38038-full
pachamama
Sex: M
Data Quality: 2 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: moderate
Arms: severe
Chest: moderate
Legs: severe
pachamama
Male, 66 years
Paterson, NJ
Primary Condition
ALS
First symptom
Diagnosis
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pachamama's Rilutek is for:

  • ALS

pachamama has not reported any side effects for Rilutek.

pachamama's Rilutek History (Ongoing)
Rilutek (riluzole)
50 mg Daily Dec 20, 2010 - Aug 15, 2011
100 mg Daily Aug 15, 2011 - Last Update
Evaluations
Date Dosage ALS (Amyotrophic Lateral Sclerosis) Perceived effectiveness Side Effects Adherence Burden
Sep 26, 2011 100 mg Daily ? NoneNoneNoneNone AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Sep 26, 2011
Advice & Tips
I'm not sure if I will ever know whether riluzole is helping me or not. I can say the only reason I'm taking it is because it is covered by my insurance. It is my understanding that it would cost $14,000 per year if I had to pay full price. I'm not certain that the promised "1 to 3 months"survival time would seem worth that cost.
Cost
< $25 monthly

About Rilutek (Prescription Drug)

Rilutek® is a brand name for riluzole, the first drug to be approved for the treatment of amyotrophic lateral sclerosis (ALS). Rilutek does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Learn more about Rilutek in our Rilutek Community Report.

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