green1smile's Journal

green1smile: Sex: F; Data Quality: 3 stars; ALS: 32 yrs; Bi-Pap Wheelchair; Bulbar: moderate; Arms: moderate; Chest: moderate; Legs: severe

green1smile: Female, 59 years; ganay tikva, israel

Primary Condition: ALS and 3 more ▼

First symptom: Jul 1980
Diagnosis: Sep 2006

green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Ventilator
- - Started: Aug 30, 1995
  - Current Dosage: 20 hr all the time (24/7)
- Purpose: Breathing difficulty
green1smile updated the treatment Ventilator May 20, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
NIPPV other than BiPAP
- - Started: Aug 25, 1995
  - Current Dosage: 20 hr all the time (24/7)
- Purpose: Breathing difficulty and ALS
green1smile updated the treatment NIPPV other than BiPAP May 20, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Sleep Apnea Disorder
- First symptom: ?
- Diagnosis: ?
green1smile updated the condition Sleep Apnea Disorder May 20, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

132 lb 4 oz BMI: 22.7
green1smile updated her weight for Apr 29, 2013 Apr 29, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- mild Abdominal bloating
- mild Acid reflux
- none Allergic reaction
- none Allergies
- none Anxious mood
- severe Atrophy of calf muscles
- severe Atrophy of elbow muscles
- severe Atrophy of feet muscles
- severe Atrophy of forearm muscles
- severe Atrophy of hand muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of lower body muscles
- severe Atrophy of muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- severe Atrophy of shoulder muscles
- severe Atrophy of thigh muscles
- moderate Atrophy of tongue muscles
- severe Atrophy of upper body muscles
- moderate Balance problems
- severe Body weakness
- severe Breathing difficulty
- none Depressed mood
- severe Central sleep apnea
- moderate Choking on food
- moderate Choking on liquids
- severe Clonus spasms
- none Cold feet
- moderate Constipation
- moderate Coughing while drinking
- moderate Coughing while eating
- severe Cramps
- severe Cramps in back
- severe Cramps in calf muscles
- severe Cramps in legs
- severe Cramps in neck
- severe Cramps under chin
- moderate Difficulty chewing
- severe Difficulty projecting voice
- moderate Difficulty speaking (dysarthria)
- severe Dry mouth at night
- moderate Emotional lability
- severe Endurance reduced (whole body)
- severe Excessive yawning
- moderate Excess saliva
- severe Fasciculations
- severe Fatigue
- mild Fingers curl
- moderate Foot drop
- severe Generalized weakness (asthenia)
- none Supraventricular heartbeats
- moderate happiness
- none Heartburn
- moderate Inability to manipulate tongue
- moderate Insomnia
- moderate Joints ache (whole body)
- severe Loss of manual dexterity
- severe Mobility decreased
- severe Myoclonic seizures
- mild Nail ridges
- moderate Neck pain
- moderate Numbness and Tingling with Pins and Needles
- severe Pain
- severe Pain in shoulders
- moderate Slurred speech
- moderate spiritual enlightenment
- severe Stiffness/Spasticity
- moderate Swallowing difficulty (dysphagia)
- moderate Tongue tremor
- severe Transferring difficulty
- severe Walking problems
- severe Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- severe Weakness in neck (head drop)
- See more
green1smile updated her symptoms for Apr 29, 2013 Apr 29, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

FVC: 28%

green1smile completed the FVC survey for Apr 22, 2013 Apr 22, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Hypercholesterolemia
- First symptom: ?
- Diagnosis: ?
green1smile updated the condition Hypercholesterolemia Apr 22, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- moderate Abdominal bloating
- moderate Acid reflux
- none Allergic reaction
- none Allergies
- none Anxious mood
- severe Atrophy of calf muscles
- severe Atrophy of elbow muscles
- severe Atrophy of feet muscles
- severe Atrophy of forearm muscles
- severe Atrophy of hand muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of lower body muscles
- severe Atrophy of muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- severe Atrophy of shoulder muscles
- severe Atrophy of thigh muscles
- moderate Atrophy of tongue muscles
- severe Atrophy of upper body muscles
- severe Balance problems
- severe Body weakness
- severe Breathing difficulty
- severe Central sleep apnea
- moderate Choking on food
- moderate Choking on liquids
- severe Clonus spasms
- none Cold feet
- mild Constipation
- moderate Coughing while drinking
- moderate Coughing while eating
- severe Cramps
- severe Cramps in back
- severe Cramps in calf muscles
- severe Cramps in legs
- severe Cramps in neck
- moderate Cramps under chin
- none Depressed mood
- moderate Difficulty chewing
- moderate Difficulty projecting voice
- moderate Difficulty speaking (dysarthria)
- severe Dry mouth at night
- moderate Emotional lability
- severe Endurance reduced (whole body)
- moderate Excessive yawning
- moderate Excess saliva
- severe Fasciculations
- severe Fatigue
- mild Fingers curl
- moderate Foot drop
- severe Generalized weakness (asthenia)
- moderate happiness
- none Heartburn
- moderate Inability to manipulate tongue
- moderate Insomnia
- mild Joints ache (whole body)
- severe Loss of manual dexterity
- severe Mobility decreased
- severe Myoclonic seizures
- mild Nail ridges
- severe Neck pain
- severe Numbness and Tingling with Pins and Needles
- severe Pain
- severe Pain in shoulders
- moderate Slurred speech
- moderate spiritual enlightenment
- severe Stiffness/Spasticity
- moderate Supraventricular heartbeats
- moderate Swallowing difficulty (dysphagia)
- severe Tongue tremor
- severe Transferring difficulty
- severe Walking problems
- severe Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- severe Weakness in neck (head drop)
- See more
green1smile updated her symptoms for Apr 1, 2013 Apr 01, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

130 lb 1 oz BMI: 22.3
green1smile updated her weight for Mar 27, 2013 Mar 27, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jul 1, 1980
- Diagnosis: Sep 1, 2006
green1smile updated the condition ALS (Amyotrophic Lateral Sclerosis) Mar 27, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
GERD (Gastroesophageal reflux disease)
- First symptom: ?
- Diagnosis: ?
green1smile updated the condition GERD (Gastroesophageal reflux disease) Mar 27, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 8
- moderate Head
- moderate Arms
- moderate Torso
- severe Legs
green1smile completed the FRS survey for Mar 18, 2013 Mar 18, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

3 stars
green1smile earned a star! Mar 18, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

2 stars
green1smile lost a star Mar 17, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- moderate Abdominal bloating
- severe Acid reflux
- none Allergic reaction
- none Allergies
- none Anxious mood
- severe Atrophy of calf muscles
- severe Atrophy of elbow muscles
- severe Atrophy of feet muscles
- severe Atrophy of forearm muscles
- severe Atrophy of hand muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of lower body muscles
- severe Atrophy of muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- severe Atrophy of shoulder muscles
- severe Atrophy of thigh muscles
- moderate Atrophy of tongue muscles
- severe Atrophy of upper body muscles
- severe Balance problems
- severe Body weakness
- severe Breathing difficulty
- severe Central sleep apnea
- moderate Choking on food
- moderate Choking on liquids
- severe Clonus spasms
- mild Cold feet
- mild Constipation
- moderate Coughing while drinking
- moderate Coughing while eating
- severe Cramps
- severe Cramps in back
- severe Cramps in calf muscles
- severe Cramps in legs
- severe Cramps in neck
- moderate Cramps under chin
- mild Depressed mood
- mild Difficulty chewing
- severe Difficulty projecting voice
- moderate Difficulty speaking (dysarthria)
- moderate Dry mouth at night
- severe Emotional lability
- moderate Endurance reduced (whole body)
- moderate Excessive yawning
- moderate Excess saliva
- moderate Fasciculations
- moderate Fatigue
- moderate Fingers curl
- moderate Foot drop
- severe Generalized weakness (asthenia)
- moderate happiness
- none Heartburn
- moderate Inability to manipulate tongue
- moderate Insomnia
- moderate Joints ache (whole body)
- severe Loss of manual dexterity
- severe Mobility decreased
- severe Myoclonic seizures
- mild Nail ridges
- severe Neck pain
- severe Numbness and Tingling with Pins and Needles
- severe Pain
- severe Pain in shoulders
- moderate Slurred speech
- moderate spiritual enlightenment
- severe Stiffness/Spasticity
- mild Supraventricular heartbeats
- moderate Swallowing difficulty (dysphagia)
- moderate Tongue tremor
- severe Transferring difficulty
- severe Walking problems
- severe Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- severe Weakness in neck (head drop)
- See more
green1smile updated her symptoms for Mar 4, 2013 Mar 04, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

127 lb 14 oz BMI: 21.9
green1smile updated her weight for Feb 25, 2013 Feb 25, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
green1smile completed the QOL survey for Feb 25, 2013 Feb 25, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- moderate Abdominal bloating
- moderate Acid reflux
- none Allergic reaction
- none Allergies
- mild Anxious mood
- severe Atrophy of calf muscles
- severe Atrophy of elbow muscles
- severe Atrophy of feet muscles
- severe Atrophy of forearm muscles
- severe Atrophy of hand muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of lower body muscles
- severe Atrophy of muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- severe Atrophy of shoulder muscles
- severe Atrophy of thigh muscles
- moderate Atrophy of tongue muscles
- severe Atrophy of upper body muscles
- severe Balance problems
- severe Body weakness
- severe Breathing difficulty
- severe Central sleep apnea
- moderate Choking on food
- moderate Choking on liquids
- severe Clonus spasms
- none Cold feet
- mild Constipation
- moderate Coughing while drinking
- moderate Coughing while eating
- severe Cramps
- severe Cramps in back
- severe Cramps in calf muscles
- severe Cramps in legs
- severe Cramps in neck
- moderate Cramps under chin
- moderate Depressed mood
- mild Difficulty chewing
- moderate Difficulty projecting voice
- mild Difficulty speaking (dysarthria)
- moderate Dry mouth at night
- moderate Emotional lability
- severe Endurance reduced (whole body)
- severe Excessive yawning
- severe Excess saliva
- severe Fasciculations
- severe Fatigue
- moderate Fingers curl
- moderate Foot drop
- severe Generalized weakness (asthenia)
- moderate happiness
- none Heartburn
- mild Inability to manipulate tongue
- moderate Insomnia
- mild Joints ache (whole body)
- moderate Loss of manual dexterity
- severe Mobility decreased
- severe Myoclonic seizures
- mild Nail ridges
- severe Neck pain
- severe Numbness and Tingling with Pins and Needles
- severe Pain
- severe Pain in shoulders
- mild Slurred speech
- moderate spiritual enlightenment
- severe Stiffness/Spasticity
- mild Supraventricular heartbeats
- moderate Swallowing difficulty (dysphagia)
- moderate Tongue tremor
- moderate Transferring difficulty
- severe Walking problems
- severe Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- severe Weakness in neck (head drop)
- See more
green1smile updated her symptoms for Feb 4, 2013 Feb 04, 2013
green1smile

Sex: F

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

132 lb 4 oz BMI: 22.7
green1smile updated her weight for Jan 28, 2013 Jan 28, 2013
Show more

About green1smile

Other Conditions

Ventilator

NIPPV other than BiPAP

Sleep Apnea Disorder

132 lb 4 oz BMI: 22.7

Symptom Update

FVC: 28%

Hypercholesterolemia

Symptom Update

130 lb 1 oz BMI: 22.3

ALS (Amyotrophic Lateral Sclerosis)

GERD (Gastroesophageal reflux disease)

FRS: 8

Symptom Update

127 lb 14 oz BMI: 21.9

QOL

Symptom Update

132 lb 4 oz BMI: 22.7