heart390
heart390
Sex: F
Data Quality: 3 stars
MS: 35 yrs
Type: Secondary Progressive
Sensation: None
Overall: None
Cognition: moderate
Vision: none
Speech: none
Swallowing: none
Upper limb: none
Walking: moderate
heart390
Female, 60 years
Sellersville, PA
Primary Condition
MS and 2 more ▼
Type
Secondary Progressive
First symptom
Dec 1976
Diagnosis
Jan 1982

About heart390

I consider myself very lucky, as I have only had about 5 flare-ups in about 33 years! Back then we were told that there was nothing we could do for it, so I went on with my life and forgot about it. I have even been to new doctors and forgot to mention it! I have raised 2 sons while mostly working fulltime. I have never had alot of energy, couldn't run, had occasional falls, and walked a little strange at times, but didn't think much of it. Then 4 years ago I fell at work and broke my wrist. Two weeks later I woke up with double vision. MRI confirmed what they had told me back

Profile Activity
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Member since: Mar 30, 2008 Last Login May 23, 2012

Other Conditions

  1. Diabetes Type 2
    First symptom
    ?
    Diagnosis
  2. Uterine cancer
    First symptom
    Diagnosis

More About heart390

in the '70's.  Solumedrol did the trick (thank goodness) and after one week my vision and balance were back to normal. This time I hit the internet and was blown away by all the information that was out there!  I now realize that even though I wasn't having relapses,   the MS was still active.   Now I finally had a neuro, and of course she was pushing  ABCR drugs.  I felt that I had done this well, all these years , just leave well enough alone.  Plus I was still working full time - I didn't need flu symptoms and the huge expense on the chance that it MIGHT slow things down.  Fast forward 3 1/2 yrs. till now...After  having 4 very emotional seperate occurances happen in my life, I woke up Christmas Eve morning with such severe vertigo that I couldn't even move my head on the pillow.  After 2 days in diapers and Antivert, I was finally able to get out of bed and hobble around.  During the time in bed I really had time to evaluate my situation.  Between the fatigue and cognitive challenges left from forcing myself to be on my feet for 8 hrs. a day, I was barely able to drive home and collapse in bed every night.  This was not quality of life.  My neuro surprised me by saying that she was proud of me for pushing myself to work  33 yrs. with MS!  So I guess my RR (or even benign) MS has turned into SPMS, and I am out on short-term disability, planning on going long-term this June.  It finally caught up with me after all these years!       P.S.  (9/12/08)  I was just approved for SSDI after only filing 9 weeks ago!!!!!    Sometimes things just fall into place......