13819-full
BaykayakR
Sex: M
Data Quality: 2 stars
Parkinson's: 16 yrs
Hoehn-Yahr 1 Type: Parkinson's disease On
Mouth/throat: none
Arms: none
Chest: none
Legs: none
BaykayakR
Male, 64 years
East Lansing, MI
Primary Condition
Parkinson's
Type
Parkinson's disease
First symptom
Diagnosis
Interests
Research, and Working with my Condition
See more
  1. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Mar 18, 2013 Mar 18, 2013 7:21PM

    Parkinson's leadership training in Bay City is good. I did my full balance workout on the Bosu Ball this a.m.

  2. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    PDRS: 2

    • On Treatment
    • none Mouth/throat
    • none Arms
    • none Chest
    • none Legs
    completed the PDRS survey for Mar 18, 2013 Mar 18, 2013
  3. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    QOL

    • Best Social
    • Best Mental
    • Best Physical
    completed the QOL survey for Mar 18, 2013 Mar 18, 2013
  4. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Parkinson's Disease

    • First symptom:
    • Diagnosis:
    updated the condition Parkinson's Disease Mar 18, 2013
  5. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    190 lb BMI: 27.3

    updated his weight for Aug 10, 2012 Sep 30, 2012

    Concentrating on eating modestly and exercising well.

  6. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Sep 30, 2012 Sep 30, 2012 10:50PM

    Returned from a great weekend trip to Stratford, Ont.

  7. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    PDRS: 5

    • Off Treatment
    • none Mouth/throat
    • none Arms
    • none Chest
    • none Legs
    completed the PDRS survey for Sep 30, 2012 Sep 30, 2012
  8. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Azilect Treatment Evaluation

    • Perceived effectiveness for Parkinson's Disease: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Perceived effectiveness for Stiffness/Spasticity: Led_efficacy_3Led_efficacy_3Led_efficacy_3Led_defaultModerate
    • Side Effects: MildMildMildMildMild
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Cost
    < $25 monthly
    added a treatment evaluation for Azilect Sep 30, 2012
  9. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Amantadine Treatment Evaluation

    • Perceived effectiveness for Parkinson's Disease: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Perceived effectiveness for Cramps in feet: Led_efficacy_4Led_efficacy_4Led_efficacy_4Led_efficacy_4Major
    • Side Effects: NoneNoneNoneNoneNone
    • Adherence: AlwaysAlwaysAlwaysAlwaysAlways
    • Burden: Not at allNot at allNot at allNot at allNot at all
    Cost
    < $25 monthly
    added a treatment evaluation for Amantadine Sep 30, 2012
  10. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    190 lb BMI: 27.3

    updated his weight for Sep 30, 2012 Sep 30, 2012
  11. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Updated Photo

    updated his profile picture Sep 30, 2012
  12. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Azilect

      • Started: Jul 23, 2007
      • Current Dosage: 1 mg daily
    • Purpose: Stiffness/Spasticity and Parkinson's
    • View Latest Evaluation
    updated the treatment Azilect Sep 30, 2012
    • Added
      • Started: Jul 23, 2007
      • Dosage: 1 mg daily
      • Purpose: Stiffness/Spasticity and Parkinson's Disease
      • Jul 23, 2007
    • Stopped
      • Date: Apr 23, 2008
      • Reason: Doctor's advice
      • Apr 23, 2008
    • Restarted
      • Dosage: 1 mg daily
      • Apr 24, 2008
    • Evaluated
    • Evaluated
  13. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Amantadine

      • Started: May 16, 2008
      • Current Dosage: 100 mg daily
    • Purpose: Cramps in feet and Parkinson's
    • View Latest Evaluation
    updated the treatment Amantadine Sep 30, 2012
  14. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Updated Bio

    I’ve turned 64. I've been a clinical social worker for about 30 years and currently work 1/4 time for a health related research study. I am fairly active (kayaking, camping, bike riding, flying stunt kites), but my swimming has suffered over the last year at increased difficulty with stamina. Greatly out of character for me, I used a good deal of the spring and summer to hand build a Greenland style skin-on-frame kayak. it was exhilarating to test my tenacity and creativity on such a concrete project.

    updated his bio Sep 30, 2012
  15. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    PDRS: 4

    • On Treatment
    • none Mouth/throat
    • none Arms
    • none Chest
    • none Legs
    completed the PDRS survey for Jul 11, 2012 Jul 11, 2012

    I keep very active and exercise at a high level 3-5 times a week

  16. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    190 lb BMI: 27.3

    updated his weight for Jul 11, 2012 Jul 11, 2012

    I am working diligently to maintain regular bowel movements and avoid cookies, candy and fattening snacks.

  17. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Jul 11, 2012 Jul 11, 2012 9:47PM

    Kayak is nearing completion. Work is fine. I'm increasingly relaxed

  18. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    QOL

    • Best Social
    • Best Mental
    • Best Physical
    completed the QOL survey for Jul 11, 2012 Jul 11, 2012
  19. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's
    star earnedstar earnedstar notearned 2 stars
    lost a star May 22, 2012
  20. 13819-thumb
    BaykayakR
    Sex: M
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: none
    Legs: none
    I am: vg
    I have:
    Parkinson's

    Very good

    added an InstantMe for Mar 13, 2012 Mar 13, 2012 9:58PM

    Getting my work done, starting to build a kayak. Put out a very good edition of the Newsletter.

  21. Show more