

  21. Show more