Portrait_default
jennikb
Sex: F
Data Quality: 1 star
ALS: 6 yrs
Wheelchair
Bulbar: mild
Arms: severe
Chest: mild
Legs: severe
jennikb
Female, 36 years
IN, United States
Primary Condition
ALS and 2 more
First symptom
Diagnosis
Interests
Alternative Medicine, and Parenting
See more

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jennikb's Low Dose Naltrexone (LDN) is for:

  • ALS

jennikb's side effects of Low Dose Naltrexone (LDN):

jennikb's Low Dose Naltrexone (LDN) History (Ongoing)
Low Dose Naltrexone (LDN) (naltrexone)
3 mg Daily Feb 10, 2010 - Jul 08, 2011
4.5 mg Daily Jul 08, 2011 - Mar 29, 2013
4.5 mg Daily Mar 29, 2013 - Last Update
Evaluations
Date Dosage ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Apr 22, 2013 4.5 mg Daily Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4 NoneNoneNoneNone AlwaysAlwaysAlwaysAlways A littleA littleA littleA little
Mar 26, 2012 4.5 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Dec 14, 2011 4.5 mg Daily Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_default MildMildMildMild AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Apr 22, 2013
Advice & Tips
9 months after being dx with ALS, I noticed that my voice in 2009 stabilized. In 2013, my voice and swallowing are basically the same. I give most credit to taking LDN.
Cost
$25-49 monthly
Date
Mar 26, 2012
Advice & Tips
I am seeing many ALS patients loosing their voice. I am convinced that LDN is what prevented me from loosing mine. I started on the drug a couple years ago, noticed an immediate impact, and have not gotten off. My voice is still around which was contrary to my original progression. I still struggle, but most people can understand what I am saying with very little repeating. Please consider using just to see if it works for you.
Cost
< $25 monthly
Date
Dec 14, 2011
Advice & Tips
This seemed to be the reason why I was able to keep my voice. No proof of this fact, but it certainly is the appearance from my perspective.
Cost
< $25 monthly

About Low Dose Naltrexone (LDN) (Prescription Drug)

Naltrexone is FDA approved for alcohol and opioid dependence at 50mg doses. Pilot and preliminary studies of its use in low doses suggest there may be some positive effect for certain conditions. Read more...Click to read more below

Learn more about Low Dose Naltrexone (LDN) in our Low Dose Naltrexone (LDN) Community Report.